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Okay mom's so I saw this comment where a mom posted something about most of CM members having "medical problems" and it got me curious.

What's your official diagnosis and how long have you been diagnosed with it. I'll go first.

Mental:

Bipolar-Disorder with schizoaffective ---16 years

PTSD --- 10 years


Physical:

APS (Hughes Syndrome) --- 8 years

SLE (Systemic Lupus Erythematosus) --- 1 year 1 month


Please no bashing. This is just to get people talking, not a place to be judgemental.

by on Apr. 3, 2013 at 3:05 AM
Replies (211-220):
Anonymous
by Anonymous on Apr. 3, 2013 at 1:04 PM
Nymphomaniac 17 years
MamaAjax
by on Apr. 3, 2013 at 1:07 PM


Yes. They ran it again 3 months later, it came back negative. I went back to my primary and he pretty much said (literal quote) "Well you might have seronegative arthritis. Go home and google it." >:O

So I got a new primary. I was so shocked. My new primary sent me back to test a third time, and I tested positive. Then they finally did a more extensive Antinulcear panle and figured out I have SLE which affects my neuro, cardio, gastro, and muscluskeletal. I didn't get the traditional derma reactions though 15 mins in the sun and I look like a cooked lobster. Nor does it affect my Renal system thank god.

What is rare is I ended up with SLE and APS which tend not to go hand in hand, but it was my APS diagnosis that lead my RA to test the ANA.

Quoting spastic_poodle:

Did you have a positive antibody test for your lupus diagnosis?



trailerrrtrash
by on Apr. 3, 2013 at 1:08 PM

 

I know, I haven't found anyone willing to work with me on it. I was told a few years ago when I mentioned pain in my hip to my ob/gyn that I wasn't old enough to have that kind of pain and as long as I could squat, I was fine.

That was when I was still covered by my ex huband's insurance, I was supposed to be covered until I got my own. But he quit his job shortly after that. My Dh and I now aren't covered, he gets insurance through his job for the kids, but we can't afford to pay for ourselves.

I never thought about circulation problems, I figured since the pain is in my joints it might be some kind of arthritis. Idk.

Quoting MamaAjax:

Oh goodness hun, I understand you don't have insurance, but maybe look around. There's lots of "free" clinics that doctors volunteer for. That sounds like a vein issue, poor circulation, and if it is that's something that's very dangerous.

Also call around. Little kept secret is doctors actually tend to be willing to work with you. Like my psych. My insurance doesn't cover him, and his rates are $250 an hour, however after working with him I pay $75 per a visit, it helps that I only see him once every 3 months.

 

Quoting trailerrrtrash:

Nothing official.

Pretty sure I have no mental issues, none that require diagnosis anyway.

I have something going down with my right leg. My ankle swells up and my knee hurts and my hip likes to try to kill me sometimes. Once in a while it'll give out on me and I'll fall. I don't know what it is, I don't have insurance. I have to be careful and pay attention to how much I'm on my feet and sit down for a while. Which I hate, I can't stand sitting when I have things that need doing. Sometimes I keep pushing it, but then I'm sorry later. I was told to take Aleve or Ibuprofen, but it doesn't help anything.

Anyway, that's all lol

 

 


 

caito
by Ruby Member on Apr. 3, 2013 at 1:09 PM

Major depression and generalized anxiety disorder. I know I'd be diagnosed with hypochondria and health anxiety if I went for another diagnosis.

KGreen75
by on Apr. 3, 2013 at 1:11 PM

PTSD

Depression and anxiety

Hypothyroidism

PCOS

sfkdny
by Platinum Member on Apr. 3, 2013 at 1:11 PM

physical - I have a blood clotting disorder

mental - I suffered from PPD but was treated and am doing much better

Tckosdk.2012
by Platinum Member on Apr. 3, 2013 at 1:11 PM

Epilepsy (seizure disorder) since 2005.

spastic_poodle
by Gold Member on Apr. 3, 2013 at 1:12 PM
That sounds like what's going on with me. Sometimes I test positive, sometimes not. All the symptoms add up though. I don't have healthcare atm but when I get it I'll be gOing to a new doctor and hopefully getting some for certain answers and help.

I have another autoimmune disease and I hear that if you have one you are more likely to have another. So it makes sense.


Quoting MamaAjax:


Yes. They ran it again 3 months later, it came back negative. I went back to my primary and he pretty much said (literal quote) "Well you might have seronegative arthritis. Go home and google it." >:O

So I got a new primary. I was so shocked. My new primary sent me back to test a third time, and I tested positive. Then they finally did a more extensive Antinulcear panle and figured out I have SLE which affects my neuro, cardio, gastro, and muscluskeletal. I didn't get the traditional derma reactions though 15 mins in the sun and I look like a cooked lobster. Nor does it affect my Renal system thank god.

What is rare is I ended up with SLE and APS which tend not to go hand in hand, but it was my APS diagnosis that lead my RA to test the ANA.


Quoting spastic_poodle:

Did you have a positive antibody test for your lupus diagnosis?





Posted on CafeMom Mobile
MamaAjax
by on Apr. 3, 2013 at 1:12 PM

I'm sorry to hear that. I'm no fan of PA programs, but maybe with Obamacare you might can get the discounted Medicaid. I don't know for sure how it really works, but I know it's for people in between the proverty line and being right above it.

If you want send me your state. I'll look into my little collective network of resources and see if I can find anything for you. It could be arthrist, but that doesn't explain the loss of moblity or why it's mainly just your right leg.

Quoting trailerrrtrash:


I know, I haven't found anyone willing to work with me on it. I was told a few years ago when I mentioned pain in my hip to my ob/gyn that I wasn't old enough to have that kind of pain and as long as I could squat, I was fine.

That was when I was still covered by my ex huband's insurance, I was supposed to be covered until I got my own. But he quit his job shortly after that. My Dh and I now aren't covered, he gets insurance through his job for the kids, but we can't afford to pay for ourselves.

I never thought about circulation problems, I figured since the pain is in my joints it might be some kind of arthritis. Idk.

Quoting MamaAjax:

Oh goodness hun, I understand you don't have insurance, but maybe look around. There's lots of "free" clinics that doctors volunteer for. That sounds like a vein issue, poor circulation, and if it is that's something that's very dangerous.

Also call around. Little kept secret is doctors actually tend to be willing to work with you. Like my psych. My insurance doesn't cover him, and his rates are $250 an hour, however after working with him I pay $75 per a visit, it helps that I only see him once every 3 months.


Quoting trailerrrtrash:

Nothing official.

Pretty sure I have no mental issues, none that require diagnosis anyway.

I have something going down with my right leg. My ankle swells up and my knee hurts and my hip likes to try to kill me sometimes. Once in a while it'll give out on me and I'll fall. I don't know what it is, I don't have insurance. I have to be careful and pay attention to how much I'm on my feet and sit down for a while. Which I hate, I can't stand sitting when I have things that need doing. Sometimes I keep pushing it, but then I'm sorry later. I was told to take Aleve or Ibuprofen, but it doesn't help anything.

Anyway, that's all lol







AnnLanders
by on Apr. 3, 2013 at 1:15 PM

Nothing major... thalessemia since birth and a chronic back spasm. 

Nothing can be done for the thalessemia but a good diet and exercise make a world of difference in my energy levels. 

I see a chiropractor for my back, he's sent from heaven above.  It took a few shots to find a chiropractor who knew what he was doing but I'm so glad I kept looking.

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