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I'm terrified... Cancer? *Newest update 7/11/13

Posted by Anonymous
  • 104 Replies
2 moms liked this
I am absolutely terrified. Yesterday afternoon, my mouth started to bleed at random for no reason. I went to the bathroom mirror to see if I could figure out why. I noticed something on the side of my tongue in the back. I stuck my tongue out as far as I possibly could to get a look at it.

I found a huge mass that is very far back on the side of my tongue. It was very delicate and bled easily. It's grayish in color and no distinct shape. It has no feeling really. All this freaked me out and I've never seen anything like it. When it was bleeding, there was also a fluid inside that seeped out and was making that whole side of my tongue and mouth burn! So I made an appointment with my doctor and luckily they had an opening yesterday evening.

My doc takes a look at it and doesn't like what she sees. She's always been straight forward with me. She was quiet for a minute or two as if trying to figure out what to say. She said that its definitely not an infection or a blister. It isn't something that she could prescribe anything for. She explained that its a mass of tissue and could likely be a tumor. I need to go to a specialist to have a biopsy done.

Today, the office called with the referral info. So I called to make an appointment. The receptionist was asking a couple questions about my condition so I told her. She seemed alarmed and went to talk to the nurse who then spoke to the doctor. Originally, their first available appt was in the end of June. When the receptionist got back on the phone, they found a place to get me in tomorrow at the doctors request.

All of this is terrifying to me. I'm 24, two kids and a loving husband. Not a smoker, hardly drink- maybe a glass of wine or two a few times a month. I've never heard of tongue cancer until now and I'm terrified! I don't want to talk to my extended family about this until I know what is going on. And I don't want to worry dh more than he already is... I guess I'm just looking for support or advice, or just to get this off my chest, or even what to expect. Idk...

ETA: Not sure why this went anon? SN is MrsMalsam

*update 6/5/13- I saw the ENT today... He didn't take me seriously. The most strange doctor I've ever met in my life. He said that because I'm not a smoker then he's not worried about anything. Wouldn't really look at the lump, dismissed the bleeding and burning. Gave me antibiotics and a topical cream, with instructions that if my lump didn't go away in two weeks then come back. He also said he didn't want to bother with having to remove it unless he absolutely had to. He didn't care to listen to what I had to say. I saw him for all of five minutes and he just wrote a prescription. I'm frustrated, but will try the prescription and if it doesn't work, then I suppose I'll go back?

*update 6/6/13* After a decent night sleep to clear my head, talking with DH and lots of prayers, I've decided to follow up with my regular doctor on Tuesday just to discuss what the ENT said. I'm unsettled with his approach and how off the wall and spacey he was. I was uncomfortable and felt unheard. DH is outraged and concerned as well, so I'm also taking his feelings on this into account.

So I plan to try his prescribed treatment to be proactive, and have my appointment scheduled with my primary doctor for Tuesday. If there's no change in it by Tuesday, I'm sure my doctor will have no problem referring me elsewhere. I just don't want to make a mountain out of a molehill in case it's nothing, but I do want to be informed and have someone who will actually hear me out, give a proper exam and answer my questions.

*6/22/2013- Haven't gotten any answers as to the thing on my tongue. I feel it growing larger and it makes it a little hard to even stick out my tongue to take a look at it. I have another appointment on July 2 to get another opinion and hopefully have it removed. I will update after the doctor appointment!

7/11/13- I am sorry for not updating. I just had a miscarriage three days ago so I am pretty broken up about that right now. So now to my update: I decided to go a different route. I made an appointment with a dental office near by that has good ratings and within my insurance network. They are also concerned about this lump. They got a real good look at it with a camera thing and got pictures from all angles. Thankfully they don't feel that it's malignant. As of right now, they're calling it a benign papilloma with potential to become malignant if not removed promptly. So they got a referral for an oral surgeon to remove it and run it for tests, just to be sure. I'm still waiting for a call back to make an appointment for the oral surgeon. Ill update after that appointment.
Posted by Anonymous on Jun. 4, 2013 at 11:00 PM
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Replies (1-10):
by on Jun. 4, 2013 at 11:01 PM

Stay strong.

by Lube Girl on Jun. 4, 2013 at 11:01 PM


by on Jun. 4, 2013 at 11:03 PM
I hope everything goes well.
by Jagged Edge on Jun. 4, 2013 at 11:04 PM
Stay strong and keep us posted. Hugs!
by on Jun. 4, 2013 at 11:05 PM
1 mom liked this
I am so glad that they got you in so quickly. Please update when you have news. Good luck hon and I will say a prayer.
by Anonymous 2 on Jun. 4, 2013 at 11:05 PM
Yikes. That sounds scary! Keep us posted. I will be thinking positive thoughts for you!
by Janine on Jun. 4, 2013 at 11:06 PM

WOw... I would not know what to feel or think.

I am sending up prayers for you.  I would be terrified too.

by Ruby Member on Jun. 4, 2013 at 11:07 PM
Praying for you keep us updated!
by Gold Member on Jun. 4, 2013 at 11:08 PM
3 moms liked this

Given your age and lack of smoking it's prob not cancer. It's good you got such a quick appointment. I was seeing a pregnant patient once and she had a really weird lesion on her tongue. It kinda freaked me out. She didn't have insurance and it would have been hard to get her into a specialist so I biopsied it myself. It was a benign lesion that can occur in pregnancy. It would have gone away on its own. I felt kinda bad for freaking out but when I told her, she was just relieved it was nothing and not upset that it was something I didn't recognize. Supposedly it's not uncommon but ive never seen one before or since. Hope yours turns out the same---keep us updated :)

by Anonymous 3 on Jun. 4, 2013 at 11:09 PM
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It's scary being faced with cancer. I had a bunch of precancerous cells when I had my ds 3 yrs ago ha a biopsy and everything was ok until I had dd 7 months ago when I was pregnant with we they foud developing cells. But it's my cervix so worse comes to worse they can't she it you need a tongue. In sorry I hope it's not cancerous :)
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