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NF sucks

Posted by on Jul. 25, 2014 at 12:03 PM
  • 12 Replies

Two of my kids have Neurofibromatosis (I have 3 kids). It causes tumors to grow anywhere on the body. It also affects coordination, social issues, fine motor, gross motor.. This has been true for my 7 year old son. He has a twin brother who doesn't have NF. It's been hard watching Ronin (doesn't have NF) pick up stuff much faster than his brother Ryker (with NF). 

Both boys took swimming lessons. We are members at the local Y. We go to the open swim. In order to go to different parts of the pool, they have to pass a swimming test. Ronin always passes but Ryker struggles. He has trouble coordinating his arms. It's just hard :/ 




Lilypie - Personal pictureLilypie Kids Birthday tickers

Lilypie - Personal pictureLilypie Kids Birthday tickers




by on Jul. 25, 2014 at 12:03 PM
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Replies (1-10):
mandee1503
by Amanda on Jul. 25, 2014 at 12:13 PM
*hugs* it's never fun watching our children struggle.
Nicole_2007
by Member on Jul. 25, 2014 at 12:26 PM

"hugs"  Its always hard to watch our kids struggle. 

Momof4AEMW
by Gold Member on Jul. 25, 2014 at 5:05 PM

Hugs Mama! 

golfqueen123
by Silver Member on Jul. 25, 2014 at 11:11 PM

Hugs, its tuff, I know where your coming from!

darbyakeep45
by Darby on Jul. 26, 2014 at 12:18 AM
1 mom liked this
Big hugs!!!
letstalk747
by Ruby Member on Jul. 26, 2014 at 1:11 AM

huggs

MamaLauri
by Silver Member on Jul. 26, 2014 at 10:41 AM

hugs

Linagma03
by Platinum Member on Jul. 26, 2014 at 5:19 PM
Hugs!
ajs34
by Member on Jul. 27, 2014 at 6:55 AM
Hugs, it's hard to watch them struggle, but when they finally get it they light up and are so proud.
SamMom912
by Silver Member on Jul. 28, 2014 at 8:09 AM

love the names you picked out for your boys.
here is hoping Ryker figures out he is better at Ronin at some stuff.. we all have our gifts. But, yes, hard to watch our kids struggle.
Hpe Ryker passes deep water test soon!

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