Scary times with dd ... anybody else have epilepsy or a child with epilepsy?? ****UPDATE IN RED****&&&&&SECOND UPDATE IN GREEN...EKG TODAY&&&&&&
I'm epileptic. Started having seizures when I was about 18 months old, seizures picked up quite a bit druing my puberty years and my junior year of high school, I started having them 5-6x per day and absolutely couldn't function. I wasn't properly diagnosed with Epilepsy until I was 17. (My seizures do not look like what you see on tv at all.) I would try to explain how I felt before they hit, but couldn't come up with a good description because they don't feel like anything else I've ever felt before. (I'm one of the 2% of Epileptics who can feel the seizures coming on.
I kept Tatum (12) home from school on Monday because she wasn't feeling well. What she was describing to me, sounded like a migraine was getting ready to rear it's ugly head (I was her age when I started having migraines. It runs in my family to get migraines with PMS). Today, I had to pick her up from school and symptoms seemed to be nearly identical to Monday's symptoms. But, due to her behavior and her description on how she felt on Monday afternoon, I asked even more questions and her answers really made me think she may have had a seizure. Both on Monday and today. This has just started happening in the last couple months, but never this close together before.
I do have a call in to the doc, but haven't heard back yet. Just really needing support right now. This is killing me. Now I know how my mom felt, and why she broke down crying when we weren't getting answers. It was absolutely tearing her up. :(
Tuesday May, 8 -
Tatum hasn't been to school since Wednesday. "Episodes" just keep coming and she can't seem to get a break. I did take her to school this morning, knowing she didn't feel very well *bad mom*, and within a half hour of dropping her off, I had a phone call and she had another "episode". She's in bed sleeping now. She had an EEG yesterday, but we won't have the results back until later this week. Doc is squeezing her in at 11:30 today and he says that we may be scheduled for an MRI as early as tomorrow morning. I am absolutely terrified right now. Any and all prayers/good thoughts (whichever you believe in) are GREATLY appreciated right now. My little girl is usually so full of energy, life, smiles and giggles. She just brightens up any room. Lately she's just been lathargic, dizzy, sleepy, tearful... she's just not the same.
******Wednesday, May 9*********
Tatum had an EKG this morning as her symptoms are persisting. We found out that she has a heart arrhythmia, and palpatations. This in turn is affecting her breathing, which in turn could be causing seizures. We don't yet have the results of the EEG to know for sure if she's having seizures though. She has been referred to a pediatric cardiologist and I'm waiting for a call with date/time of her appointment. It sounds as though she may be fitted with a heart monitor as a first step.
I'm so ready to pull my hair out! ENOUGH IS ENOUGH!!!!!
I have had it for 33 years. I guess that is the one thing that could make it worse is one of my kids having it too. I know what you mean about not being able to describe the feeling you have before one. My dh alsways asks me to describe it to him. Gets mad sometimes when I tell him it's not that easy. Anyway, I will be praying and thinking about you guys. Keep us updated. I'm here if you need to talk. (hugs)
Do you ever get hit on even looking a mess?
Why inflict this silly cosmetic pain on a baby!?!
- praisinghim2day
on May. 3, 2012 at 11:33 AM