That was a surprise! My childrens SSI...UPDATE...recent update, feb 26...March 20th
- 597 Replies
Update March 20th- Im going to edit my post to change the negative focus. Instead, im going to update now and then on specific things disability has helped greatly with my children. Many people like to be negative about children with social security disability. I believe it is because they dont understand the things it is used for. So, im going to share examples and erase all the negative updates about the name calling.
My son, the one in the picture, is now showing significant changes in his eyes. When he was less than a year old his right eye started to turn in. It got better in the years and seemed to stop turning in. About a year ago I noticed his left eye was ever so slightly off. Other people didnt notice but im mom, I notice these things.
This past month or so it has become a problem. It is no longer slightly off. His eye turns all the way in. Some days its so bad that you can mostly only see the white of his eye. He got new glasses 6 to 8 months ago. I had to take him back to the eye doc before his one year check up. He is fitting him with new glasses. He is to wear them for 3 months to see if it correct it. If it isnt corrected he wants him to go back to his specialist, another 5 hour trip and expenses. This is when surgery will be talked about. More expenses.
Now, going back to the glasses. This is the second pair in a years time. Glasses for him isnt simple. His lenses have a permanent tint and a transitional tint, to darken more when he is outside to protect his eyes from the sunlight. He also has bifocals.
Without insurance to cover the expenses of these glasses , dr visits and possible surgery we wouldnt be able to afford it. There are other expenses the insurance doesnt cover. The tinted lenses ,for an example, is out of pocket. Trip expenses for another example.
I hope this sheds a little light on where the expenses go, at least for one family. Every family with special needs children have their own reasons and expenses.
I would have deleted this post long age, because of the name calling, if i hadnt thought the information would benefit some of you.
His right eye...
his lleft eye now....
Update Feb 26- Since my post was bumped I figured I would do a quick recent update since this post is over a month old.
When I made this post, I was getting ready to go on a medical trip 5 hours away for my daughters seizures. That visit led to another visit. So, 2 out of town, 5 hour trips, for medical reasons. That is about $200 in gas each trip, to give an idea on expenses.
Well, we just had another trip last week. We were gone for 3 days. My daughter had an EEG on her head the whole time. It was an exhausing and stressful trip. We hope to get more answers to help her more with her problems. The results should be in this week or next week.
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original post...
I have 3 children on SSI. Today I went to withdraw money from my sons account. After withdrawing I always get a balance. I noticed it was off. Too much was in there. So when I got home I looked it up online and SSI added another $23.97 to all three accounts. I was surprised. I heard social security was getting a raise but I never saw the extra added seperatly like that.
It will come in handy since my daughter has a dr appointment this month thats 5 hours away.
UPDATE: I just got the letter telling me about the $23. lol
Edit: Wow! I wasn't expecting so many replies. Some of them are sad to read but it is expected to be judged in this group so it comes with the territory.
Ill answer some questions here so I dont have to repeat myself.
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4. ............
5. Sorry If anyone mistaken this as a brag post, but seriously who would brag about $23.97? It wasnt my intentions to make anyone think i was bragging ,or to offend anyone
6. Im sure everyone knows by now that im Achormia. It wasnt my intentions to "come out" but when I started getting questions about my childrens disabilities I knew it would since people know me as the mom with children who have albinism.
7. ..........
8. ..........
9. Im getting a lot of questions of why a child with Albinism would need or qualify for SSI: Albinism is more than just lacking pigment. There are vision problems that range from low vision to blindness. Sensitivity to the sun limits many things from vision outside to easliy burning. also, there is a higer risk of getting skin cancer. .
10. About the albinism, look past the pigment part of it and just think of the vision. You will understand better. If you cant understand why a child who has low vision, is legally blind or completely blind would get ssi services then there is no way I can explain it to you. you already have a set opinion about it.
* Both boys were diagnosed with Ocularcutanious Albinism. This means lack of pigment in hair, skin and eyes. It causes visual problems as well as other challenges.
A pic of my youngest son....
Quoting armywife0424:
If she was financially stable she wouldn't need ssi. She would make enough to cover his extras and her good stable job would provide insurance and afford to pay co pays. This isn't about your mother in law. This is about a woman with 3 disabled children all receiving ssi. A mature responsible woman would of stopped after one knowing that she couldn't afford the first child she had, disabled or not. The lack of tact in your responses shows just how uneducated you are my dear.
Quoting mommysangelface:yes you OBVIOUSLY do need to educate yourself.
How do you know before she had kids she wasnt financially stable and then her child was born with a disability that need certain medications and constant hospitalization and even though being financial stable, needs help cuz no one can predict what is going to happen. So before you open your mouth EDUCATE yourself. A child can be born without a disability and then develop it tears down the road.
so again YES you need to educate yourself
Your ignorance is dumbfounding to be honest
Quoting armywife0424:
I need to educate myself? You're the one throwing a tantrum and name calling like a child because someone is calling you out on your crap. Of course people can't predict that their children will be sick, but they should be financially stable enough to afford medications, daycare and insurance. Also why would you complain about taxes being taken from your check you're getting it all back and then some. You are in fact running this country into the ground along with congress approving handouts for people like you.
Quoting mommysangelface:so she should have known her dd would end up have seizures?
bitch please. money is taking out of my fucking pay for ssi and i dont bitch about it. if the child needs it the child needs to. big fucking deal.
im not the reason this country is failing you idiot
its the people running it not running it right
so my MIL should have known before she got pregnant that her son, my dh was going to have a seizure as soon as he was born? she should have known he is bipolar as soon as he was born? should have known he was add before he was born? should have known he would be on meds that would fuck with his liver and cause him to black out and have dizzy spells and temporary memory loss?
educate yourself please. cuz you keep sounding more and more fucking ignorant
Quoting armywife0424:
It isnt the strangers nor the childs fault. Personal accountability, the man or woman decided to hasn't a baby knowing he or shr couldn't afford it or that they had poor insurance. It of the parents fault that they can't afford daycare or didn't get a better job before having children. Its not a free for all just because YOU decided that you wanted kids. I didn't decide that nor did the thousands of other americans yet we're footing the bill for your bad decisions. How would you feel if because I decided to have a special needs child that it took 10% from yours? You are the reason this country is failing.
Quoting mommysangelface:lets say the op is a single mom
cannot find daycare that accomadates her children. is that her fault? no its not
so how is she supposed to get a job? oh wait she cannot until the children are older and either she marries and her and her dh or the children father work it out so they work different shifts.
but then as i also said, which funny you didnt address, medication. new meds come out that work better and help the child(ren) but is not totally covered by ins. is that the moms fault? again no
ssi HELPS to pay for the stuff. who said she is not adjusting. She very well maybe adjusting and needs the help.
It is not as black and white as people think
and i know this from experience
Quoting armywife0424:
Why should her and her dh adjust their living expenses for someone elses child? Shouldn't that be the parents responsiblity, how is that fair?
Quoting mommysangelface:and a child with disabilites who cannot contribute anything and meds go up and they need special shit not covered by insurance i guess they should go without right?
i mean you and your dh can adjust your living expenses but a disabled child cant. thats fair right
w.e
Quoting Anonymous:Nice that SSI goes up because the cost of living goes up but actual paychecks don't. Oh wait, my DH did get a raise but it was eaten by the tax increase.
Quoting Anonymous:
Quoting Tigress22304:okay-I guess nobody else got the letter in the mail back in December explaining WHY SSI went up?!
COLA (cost of living cant remember the 4th word) went up-because COLA went up=ssi increased across the board-it happens every 2-3yrs roughly
and yes my DD is on SSI and her's increased as well
COLA - Cost Of Living Adjustment
Quoting Anonymous:
As long as a child gets insurance which in cases like this is more often then not state funded insurance like Medicaid, I don't see why they qualify for SSI ...it's not like that child would be bringing in an income if it were perfectly healthy. I understand some need care in more extreme cases but it seems people jump at the chance of free money..sad. I just don't feel like my child should be bringing in an income in any case. That's a chance I took when I got pregnant. If I had to stay home to care for him or her , so be it. Especially if insurance covered medical expenses.
Quoting Anonymous:I see no apology.
Quoting Anonymous:So I apologized but I'm still wrong in what I say? Hopefully the OP can accept my apology, but I see ther is just no pleasing you.
Quoting emeraldangel2.0:
OP, it could also be reading bitchy comments like these
seriously, ignore these little girls
Quoting Anonymous:
If the shoe fits. I've seen kids with diabilities. There is a cause. It could have been that one glass of wine your ob said was okay to drink once a week. It could have been hanging with that friend that still has that smoking habit. You could have overworked yourself during the pregnancy or childbirth like pushing at the wrong time. You could have put your child infront of a television while cleaning the house. It could have been the formula you feed the child. It could have been the vaccines given and not monitoring a closely as possible afterwards (saying the fever was normal and would go away soon). You could have let them out of your sight for one second and they could have got hit by a car, molested by a stranger in the park, or any other tragedy. You could have been driving and not noticed the drunk driver, idiot texting behind the wheel, or anyone eles distracted when they crashed into you and chaning you and your children's lives forever.I'm sorry. Your right, I was wrong to insinuate you purposely did something wrong to your kids. Let's just agree with this: Parenting is a hard job with a child with disabilities or a child without disabilities for prevention's sake.
Quoting Anonymous:
Are you insinuating that I caused my childrens disabilitues by not taking care of myself while pregnant with them.
Lol that is such an ignorant thing to say.
Quoting Anonymous:
Great. Congratulations on getting the increase. Also, you're welcome. I found out through my job that this year, we don't get a raise and our taxes are raised to cover the increase to SSI. So I did the right thing in life: get a job to support my family, not have disable kids because I know how to take care of myself through all 3 pregnancies and when they are infants, and I get screwed over to giving you: unemployed defect of a person that for some reason is still multiplying her corrupt seed.
The system is so wrong.
You are a bunch of mean spirited assholes and guaranfreakingtee you would NEVER EVER say these things to.hee face if you were her friends if she came to you about the raise
Also why is NOONE up in arms over the tax money taken out for stupid big business bailouts which in all reality is where your precious tax money...you don't work for people on welfare or SSI
You work for the fat cats on wall street who make BILLIONS from your tax dollars asshats
Nope I'm.not on any public assistance at all but wanted to point out how absolutely horrid you ladies are...what shining examples of human beings/sarcasam/
Alittle late to the convo.. This was so two days ago.. GO AWAY!
Quoting Kitsun:
This response to op was on pg 15. Reading through all the comments, she had already stated this multiple times. Had you not been in a "who's dick is bigger" contest with someone else about whether or not op's kids deserve the ssi, you might have noticed sooner and not shown the mega bitch you are
Quoting ajrjj05:About time a answer!! Glad to see your not abusing the system. And Sorry if I offened you but I see so many that get it that don't need it.
Quoting Anonymous:
Quoting elzingah36:
If you don't mind me asking hon,what are their disabilities?
My boys are on the spectrum and have Albinism. My daughter has absence seizures, OCD, Aspergers and a damaged kidney
11. About the albinism, look past the pigment part of it and just think of the vision. You will understand better. If you cant understand why a child who has low vision, is legally blind or completely blind would get ssi services then there is no way I can explain it to you. you already have a set opinion about it.
- Guarantee they didn't get it because of the albinism but due to the vision. Might want to stop telling people that its because of alibinism and say its because they are blind. Just a heads up.
They are trying to ban buying soda from FS
Do you REGRET having kids