Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

Anyone Been Through This? Low Muscle Tone..

Anonymous
Posted by Anonymous
  • 15 Replies

My 3 year old has low muscle tone in his mouth and legs, requiring him to have physical, speech and occupational therapy.

His old pediatrician knew this but never said anything to me about how it was cause for concern or anything. She never sent us for tests or anything to find out why.

I switched pediatricians because in short, his old one was a bitch so I got rid of her.

His new pedi today seems concerned that my son has the low muscle tone going on. He wants to do a blood test to see if he can figure out why and possibly refer us to a specialist for a muscle biopsy. Depending on what that says we would possibly have to go to the Cleveland Clinic in the worst case scenario.

Anyone been through this? I didn't even know that low muscle tone was cause for concern, but his new pedi says he wants to get to the bottom of it so that in 2 years my kid isn't a cripple.

Like I said though his old pedi just wasn't concerned about it, she never gave it a second thought.

Thoughts?

Posted by Anonymous on Nov. 9, 2012 at 12:58 PM
Add your quick reply below:
You must be a member to reply to this post.
Replies (1-10):
Anonymous
by Anonymous - Original Poster on Nov. 9, 2012 at 1:01 PM

bump.

Anonymous
by Anonymous - Original Poster on Nov. 9, 2012 at 1:03 PM

bump.

km1970
by Gold Member on Nov. 9, 2012 at 1:05 PM

 My infant son had hypotonia, his was caused by an inborn error of metabolism. He passed away at 7 days old.

There are many disorders that can cause low muscle tone. Hopefully, they will find some cause for this in your son so he can get the help he needs.

 

Anonymous
by Anonymous - Original Poster on Nov. 9, 2012 at 1:05 PM

bump.

Anonymous
by Anonymous - Original Poster on Nov. 9, 2012 at 1:07 PM

My son was screened for different disorders, but that was when they were looking for causes for his developmental delays.

He does not have autism & the blood test did not show anything unusual, like fragile X syndomre, but I don't know if that particular test would have showed what causes the low muscle tone or not. I don't know if they have to be looking for it to find it or not?

Quoting km1970:

 My infant son had hypotonia, his was caused by an inborn error of metabolism. He passed away at 7 days old.

There are many disorders that can cause low muscle tone. Hopefully, they will find some cause for this in your son so he can get the help he needs.

 


JessT5280
by MileHigh Mom on Nov. 9, 2012 at 1:10 PM

My son was a preemie, and has low muscle tone. He was in OT/SLP starting at a very young age and they found that he had mild cerebral palsy. You can't really notice it today (he's 7) unless he doesn't have clothes on, then you can see the difference in muscle tone on the right side vs the left side. He also has dysphagia, so any liquid that he drinks has to be thickened (he no longer needs a feeding tube). 

I'm glad that your new doc is being proactive, sorry your old one wasn't. But I wouldn't get too concerned until they give you a reason to be. (hugs) momma .. I know it's stressful, so hang in there! 

Anonymous
by Anonymous on Nov. 9, 2012 at 1:10 PM
Hypotonia. More common than you might think. Therapy helps. Your kid will probably never be an athlete or very coordinated.
spooky415
by Ruby Member on Nov. 9, 2012 at 1:11 PM
My best friend's daughter has low muscle tone. She does physical therapy once or twice a week, I think. She was a preemie, but that's all I really know. I've never really had to help with it, so I'm not too educated on it.
Posted on CafeMom Mobile
km1970
by Gold Member on Nov. 9, 2012 at 1:12 PM

 I am not sure. I know with nonketotic hyperglycinemia there were many tests eeg, spinal tap, urine/fecal tests, blood tests that showed high glycine levels..etc. they had to perform to get to the diagnosis. 

When you visit with the dr. those are questions you can ask and information you can give to him.edit to say...by letting the dr. know what your child has already been tested for is the information you can give. Like may PP have stated, it doesn't have to be debilitating for your child. Nor doesn't it mean it's a symptom of a worst case scenerio:) HUGS. 

Good luck!

Quoting Anonymous:

My son was screened for different disorders, but that was when they were looking for causes for his developmental delays.

He does not have autism & the blood test did not show anything unusual, like fragile X syndomre, but I don't know if that particular test would have showed what causes the low muscle tone or not. I don't know if they have to be looking for it to find it or not?

Quoting km1970:

 My infant son had hypotonia, his was caused by an inborn error of metabolism. He passed away at 7 days old.

There are many disorders that can cause low muscle tone. Hopefully, they will find some cause for this in your son so he can get the help he needs.

 


 

Babujai
by Gold Member on Nov. 9, 2012 at 1:13 PM

 My play sister has this.  Her speech can sometimes be a little unclear and she's legally blind, but otherwise she's fine.  She's 28 years old, just got married and is expecting her first baby.  This doesn't have to be a debilitating disorder.

Add your quick reply below:
You must be a member to reply to this post.
Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)



Featured