What we really want is understanding. We are not asking for special treatment all the time. We are not asking for the world to revolve around our child. We are asking for people not to judge us or our child, we are asking for a simple smile when you see a mom having a hard time with their child.
Would it be so hard for you to let an sn child go first sometimes. Doesn't everyone deserve to have a little magic in their life at least once? Why cant an sn child go to Disney or the zoo or anything of the sort without being judged. Don't they deserve that?
You moms of normal kids don't go through what we go through. You are to here when my son comes to me crying because no one will play with him. You are not here when he cries to me asking if he will ever be normal. You are not here when he goes into full meltdown mode because someone accused him of doing something he didn't do. You are not here when I have to comfort my son when he is screaming and at the same time comfort dd because she is scared. You are not here when I'm sitting in the hospital while my son is in surgery or the third time this year or sitting in the hospital while my son gets I've fluids and is trying to perk up for the second time this year. You didn't drive with us when we went to Standford for a surgery at 4am. You are fighting the school with me when the school tries to cover up the fact my son was being bullied and scared to go to school. Or when my neighbors tell their kids not play with ds because he is different. Your not here when people treat him like he is contagious.
We don't get to go to parties or bday parties. We don't celebrate July forth. We don't celebrate new years. He doesn't get to have sleep overs. Why you ask, because he is terrified if fireworks, he is terrified of jumpers.
You don't have to deal with irrational fears that an sn child might have.
I'm not saying all parents of sn children feel this way. I know some use their child's disability as an excuse and some do believe they should get special treatment all the time. What I am saying is, don't judge all of us based on the few. We are not all the same, we are not all aski g for the same special treatment.
We ask for a simple smile, we ask for progress not perfection.
So the next time you are out somewhere and you see a child acting up, please consider that the child may not have the ability to behave as you think they should. And give the mom a smile.
And tonight when your children go to bed, hug them like you never have before. And thank god you don't go through what many of us through on a daily basis.
Do you even know what it's like to watch your child sleep and wonder why he's is the way he is? I do, it's not a good feeling.
Edit: For the idiots that can't read. I'm not asking for special treatment or pity. All I'm asking for is understanding, a little compassion. We don't go out in public with the sole purpose of disrupting your life. If my sons disability offends you, then maybe you should leave or just stay home.