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http://rohhad.blogspot.com/2009/11/5-year-old-loses-battle-with-rare.html?m=1

Can someone make this clicky please!

LETS PLEASE MAKE AWARENESS FOR ROHHADS!!!
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by on Jan. 8, 2013 at 12:02 PM
Replies (11-20):
piratehooker
by on Jan. 8, 2013 at 12:11 PM
I am so sorry
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nf1
by Member on Jan. 8, 2013 at 12:12 PM
I'm so sorry...
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Anonymous
by Anonymous 1 on Jan. 8, 2013 at 12:15 PM
Is this another no vaccination post?
AdoptingMommy
by on Jan. 8, 2013 at 12:17 PM
Right now she cant get treatment for her DI (diabetes insipidus ) bc the ddap replacement drug rapidly dropped her sodium, so she drinks all day 100+ ounces to regulate it. Also no treatment for the Autonomic Dysregulation. It would harm her furthur.
Her breathing has gotten to the point she hasnt went a day without a treatment in 4 mths


Quoting fallenstars:

So what is the course of action for her health condition? I'm sorry Yall are going threw this

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AdoptingMommy
by on Jan. 8, 2013 at 12:17 PM
no!


Quoting Anonymous:

Is this another no vaccination post?

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AdoptingMommy
by on Jan. 8, 2013 at 12:19 PM
by far worst thing in our lives! but she is a incredibly strong little girl!


Quoting ambermarie2006:

Scary

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AdoptingMommy
by on Jan. 8, 2013 at 12:22 PM
thank you!


Quoting nf1:

I'm so sorry...

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wrensong
by Pagan Mother on Jan. 8, 2013 at 12:25 PM

I am so sorry. Stay strong. Sendling lots of positive energy your way

fallenstars
by on Jan. 8, 2013 at 1:42 PM
Oh I'm so sorry! I have a rare condition myself but nothing like that. I'm at a loss for words other than I'm so sorry


Quoting AdoptingMommy:

Right now she cant get treatment for her DI (diabetes insipidus ) bc the ddap replacement drug rapidly dropped her sodium, so she drinks all day 100+ ounces to regulate it. Also no treatment for the Autonomic Dysregulation. It would harm her furthur.

Her breathing has gotten to the point she hasnt went a day without a treatment in 4 mths




Quoting fallenstars:

So what is the course of action for her health condition? I'm sorry Yall are going threw this


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Chaoswithin
by on Jan. 8, 2013 at 6:55 PM
Bump I'm sorry for your little girl!
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