Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

DD very skinny (shes 7) behavior problems, adhd, sensory disorder. long please open

Anonymous
Posted by Anonymous
  • 19 Replies

My Daughter turned 7 on may 25th..  Back story


I had her at 39 weeks elective c-section for many reasons.

DH was in the army for 7 years total. My OB (female) told me that i could give birth naturally since i had my first daughter via c-section (none emergency none elective) it was because i was in labor for too long and only 2 cm dialted. OR i could have a Elective c-section. She told me to be aware if i go into labor on my own i would have to call the German Ambulance from post. For 1, we dont speak their language. And we worried too much of the language barrier at the germany hospital. If i wanted something or had to consent another c-section or whatever it may be. we may have not understood each other. Even though some doctors, nurses etc know some English, which they did at the time they still didnt speak English properly or understood us.

So we decided on a elective c-section at the Army Medical hospital a hour away. The OB told me they where closing the base and hospital because the military was closing a bunch of bases which they did after we left. Right after they took her out of me, she didnt cry. After i was recovered and i could feel my stomach and legs i was wheeled back in my room, they brought her and i tried Nursing, Bottles, Pacis.. Every time she had something in her mouth she turned blue.

I got worried, looked at DH and i said wth, shes turning blue every time shet tries to suck on anything. So the Nurse took her and came back and said shes fine. I was like no way shes fine you're dumb. So i said no i want a xray and all that. they took a Xray and came back telling me it looks like there is something in her lung and they didnt have the Proper high tech equiptment so they had to call the german ambulance and transport her to the childrens Klinikum in wurzburg germany..

We left the next day out of the army hospital to look for her. I swear, we couldnt find her! we went to every clinic on that parking lot until they reconized her name. we had to wash our hands and only go as pairs (DH and I) while my mom stood with my oldest. She was in a Incubator (SP)? with tubes coming out of every where. She had a HOLE in her right lung (her right) so they made a tiny opening (which she has a scar still) to put a white tube inside, she also had tubes in her nose, mouth etc. a machine to the right of us (Super expensive and huge) to help her breath and she was under Anesthesia for 2 weeks. actually 1 week and then they took it out for the last week so i could feed her and give her breast milk by a bottle when i was not there.

i would pump 24/7 and bring it to them once a week. (bags full) she lost a pound or two. we took her home but she didnt seem normal. she look out of it, she didnt care if we where in the room as a newborn. Like it didnt matter to her and she would sleep all day and only wake up to eat and change diaper. when she was up and i had her in the living room, she didnt care. i cant explain it. she did learn to crawl around 7 months, walk around a year. but she was silent. She barely talked. she didnt learn to fully speak until 4 years old.

She was a very very very shy child, didnt like people. She started showing signs when she would put anything in her mouth, she would eat and eat and eat all day and night.. she was never statisfied. she was chunky. She also wasnt fully potty trained until 4 1/2 but then regressed when we moved from WA state to California (we left germany in 2007) Left WA in 2011.

She kept peeing on her self in bed until last year when she was 6. She started getting skinnier and skinnier in 2010 close to 2011. now shes very very skinny. Look i dont want to sound mean but she looks like a Alien and very Anorexic looking in my eyes/view. she doesnt seem normal. She aslo has a bunch of Developmental problems.

too skinny, looks like a boy then anything, her figure is tiny, nothing but bones regardless how she eats or how much. She has LOOSE ANAGEN CELLS (her hair wont and cant grow, falls off. google it)

She has a Sensory Disorder... She walks around touching everything, She has too, there is no ends or buts about it. She glides her hands over shelves, grabs anything. Tells us "What! Im looking" No your not lol, your touching difference. She tries to bend her fingers and toes during a time out or tantrum. She spits on her self. She has broken the closet door, she broke our flat screen tv. When its 8pm i tell her its time for bed and then when you fall asleep your sister will come and sleep. They cant go to bed in the same room together because like last nite, they talked from 9pm to 10:40pm. DD 7 went to bed at 8pm and was still awake. I get it, she may not be tired but i am, so is dh and we need our time alone and to relax.

they wake up at 7am and want to go to bed WHEN THEY WANT. Developmental issues or not, my rules is 8pm. I have things i got to do and im not going to just let them stay up from 7am-11pm just because they want too. So anyway, no matter how she eats or how much she gets full but she isnt putting muscle on her arms, legs, shoulders. shes nothing but bones. I was not like that as a 7 yr old, neither was my oldest.

She also cant read anything, she cant do math, she cant blend words... she was supposed to go to 2nd grade but shes being retained with my approval. Shes home schooled like my oldest. the teachers in other schools, my self and her new teacher at the school has tried everything. Nothing is making her learn. she just copies things down but cant read or write. I have a Assestment she had to do which she had to write a story. She picked a Animal and had to write it on her own no parent help. It isnt readable, its nothing but letters... it just looks like putting the alphabet mixed up on paper. We are waiting on a company that helps kids with Disabilities. they have to contact me and make a appt. the school psychologist cant help me with ADHD or anything she said.

I wont be making a pediatrician appt until i get a phone call from this company that will see my daughter about services. FYI vitamins dont work. no food fattens her up

Posted by Anonymous on May. 31, 2013 at 3:02 PM
Add your quick reply below:
You must be a member to reply to this post.
Replies (1-10):
Anonymous
by Anonymous 1 - Original Poster on May. 31, 2013 at 3:05 PM

forgot to mention, idk why she had a hole, nobody could tell me and the hole did close with all the high tech equiptment and medicine they gave her. they told me if it was in the usa (2006 yr at the time) she would of died because the usa had no stuff like that.

opinionatedmom
by Platinum Member on May. 31, 2013 at 3:14 PM
1 mom liked this
A few things come to mind starting with food allergies.maybe autistic. Have her checked for dislexia. Also get her hearing tested. Do not take her to a regular pedi take her to a specialist.
opinionatedmom
by Platinum Member on May. 31, 2013 at 3:15 PM
Bump
Anonymous
by Anonymous 1 - Original Poster on May. 31, 2013 at 3:19 PM

I cant see a specialist until i see the regualr pedi. i never met him. we just got our insurance and i may be changing the pedi. I want to see a NONE pushing vax doctor. and we are vegans. she is more vegetarian but im vegan and i have my own ideas what i want and i dont want someone pushing meat or dairy. shes lactose in tolerant, gluten and wheat sensitive like me.

I asked about Dislexia to her teacher at the school when we see her on fridays and she said idk nothing. and hearing we will do too thanks

Quoting opinionatedmom:

A few things come to mind starting with food allergies.maybe autistic. Have her checked for dislexia. Also get her hearing tested. Do not take her to a regular pedi take her to a specialist.


MicheleJM
by on May. 31, 2013 at 3:19 PM
2 moms liked this
This plus thyroid problems. I would try to find a developmental ped, an endocrinologist and a gastroenterologist..


Quoting opinionatedmom:

A few things come to mind starting with food allergies.maybe autistic. Have her checked for dislexia. Also get her hearing tested. Do not take her to a regular pedi take her to a specialist.

Anonymous
by Anonymous 1 - Original Poster on May. 31, 2013 at 3:20 PM

She had them done in 2012 before my husbands military tricare insurance ran out in April 2012 and they told me in her urine there is nothing. no thyroid issues but it could be there now. i dont know why it would show now when shes been this way since forever. thanks again.

Quoting MicheleJM:

This plus thyroid problems. I would try to find a developmental ped, an endocrinologist and a gastroenterologist..


Quoting opinionatedmom:

A few things come to mind starting with food allergies.maybe autistic. Have her checked for dislexia. Also get her hearing tested. Do not take her to a regular pedi take her to a specialist.


momsbabies
by on May. 31, 2013 at 3:23 PM
1 mom liked this

Take her to a Neurologist

WillsMOM72
by on May. 31, 2013 at 3:27 PM
Something is wrong but I have no idea. I would just keep going to different doctors until they can fix it where she can eat and grow. Praying for you and your child. Hope the doctors figure out what's going on !!
Anonymous
by Anonymous 2 on May. 31, 2013 at 3:28 PM
1 mom liked this

Have you checked her for dyslexia and dysgraphia. I only ask because my daughter has SPD and was diagnosed with dyslexia and dysgraphia and once we found out why it was so hard for her to learn we got her into therapy and she is now doing great in school. She just learns differently than the other children in her class.

Anonymous
by Anonymous 1 - Original Poster on May. 31, 2013 at 3:30 PM

I will, i am writing things down as i get them from yall. She has seen a Specialized Pedi, A Child Neurologist, she has gotten a bunch of tests done in WA. They found NOTHING... We never saw a Behaviorlist child specialist in WA so i dont know on there take but all these doctors have to be referred because thats just how it works.


Quoting momsbabies:

Take her to a Neurologist


Add your quick reply below:
You must be a member to reply to this post.
Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)