Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

Mom Confessions Mom Confessions

Update on Amber (12 year old with brain cancer) in orange at the bottom.

Posted by   + Show Post

Monday she will be 11, I do not know how to deal with this.  I feel like my world is crashing down around me today.  I sit here and look at pictures from when she was a baby and wonder "why", she is such a sweet, caring and smart kid who is so loved, why her?  I think about what I was doing 11 years ago at this time, I was getting ready to welcome her into the world and I swore I would do anything I had to to protect her and I have truly failed.  The cancer she has will most likely get the best of her within the next year.  I am not saying we are not going to do everything we can, but the Dr.'s do not have much hope for her.  I have no idea how to deal with this.  Right now if you saw her you would not know there was anything wrong with her, she even made the honor roll both marking periods this year, she is having a huge swimming party and is living everyday just like you or I would.  I just fear the future.  I just needed to vent for a minute.


I just wanted to thank everyone for all the prayers and kind words.  I will update as soon as I get the results which will hopefully be on the 31st.  Anyone who would like to add the facebook page I made for her is welcome to.  I update on there frequently and post pictures. https://www.facebook.com/Prayforamber


EDIT:  There are a lot of people wondering what kind of cancer it is, I probably should have put that in the post.  She has brain cancer (grade 4 glioblastoma).  To clear up any confusion, she had the tumor removed on July 2nd, she went through 33 radiation treatments and will be on oral chemotherapy for 1 year providing that she tolerates it (so far she has tolerated it well).  There is only a 3% chance that it will NOT grow back the first year.  We are 6 months into this, I think that is why I am so scared.  Even if it does not grow back the first year we will have this worry for the rest of her life.  Again thank you for all the prayers and kind words.  I wanted to add that she had her birthday party yesterday and she had a blast!  She got a bunch of gift cards so we are going on a shopping spree one day this week, she is so excited! 

Got some great news today!  Her MRI came back excellent!  We need a few more like this and then we can relax a little bit.  This is something that we will always have to be concerned with but I will take any victory we get right now.  I think she is going to be in the very small percentage of people who survive this long term.  I am feeling very positive right now.

Wanted to give an update since it has been forever.  Today was 1 year since her surgery and she is doing excellent.  Her next MRI will be on July18th and she is not having any symptoms at all that would make me think it is going to come back bad.

Her scan came back clean :)  but she had to stop chemo due to an allergic reaction that she had last month, she only had one round left and the Dr did not seem to be worried about stopping it early.  She is not completely out of the woods but this is really great news considering they only gave her a year to a year and a half to live last year.  Thank you all for your prayers and support through all of this.

Newest update

I have not updated on here in a really long time, things are not going to great for Amber :( The tumor grew back in October, they removed it and tried a vaccine clinical study.  She had another MRI scheduled for Jan 2nd and they found that the tumor had grown back in the same spot so she had it removed again.  Jan 22nd (the day after her 12th birthday she had another one removed, they tried a different chemo pill which failed her and the tumor grew back again in Feb.  We have decided to stop treatment , the cancer is just too aggressive and is not going to stop growing.

by on Jan. 20, 2013 at 1:53 AM
Replies (21-30):
momof3boys1110
by on Jan. 20, 2013 at 2:02 AM
I'm so sorry..we will keep her in our prayers.
Posted on the NEW CafeMom Mobile
xXxLillithxXx
by Gold Member on Jan. 20, 2013 at 2:02 AM

I'm so sorry. Stay strong enjoy every moment and never give up hope.

melakay1981
by Platinum Member on Jan. 20, 2013 at 2:02 AM

St. Judes told me they would be doing the same thing that is being done at childrens hospital so they will not see her.  If it grows back I have the Dr's personal cell phone number and I am to get back to him immediately if it grows back


Quoting cjsix:

 huggingHugs Momma...I'm so sorry. cancer is a terrible opponent to fight against. Have you checked with St.Jude's Hospital?



428pm
by on Jan. 20, 2013 at 2:02 AM

I dont pray, but Im sending good thought for you and yours :( Im so sorry, I cant imagine

Anonymous
by Anonymous 3 on Jan. 20, 2013 at 2:03 AM

Just do what you can do medically-wise, and fill her full of the most known cancer fighting foods out there. I couldn't imagine being in your position. Good thoughts being thought your way! 

Grumpylilpixy
by on Jan. 20, 2013 at 2:03 AM
Omg. Mama. I'm so sorry ((((((((((((((((hugs))))))))))))). I can't even imagine. I really hope and pray that she can beat this and I have faith she can.
Posted on the NEW CafeMom Mobile
melakay1981
by Platinum Member on Jan. 20, 2013 at 2:03 AM

Thank you and yes prayers are welcomed


Quoting Bird16_J:

I am so very sorry momma! Hugs to you and to her! Just live everyday the best you can! I'll be sending you lots of good thoughts and prayers  for both her and you that things will be alright!



nikkik526
by Gold Member on Jan. 20, 2013 at 2:03 AM
Im sorry. Live every day like its ur last. Prayers for ur daughter.
Posted on the NEW CafeMom Mobile
AdensMommy1107
by Emerald Member on Jan. 20, 2013 at 2:03 AM
I'm so sorry. I couldn't even begin to imagine how hard this is for you and your family.
Posted on CafeMom Mobile
melakay1981
by Platinum Member on Jan. 20, 2013 at 2:04 AM

Thank you, her name is Amber


Quoting DevinAnnesmom:

Oh my goodness :-( My heart is breaking for you. That has to be the hardest thing in the world to go through...every moms nightmare. All I can say is love that little girl with everything in you and fight for her. You haven't failed. The fight isn't over yet. I'll be praying for your daughter. May I ask her name?



Add your quick reply below:
You must be a member to reply to this post.
Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

close Join now to connect to
other members!
Connect with Facebook or Sign Up Using Email

Already Joined? LOG IN