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Mom Confessions Mom Confessions

I feel like I'm gonna be sick. (sad update on DD)

DD has been completely unable to tolerate her feedings. She already has a fundoplication and a GJ tube, but she can't even handle 15ml per our of just Pedialyte. She can't handle full strength, or even half strength formula at all. 

They've tried several different meds to get her bowels moving again, but none have worked. She's on TPN (IV nutrition), but they are VERY reluctant to send her home on that due to her high risk of infection or damage to her PICC line.

I have to choose between taking her home on TPN and running a very high risk of her getting an infection in her PICC line and getting sepsis. Or We can give her dilluted formula continuously at 10ml per hour, just enough to keep her from feeling hungry, and just let nature take it's course. 

I feel like I've been punched in the gut...

by on Dec. 12, 2012 at 5:03 PM
Replies (21-30):
proudmommy690
by Ruby Member on Dec. 12, 2012 at 5:11 PM
:( oh no..this breaks my heart. Hugs to you and her.
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brettsmomma
by ~Tammie~ on Dec. 12, 2012 at 5:11 PM

:'(


krayzbabylove
by on Dec. 12, 2012 at 5:12 PM
*hugs*
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VintageWife
by Gold Member on Dec. 12, 2012 at 5:12 PM

 

Quoting I_Love_Pooh1999:

Oh no. I am so sorry to hear this. Your family will be in my prayers.

 

stickyfingers
by Platinum Member on Dec. 12, 2012 at 5:12 PM
poor mama, poor baby. so heartbreaking...im praying for your baby and for you to make wise decisions.
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sexychica25
by Silver Member on Dec. 12, 2012 at 5:12 PM


Quoting km1970:

 I am so sorry..those are choices no parent should ever have to make.

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BeAmour
by Tonya on Dec. 12, 2012 at 5:12 PM
Omg. :(( I am sooo sorry!
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HaloWithHorns78
by on Dec. 12, 2012 at 5:12 PM
Oh mama I'm so sorry. My prayers are with you and your baby girl.
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Momof5kids84
by on Dec. 12, 2012 at 5:14 PM

 So sorry.  I really hope that you can find some relief soon, Momma.

Kennadismom
by on Dec. 12, 2012 at 5:14 PM
Oh gosh mama I'm so sorry you have to make this decision. Now I'm not sure about in infants but I've seen adults who have utilized TPN and it can do wonderous things for their recovery, if your dd should stay on the TPN does she stand a chance at recovery?
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