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Raising Special Needs Kids Raising Special Needs Kids

Worried

Posted by on Mar. 27, 2014 at 5:49 AM
  • 13 Replies
Hey yall. Im new to this page. My name is Mary. This is all new to me. Let me start from the beginning.

My oldest (4 1\2) son Landon lost his hearing when he was 8 weeks old and didnt start hearing well till about a year and a half. He didnt talk good till he was 3 1/2. I started noticing odd behavior around 3. He would do a 360 in less than 2 seconds, He has very irratic behavior, his tantrums last more than 30 minutes and the only way to calm him down is to physically hold him, he hurts himself, he has to stay on a strict schedule or else he is out of control, he has to constantly be moving, he is very touchy feely, social situations arent too big of an issue unless he has an off day but he is a very awkward but big hearted boy. I dont know how else to describe him. I know he is 4 1/2 and hes not gonna listen much but he is out of control. The doctor even noticed at his appointment today. So she is referring us to Texas Childrens Behavioral and Developmental center and Depelchins. It is very tough because I dont know what to do. Or how to help him.
by on Mar. 27, 2014 at 5:49 AM
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Replies (1-10):
mandee1503
by Amanda on Mar. 27, 2014 at 7:48 AM
1 mom liked this
Being referred to a specialist is a good step in the right direction. Good luck. Welcome to the group!
Mommyof3boys070
by on Mar. 27, 2014 at 8:02 AM
Thank you. This is all new to me.

Quoting mandee1503: Being referred to a specialist is a good step in the right direction. Good luck. Welcome to the group!
arkmomma06
by Angie on Mar. 27, 2014 at 8:52 AM
Getting him evaluated is a good start. Good luck
jjamom
by Michele on Mar. 27, 2014 at 11:28 AM
I agree with the other Moms, getting him evaluated is the best first step. They will be able to help you with resources (specialists, therapies, etc) once they get a diagnosis, if there is one.

Welcome to the group. Keep us updated on how it goes.
letstalk747
by Joy on Mar. 27, 2014 at 11:52 AM
1 mom liked this

welcome , get that apt. set up right away these apt.s can have a long wait list

Momof4AEMW
by Gold Member on Mar. 27, 2014 at 2:11 PM
1 mom liked this

It's a great step you're getting a referral for evaluation.  Until the appointment, I would write down any behaviors that seem odd to you, as well as take photos.  Helps to have ideas a head than trying to think off the top of your head when they ask questions.  Good luck and welcome! 

Mommyof3boys070
by on Mar. 27, 2014 at 5:56 PM
Thank yall.
Linagma03
by Gold Member on Mar. 27, 2014 at 7:42 PM
1 mom liked this

Welcome to the group! 

I agree with all the ladies here. Call and make the appt right away because most of the time it takes awhile to get in. It took me almost 4 months before Lina was able to be seen. 

I would say you have a great pedi to notice it and give you a referral right then. A lot of us had to beat our heads against a wall and keep nagging the Dr about it before getting that referral. I agree about taking pics or video and writing down what concerns you even if you think it is normal 4 yr old behavior but aren't sure write it down. All that info helps more than you think it would. 

Good Luck Momma!

Cindy18
by Gold Member on Mar. 27, 2014 at 9:25 PM

I think your ped did the right thing. A developmental doctor will be more knowledgeable.

darbyakeep45
by Darby on Mar. 28, 2014 at 7:19 AM

You're on the right track mama!  Hugs!

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