Wondering ladies, how many of your children have 1:1 aides, and what did you have to do/say to get them? I'm looking for good lingo that emphasizes their rights and validates their safety concerns that I can use in my IEP meetings this week and next. All year my kids prek teacher and I have known once we got to this point of going into kinder and the big school that 2 if my children would each need their own aide. Now this past week, we have both talked to our AEA psych, and she's like, yea that's going to be a hard one, resources, blah, blah, blah. But here's my beef...
My daughter is non-verbal, hearing impaired, severe intellectual disability (developmentally 12-24 months), down syndrome, limited understanding, no following direction, needs help for all toileting/feeding/instruction, is a flight risk for any open door or a closed one she can sneak out of if no one is watching her - also on playground would wander away, has physical safety concerns due to a neck instability so has restrictions in play and body movements, and she's 3 ft tall, 28 lbs and is going to be in a school up to 5th grade with kids 2-4x her size. She is not safe, period. Completely defenseless.
My son has ASD, SPD, brain injury with moderate intellectual disability (functionally 2-3 years old), motor/speech delays, still requires help with toileting, needs someone to keep his attention on task, requires sensory breaks, has a severe peanut allergy where the school is not peanut free which means he can break out just from minimal touch (to give you an idea, my hubs decided it was a good idea to have pb toast at work for breakfast on Thursday. After coming home 9 hours later with eating and drinking all day it only took 1 kiss to send my son into a peanut frenzy. And no, my son's intelligence is not yet to the point where he can have any responsibility about his safety in this.). He's also a flight risk both in school and play ground, and needs help/escape with sensory overload often.
And the new school tells me just upon reading their current IEPs that they will be their 2 most complex/challenging kids next year. And I know there are other kids with 1:1 aides in the school, so why the heck would mine not qualify, and how do I get them. I flat out told the psych that if they don't get approved my daughter will not be coming, and we will need to see about my son. Thanks for the help ladies!