• In the Spotlight:
Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

I Secretively Wish it was different for 9 yr old dd.....

Posted by on Apr. 3, 2013 at 4:15 PM
  • 11 Replies
1 mom liked this

I have always thought my dd was the most beautiful person I knew from the day she was born.  I tell her everyday how pretty she looks after she gets ready for school.  And with a grin and a skip she says, I know mom.  With her self full of confidence and pride, she goes on her merry way into the day. 

My dd was born with a big birthmark on her left cheek, ear, and neck.  It's a port wine stain.  Not the kind of birthmark anyone would want.  With tissue growth that can take place in her 30's without laser surgery, it will be a never ending battle.  She will be going to her 30th laser surgery in 2 wks.  We travel 10 hrs to get to Galveston Shriner Burn hospital every 12 wks.  It's second nature to her. 

She is also having her 3rd neck surgery in May at the shriners in Shreveport.  I hate that she has to endure these things.  I truly do.  I have always told her everyone is born different.   And she is fine with how she is.  As she says it could be worse.  Out of the mouth's of babes. 

I guess the selfish part of me wishes perfect health and life for her, heck for all children.  I wish no child knew what the inside of a hospital was.  We walk into these Hospitals and they know her by name.  ggrrrr.  Ok my rant is over. 

by on Apr. 3, 2013 at 4:15 PM
Add your quick reply below:
You must be a member to reply to this post.
Replies (1-10):
mommy_me
by Emerald Member on Apr. 3, 2013 at 4:17 PM
Im sorry for you and your dd.

I bet she is beautiful
Posted on the NEW CafeMom Mobile
KA91
by on Apr. 3, 2013 at 4:19 PM

I know the feeling, baby doll. My DD has cerebral palsy, so doctors, surgeries, funny looks are second nature to her. She's absolutely perfect, but I'd take it away in a heartbeat if I could, to make her life easier. Give your beautiful girl a hug for me, & GL with the procedures!

Kaelaasmom
by Katie on Apr. 3, 2013 at 4:21 PM

 I'm sorry for you and your daughter. I don't think it's selfish to wish she didn't have to go through this. The important thing is that she knows you are there for her while she does go through this.

CafeMom Tickers
sheellyyo
by Bronze Member on Apr. 3, 2013 at 4:21 PM

Thank you.  No need to be sorry.  AS a mom we want our kids to not deal with things like that.  I am greatful though that we have the Shriner's to help with these surgeries.  Being put under everytime has always been a concern also. 

jesistar6910
by on Apr. 3, 2013 at 4:23 PM

I know exactly what you mean.

My DD was born with a cleft lip/palate so she's constantly at Children's in Denver for various things related to her cleft. It's okay for you to wish that she didn't have to go through that. I wish it everyday. Especially during her first six months and her weekly visits to the pediatric cleft specialist who helped realign her jaw. She has approximately 10 surgeries throughout her lifetime yet to go.

We do what we do as parents, but it is a testament to how great of a parent you are that your child is comfortable with who she is - regardless of the circumstances. I applaud you.

JP-StrongForTwo
by on Apr. 3, 2013 at 4:24 PM

I am sure she is beautiful! May we see her? 

Im sorry she has to deal with all this :( 

Summerlion1123
by Ruby Member on Apr. 3, 2013 at 4:25 PM
I know how you feel. My son has a disease similar to cancer (but not cancer). Its rare. He goes through chemo, steroids, and lots of MRIs. I hate it. This week is a chemo week (he goes every 3 weeks) and he always ends up looking punched in both eyes he's so exhausted, and he gets belly aches. They know him by name at the hospital too. I hate that he has to go through this.

Hope things get better for your beautiful girl.
Posted on the NEW CafeMom Mobile
MamaK1985
by on Apr. 3, 2013 at 4:26 PM

You are both stronger people for going through this. 

sheellyyo
by Bronze Member on Apr. 3, 2013 at 4:42 PM

This is what she can look like after a laser surgery.  And sometimes it looks like a bad sunburn. 

Here is a front view of her.  She is quite the ham. 

sheellyyo
by Bronze Member on Apr. 3, 2013 at 4:48 PM

Here is a regular one with a smile.  :  )

Add your quick reply below:
You must be a member to reply to this post.
Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)