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Mom Confessions Mom Confessions

I feel like I'm gonna be sick. (sad update on DD)

DD has been completely unable to tolerate her feedings. She already has a fundoplication and a GJ tube, but she can't even handle 15ml per our of just Pedialyte. She can't handle full strength, or even half strength formula at all. 

They've tried several different meds to get her bowels moving again, but none have worked. She's on TPN (IV nutrition), but they are VERY reluctant to send her home on that due to her high risk of infection or damage to her PICC line.

I have to choose between taking her home on TPN and running a very high risk of her getting an infection in her PICC line and getting sepsis. Or We can give her dilluted formula continuously at 10ml per hour, just enough to keep her from feeling hungry, and just let nature take it's course. 

I feel like I've been punched in the gut...

by on Dec. 12, 2012 at 5:03 PM
Replies (11-20):
CanInTex
by on Dec. 12, 2012 at 5:09 PM
I'm so sorry, no one should have to go through what you and your dd are going through.
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EmilyL7
by on Dec. 12, 2012 at 5:09 PM
:-( I am so sorry! That is hard mama!
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CrimsonRadiance
by Platinum Member on Dec. 12, 2012 at 5:10 PM

:-( I'm so sorry.. Both of those choices are really hard to make.. I can't honestly answer it. 

coleysmama
by Gold Member on Dec. 12, 2012 at 5:10 PM

My heart is breaking for your family.

lovelife350
by Platinum Member on Dec. 12, 2012 at 5:10 PM

i am so sorry.

Anonymous
by Anonymous 1 on Dec. 12, 2012 at 5:10 PM


Quoting GhettoKoolAide:

Holy moly mama I'm so sorry.


NowImAMom...
by Silver Member on Dec. 12, 2012 at 5:11 PM
I'm so sorry, that's a horrible decision to have to make. I hope she gets better soon
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tezell78
by Silver Member on Dec. 12, 2012 at 5:11 PM
Oh my god mama, I am in tears here reading this. I'm so very sorry that you are having to go through this. Hugs..
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Robbins3188
by Bronze Member on Dec. 12, 2012 at 5:11 PM

I am so sorry, im praying for you and your family.im sorry

Charliesmommy11
by on Dec. 12, 2012 at 5:11 PM
I'm so sorry !!! Hugs mama feeding troubles are seriously the most frustrating ever. Have you met with a home health nurse yet who could possibly help you make a choice ?
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