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That was a surprise! My childrens SSI...UPDATE...recent update, feb 26...March 20th

Posted by Anonymous   + Show Post

 Update March 20th- Im going to edit my post to change the negative focus. Instead, im going to update now and then on specific things disability has helped greatly with my children. Many people like to be negative about children with social security disability. I believe it is because they dont understand the things it is used for. So, im going to share examples and erase all the negative updates about the name calling. 

My son, the one in the picture, is now showing significant changes in his eyes. When he was less than a year old his right eye started to turn in. It got better in the years and seemed to stop turning in. About a year ago I noticed his left eye was ever so slightly off. Other people didnt notice but im mom, I notice these things.

This past month or so it has become a problem. It is no longer slightly off. His eye turns all the way in. Some days its so bad that you can mostly only see the white of his eye. He got new glasses 6 to 8 months ago. I had to take him back to the eye doc before his one year check up. He is fitting him with new glasses. He is to wear them for 3 months to see if it correct it. If it isnt corrected he wants him to go back to his specialist, another 5 hour trip and expenses. This is when surgery will be talked about. More expenses.

Now, going back to the glasses. This is the second pair in a years time. Glasses for him isnt simple. His lenses have a permanent tint and a transitional tint, to darken more when he is outside to protect his eyes from the sunlight. He also has bifocals.

Without insurance to cover the expenses of these glasses , dr visits and possible surgery we wouldnt be able to afford it. There are other expenses the insurance doesnt cover. The tinted lenses ,for an example, is out of pocket. Trip expenses for another example.

I hope this sheds a little light on where the expenses go, at least for one family. Every family with special needs children have their own reasons and expenses.

I would have deleted this post long age, because of the name calling, if i hadnt thought the information would benefit some of you.

His right eye...

 

his lleft eye now....

 

Update Feb 26-  Since my post was bumped I figured I would do a quick recent update since this post is over a month old.

When I made this post, I was getting ready to go on a medical trip 5 hours away for my daughters seizures. That visit led to another visit. So, 2 out of town, 5 hour trips, for medical reasons. That is about $200 in gas each trip, to give an idea on expenses.

Well, we just had another trip last week. We were gone for 3 days. My daughter had an EEG on her head the whole time. It was an exhausing and stressful trip. We hope to get more answers to help her more with her problems. The results should be in this week or next week.

------------------------------------------------------------------------------------------------------------------------------------------------

 

original post...

I have 3 children on SSI. Today I went to withdraw money from my sons account. After withdrawing I always get a balance. I noticed it was off. Too much was in there. So when I got home I looked it up online and SSI added another $23.97 to all three accounts. I was surprised. I heard social security was getting a raise but I never saw the extra added seperatly like that.
It will come in handy since my daughter has a dr appointment this month thats 5 hours away.

 

UPDATE: I just got the letter telling me about the $23. lol

Edit: Wow! I wasn't expecting so many replies. Some of them are sad to read but it is expected to be judged in this group so it comes with the territory.

Ill answer some questions here so I dont have to repeat myself.

1.

2.

3.

4. ............

5. Sorry If anyone mistaken this as a brag post, but seriously who would brag about $23.97?  It wasnt my intentions to make anyone think i was bragging ,or to offend anyone

6. Im sure everyone knows by now that im Achormia. It wasnt my intentions to "come out" but when I started getting questions about my childrens disabilities I knew it would since people know me as the mom with children who have albinism.

7. ..........

8. ..........

9. Im getting a lot of questions of why a child with Albinism would need or qualify for SSI: Albinism is more than just lacking pigment. There are vision problems that range from low vision to blindness. Sensitivity to the sun limits many things from vision outside to easliy burning. also, there is a higer risk of getting skin cancer. .

10. About the albinism, look past the pigment part of it and just think of the vision. You will understand better. If you cant understand why a child who has low vision, is legally blind or completely blind would get ssi services then there is no way I can explain it to you. you already have a set opinion about it.

 

* Both boys were diagnosed with Ocularcutanious Albinism. This means lack of pigment in hair, skin and eyes. It causes visual problems as well as other challenges.

A pic of my youngest son....

Posted by Anonymous on Jan. 12, 2013 at 6:26 PM
Replies (31-40):
fairyjester
by Ruby Member on Jan. 12, 2013 at 6:39 PM

without knowing the disability , you can't really say that.

Quoting Anonymous:

If there are three kids with disabilities so severe they need government money, then she needs not to have anymore.   There is just a genetic factor it

Quoting fairyjester:

wow,  a child with a disability makes a rude comment and the mom gets torn apart but  its okay for adults to make rude comments?

Quoting Anonymous:

I hope your tubes are tied.





"oh look they ate a baby,  how rude"---  Monroe

Anonymous
by Anonymous on Jan. 12, 2013 at 6:39 PM

It was just added to the amt that's usually deposited every month.  I get separate statements for him and I.  I don't get monthly statements.  Maybe different because I'm the disabled one and my kid gets aux benefits.

Quoting Anonymous:

Did you get the raise seperate?
I dont think I got that form. All I got this month was their usual statement that tells me what they will get the following month after turning in my husbands pay stubs.


Quoting Anonymous:

My child isn't on ssi for himself, but gets benefits because I'm disabled.  His went up about $25 also and mine was increased also.  A few weeks ago I got statements from ssa but didn't bother opening because I thought it was tax info.  Turns out they were our new monthly amounts.  You should've gotten those too.  The kind that you rip apart at the ends, not in an envelope.



mama_carmel
by Silver Member on Jan. 12, 2013 at 6:39 PM

I had the same thing when I was younger till I was 19yrs. 

My father has MS.

Quoting Anonymous:

2 of Mine are on SSI dependant care because their father is completely disabled and we also got a raise.


Anonymous
by Anonymous on Jan. 12, 2013 at 6:39 PM
Except, disabilities are NOT always genetic. Car accidents, falling down stairs, any kind of injury can cause a disabilty. The children previously being in an extremely abusive situation can have ptsd- 2 of my daughter's brothers get ssi for that exact reason.


Quoting Anonymous:

If there are three kids with disabilities so severe they need government money, then she needs not to have anymore.   There is just a genetic factor it


Quoting fairyjester:

wow,  a child with a disability makes a rude comment and the mom gets torn apart but  its okay for adults to make rude comments?

Quoting Anonymous:

I hope your tubes are tied.




Tigress22304
by Gold Member on Jan. 12, 2013 at 6:40 PM


Quoting Anonymous:

If there are three kids with disabilities so severe they need government money, then she needs not to have anymore.   There is just a genetic factor it

Quoting fairyjester:

wow,  a child with a disability makes a rude comment and the mom gets torn apart but  its okay for adults to make rude comments?

Quoting Anonymous:

I hope your tubes are tied.



uhm not all kids were born with disabilities....my daughter has a bone disease that came up before her 2nd birthday-because of the severity-i had to apply for ssi benefits for her-she's severely autistic. Is she a drain on society?! no-because she'll be taught how to be a productive member of society which is more then I can say about you!


MaileysMommy
by on Jan. 12, 2013 at 6:40 PM

Yep, there is always AT LEAST one. I just think that comment was so rude, if OP has 3 disabled children THAT is why all 3 of them would be on SSI, DUH. 



(Didn't mean to go anon)

Quoting Anonymous:

Because there's always one person calling troll or saying the poster is a liar.
Or generally being a douche.


Quoting Anonymous:



Quoting Anonymous:

 Why are 3 of your kids on SSI? Ridiculous.

If 3 kids NEED it for whatever reason, wtf is the problem?



Anonymous
by Anonymous on Jan. 12, 2013 at 6:40 PM

I'm good with it.   I will say she shouldn't have anymore.

Quoting fairyjester:

without knowing the disability , you can't really say that.

Quoting Anonymous:

If there are three kids with disabilities so severe they need government money, then she needs not to have anymore.   There is just a genetic factor it

Quoting fairyjester:

wow,  a child with a disability makes a rude comment and the mom gets torn apart but  its okay for adults to make rude comments?

Quoting Anonymous:

I hope your tubes are tied.





Anonymous
by Anonymous on Jan. 12, 2013 at 6:40 PM
What makes me mad is they are taking money from me that feeds my son. I don't care about other people kids but my own.

Anonymous
by Anonymous on Jan. 12, 2013 at 6:40 PM
My sister's husband died and she has 3 small kids each child gets s SS check every month, each child gets 1,355 plus a benefits from 2 life insurance policies and a huge one from the company he worked for because he was killed on the job. This is not PA or Welfare her husband paid into ss while he worked, he had a awesome job and worked his entire life.
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Tigress22304
by Gold Member on Jan. 12, 2013 at 6:40 PM


Quoting mommysangelface:

my dh did.  his went up i think $22

Quoting Tigress22304:

okay-I guess nobody else got the letter in the mail back in December explaining WHY SSI went up?!


COLA (cost of living cant remember the 4th word) went up-because COLA went up=ssi increased across the board-it happens every 2-3yrs roughly

and yes my DD is on SSI and her's increased as well


DD's went up $10-not much but every bit helps

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