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Mom Confessions Mom Confessions

Extremely sick with no diagnosis yet, scared.

Posted by on Dec. 13, 2012 at 12:18 AM
  • 6 Replies
For the past couple years I have been battling something. I have extreme joint pain, headaches which are caused by light a lot of the time, naseua, itchy skin on my shins and back of head, weight loss, some hair loss, back pain, extreme fatigue, and have become more and more forgetful. I am only 21 years old. I have had it chalked up to my depression, being pregnant, pain from the epidural, etc. But now the symptoms are severe and I know something is seriously wrong. Ive had 11 blood tests done that did not reveal anything but an ultrasound of my throat revealed a very enlarged thyroid and swollen glands. Ive noticed a lot of my symptoms match with lupus. Im scared because its taken a month and my doctor still has not been able to get me into a specialist yet for my joints and thyroid. Ive called both but they said they have all my test results and are reviewing them and will call me with an appointment but they still havent. My doctor said shes trying to push to get me in sooner but i still dont have an appointment date. I am scared because some days I literally feel like I am dying. I am so sick and in pain 90 percent of the time and am just waiting. Im thinking of telling my doctor i want an mri to check my joints and all organs including my brain. I can feel there is something seriously wrong but no matter how much I call its taking forever. Ive been very depressed because i had to go from full time to per diem at my job because working full time is just impossible. Without a confirmed diagnosis i cannot get any help financially so its putting a big strain on us. I am afraid something is terribly wrong and I have a one year old son who means the world to me and I dont want to miss a thing in his life. I dont know what else to do to speed the process. Ive thought about going to the er but dont want to spend my babys christmas in the hospital. I feel so scared not knowing why my body is doing this. Over the past two years its been on and off but kept becoming more consistent. I feel really alone and like I am a burden. My doctor just keeps saying shes trying to get me into the specialists and giving me pain pills but in the mean time im terrified and feel so alone. I dont know what to do or where to turn to.
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by on Dec. 13, 2012 at 12:18 AM
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Replies (1-6):
babie113
by Ruby Member on Dec. 13, 2012 at 12:20 AM
Hugs it does sound like lupus :-( but I'm no Dr.my dad is but I'm not.
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feelingalone315
by on Dec. 13, 2012 at 12:26 AM
My ana test came back negative in my blood could it still be lupus? I dont think its my thyroid even though my thyroid is enlarged because my thyroid levels in my blood werent off.
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Anonymous
by Anonymous on Dec. 13, 2012 at 12:46 AM

Fibromyalgia, chronic fatigue syndrome 

emiller3321
by on Dec. 13, 2012 at 12:50 AM
I have the same problem, there are days i can not walk bc it hurts so bad. I has a headache 6 months straight. They still have no answers besides enlarged thyroid swollen glands. I also break out on my feet knees hands and face to the point i cant do anything i have had blood work done and it shows up fine, and they wont do anything else. I have been to so many doctors and no answers. Hang in there hopefully you get some answers
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feelingalone315
by on Dec. 13, 2012 at 2:12 PM
Well good luck to you too! I just found out im seeing a thyroid specialist at a good hospital tomorrow so maybe well know more then


Quoting emiller3321:

I have the same problem, there are days i can not walk bc it hurts so bad. I has a headache 6 months straight. They still have no answers besides enlarged thyroid swollen glands. I also break out on my feet knees hands and face to the point i cant do anything i have had blood work done and it shows up fine, and they wont do anything else. I have been to so many doctors and no answers. Hang in there hopefully you get some answers

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lmscm
by Bronze Member on Dec. 13, 2012 at 2:46 PM
1 mom liked this
I'm praying that the doctors can find out what is wrong and can help you.
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