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Mom Confessions Mom Confessions

I feel like I'm gonna be sick. (sad update on DD)

Posted by on Dec. 12, 2012 at 5:03 PM
  • 177 Replies

DD has been completely unable to tolerate her feedings. She already has a fundoplication and a GJ tube, but she can't even handle 15ml per our of just Pedialyte. She can't handle full strength, or even half strength formula at all. 

They've tried several different meds to get her bowels moving again, but none have worked. She's on TPN (IV nutrition), but they are VERY reluctant to send her home on that due to her high risk of infection or damage to her PICC line.

I have to choose between taking her home on TPN and running a very high risk of her getting an infection in her PICC line and getting sepsis. Or We can give her dilluted formula continuously at 10ml per hour, just enough to keep her from feeling hungry, and just let nature take it's course. 

I feel like I've been punched in the gut...

by on Dec. 12, 2012 at 5:03 PM
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Replies (1-10):
GhettoKoolAide
by Lighthouse Blues on Dec. 12, 2012 at 5:04 PM
Holy moly mama I'm so sorry.
Posted on the NEW CafeMom Mobile
Ashley_Carlson
by on Dec. 12, 2012 at 5:06 PM

Bump

bluesky51201
by Platinum Member on Dec. 12, 2012 at 5:07 PM
Oh Ashley I am so sorry. I hate hate hate hate that you and your sweet girl are going through this.
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Amy_M
by Gold Member on Dec. 12, 2012 at 5:07 PM

Hugs!

Denecia
by Silver Member on Dec. 12, 2012 at 5:07 PM
I am sorry. Just do what feels right to you.
Posted on CafeMom Mobile
km1970
by Platinum Member on Dec. 12, 2012 at 5:07 PM

 I am so sorry..those are choices no parent should ever have to make.

reava
by on Dec. 12, 2012 at 5:08 PM
Hugs momma. Sorry you got more bad news.
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I_Love_Pooh1999
by Member on Dec. 12, 2012 at 5:08 PM
Oh no. I am so sorry to hear this. Your family will be in my prayers.
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Louisianamom88
by on Dec. 12, 2012 at 5:08 PM
I'm so sorry
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ColieO
by Ruby Member on Dec. 12, 2012 at 5:09 PM
:(

That's so rough.
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