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Raising Special Needs Kids Raising Special Needs Kids

DD with intellectual disability

Posted by on Aug. 4, 2014 at 9:16 PM
  • 18 Replies
ntal capacity of a 4 year old. She was diagnosed by the school system with moderate intellectual disability, which is a modern term for mental retardation. This was just last year. Her pediatrician has never been any help. None of them. Which is why the school finally did all the testing. She can physically do anything an 8 year old can do but she cannot read and can barley write. She has trouble making friends mainly because she looks like a typical 8 year old but has trouble communicating her thoughts like others which makes her very frustrated. She has NO social inhibitors and will approach and talk to anyone and to say she is impulsive is an understatement! She is now in special needs classes and her teacher wants her on ADHD meds, the pediatrician complies, but I don't know if this is just part of her disability of if meds will really help. I have tried her on a couple of different ones but she is either super emotional or aggressive and I don't like the idea of pumping her with drugs if its not going to help. I have her on a waiting list for a specialist in my area but its a year long. Any advice on where to go from here??? Has anyone ever experienced this?
by on Aug. 4, 2014 at 9:16 PM
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Replies (1-10):
lcaliff33
by New Member on Aug. 4, 2014 at 9:20 PM
It should say...I have an 8 year old daughter with a mental capacity of a 4 year old
Momof4AEMW
by Gold Member on Aug. 4, 2014 at 9:47 PM
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Hugs Mama!!  I have two kids with ID.  They are 6 next month but developmentally 18-24 months and 2-3 years.  I see you've struggled with the medical world, but am glad you have an eval scheduled.  I put way more weight in to a qualified medical opinion, seems you just haven't gotten to that person yet.  Is it with a developmental pedi, developmental psychologist, or neuro psychologist?  That's who I'd want doing an eval like you are talking about.  They can evaluate the whole child.  I would have a hard time going with the educational eval alone, and would be leery of medicating based on school's opinion.  They are teachers, not prescription writers, and no medical background.  And I have 3 SN kiddos with a variety of issues that can drive the schools nuts.  I still trust the medical opinions more.  I hope your appointment is a good one and you get answers.  I understand why you are questioning.  Best of luck!!  And welcome to the group!!

lcaliff33
by New Member on Aug. 4, 2014 at 10:46 PM
Thanks for your response!..we are seeing a developmental/behavioural pediatrician... the schools physocologist actually diagnosed her and said they did the exact same testing any other physocologist would do. It really disappoints me that her regular peiditrican has no input what so ever on this diagnosis...just says to do what the schools say. And gives her meds for her ADHD symptoms...which make her a totally different child..and not in a good way....but hopefully I will get some answers with this new Dr...
darbyakeep45
by Darby on Aug. 5, 2014 at 5:10 AM
1 mom liked this

If you've tried the meds and you don't like how they affect her, then definitely don't give them to her.  You are your child's best advocate mama...don't ever forget that!  You know her better than anyone...even a doctor.

Hugs and welcome to the group!

darbyakeep45
by Darby on Aug. 5, 2014 at 5:10 AM

Let me add that I have a 6 year old with the mentality of an 18-24 month old, so I get it...I really do.

Cindy18
by Gold Member on Aug. 5, 2014 at 6:44 AM
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My experience is that the school can not properly diagnose anything but I'm not surprised that they tried. 

You need a qualified developmental specialist. Sounds like you are heading in the right direction. IMO, I would not put her on any medication just because the school wants her on it. They are not doctors and not qualified to make those recommendations. 

Good Luck and keep us posted. 

karene999
by Member on Aug. 5, 2014 at 7:16 PM
1 mom liked this

The only people LEGALLY allowed to DX are Developmental Pediatricians, other MD's or Psychiatrists NOT the school and NOT psychologists....

If you are not comfortable with the person ordering drugs, then you are seeing the wrong doctor. Find a doctor you trust, you know best Momma...

Quoting Cindy18:

My experience is that the school can not properly diagnose anything but I'm not surprised that they tried. 

You need a qualified developmental specialist. Sounds like you are heading in the right direction. IMO, I would not put her on any medication just because the school wants her on it. They are not doctors and not qualified to make those recommendations. 

Good Luck and keep us posted. 


Linagma03
by Gold Member on Aug. 6, 2014 at 1:05 AM

I wouldn't put my kids on meds based on the wants of the school. Since your pedi is saying just do what the school wants I would be looking to find another Dr. I am glad the school was able to get the testing started but their testing isn't as involved as the specialist will do. You are heading in the right direction. Good Luck!

My lo is 10 almost 11 and has the mental capacity of 4-6 years old. Cognitive age is 5.5-6 and social/emotional is 4ish maybe even a little less. 

moonspinr
by Member on Aug. 6, 2014 at 8:49 AM
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I don't have anything to add re:behavior, but wanted to reiterate that the school CANNOT tell you that she needs to take meds. In fact, if they do, they could be legally obligated to pay for her treatment! Is she on any kind of behavior management plan at school? That IS something they can and should do for her. ASAP! And without knowing the assessment used to diagnose Intellectual Impairment that they used, I would say if it was done by a psychologist and gave an IQ, it would be the same as a medical professional.
Jaimielorai
by Member on Aug. 6, 2014 at 4:11 PM

I would not take the coding too seriously, the school will set that label because at that age it gives them funding without worrying about an autism diagnoisis, in which they might not be able to handle and outside private could come into play.  They dont have to officaly give a diagnoisis till age 9 in my state but they can collect on the MR, DD.  At so young an age, they really cant make that call offically.  I would have a child psycologist make that ruling, not the school.

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