http://rohhad.blogspot.com/2009/11/5-year-old-loses-battle-with-rare.html?m=1
Can someone make this clicky please!
LETS PLEASE MAKE AWARENESS FOR ROHHADS!!!
Can someone make this clicky please!
LETS PLEASE MAKE AWARENESS FOR ROHHADS!!!
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Posted by
on Jan. 8, 2013 at 12:02 PM
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by
Silver Member
on Jan. 8, 2013 at 12:17 PM
Right now she cant get treatment for her DI (diabetes insipidus ) bc the ddap replacement drug rapidly dropped her sodium, so she drinks all day 100+ ounces to regulate it. Also no treatment for the Autonomic Dysregulation. It would harm her furthur.
Her breathing has gotten to the point she hasnt went a day without a treatment in 4 mths
Her breathing has gotten to the point she hasnt went a day without a treatment in 4 mths
Quoting fallenstars:
So what is the course of action for her health condition? I'm sorry Yall are going threw this
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by
Silver Member
on Jan. 8, 2013 at 12:19 PM
by far worst thing in our lives! but she is a incredibly strong little girl!
Quoting ambermarie2006:
Scary
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by
Pagan Mother
on Jan. 8, 2013 at 12:25 PM
I am so sorry. Stay strong. Sendling lots of positive energy your way
by
Gold Member
on Jan. 8, 2013 at 1:42 PM
Oh I'm so sorry! I have a rare condition myself but nothing like that. I'm at a loss for words other than I'm so sorry
Quoting AdoptingMommy:
Right now she cant get treatment for her DI (diabetes insipidus ) bc the ddap replacement drug rapidly dropped her sodium, so she drinks all day 100+ ounces to regulate it. Also no treatment for the Autonomic Dysregulation. It would harm her furthur.
Her breathing has gotten to the point she hasnt went a day without a treatment in 4 mths
Quoting fallenstars:
So what is the course of action for her health condition? I'm sorry Yall are going threw this
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by
Silver Member
on Jan. 8, 2013 at 6:55 PM
Bump I'm sorry for your little girl!
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what to do when the special needs kid is the bully?
Have you ever kept a secret from your spouse?
- AdoptingMommy
on Jan. 8, 2013 at 12:02 PM