UPDATE 2- she just ate quite a bit of her dinner. I really hope this means we get to go home tomorrow.
While there aren't any bars here, my daughter and I have been confined here for over a week. I'm quite close to putting tally marks on the wall.
Last week, I took my 9 year old dd (with Rett Syndrome) to our local emergency room. She was lethargic and refusing fluids.
That trip resulted in two hospital transfers, with one transfer by air, and over a week in the hospital.
Her royal cuteness had acquired Influenza B, which was followed by pneumonia. She was starting her own microbe collection. I have since informed her that hermit crabs would be a better choice in the future; our insurance company agrees.
I have not left the hospital. This has led me to go a bit stir crazy. I will admit to reading every pointless magazine for sale in the gift shop, and watching people struggle to find parking in the lot below. I also think my daughter is tired of listening to the stories I've been telling her. She can't talk but I can tell she finds me strange.
She has done so well and is finally off of supplemental oxygen. The only thing she has to do to go home is eat. I thought this would be easy because she was previously dubbed a foodie. After having an NG tube(through her nose into her tummy) placed, and dealing with suction in her mouth, she's now anti-eating. If anyone wants to send some , "open your mouth for the delicious pudding" vibes we'd appreciate it.
I miss my boys. They're in good hands, but I haven't seem them since dd was admitted. The hospital is a few hours from home.
Cute kid was sick, and can only leave the hospital if she eats something. Mom going stir crazy.