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4th update on my dd age 6, bone removeal and toe amputation, her new foot!! (pics)

Posted by on Jul. 1, 2013 at 10:58 PM
  • 115 Replies
3 moms liked this

Update #4

They took her cast off to examine her foot and remove the stitches today.  Her foot is still really swollen, and has a bit of an infection, but a few days of augmentum will clear it right up.  It is probably so swollen because she just won't stay down with her foot elevated, but since she has not been complaining of pain, the doctor is not worried.  It really looks great, I'm very happy.  They put on a new cast.  A much smaller one, and gave her some crutches today... its going to take a few days for her to get used to them.  In two weeks we go back in and have the pin and cast removed and she will be good to go!!

Her new foot!!

Before

Update #3

DD had surgery this morning, and it went well.  They removed the "5th" metatarsal, and the "5"th toe.  They placed a pin in her what was 6th now 5th toe and she will be in a cast for several weeks till everything heals.  The doc said that the last metatarsal does not have a mature growth plate so she will probably have to have surgery to extend the bone when she is 15 or 16.   In the mean time we will have to have yearly exams with an experienced foot and ankle doc to make sure growth is okay. We are home now, and she is doing okay, but she is in pain and already frustrated.  she wants the cast off and she wants to walk.. but we were told she needs to stay off that foot for a week.  So she is not a happy camper.  here is a new x ray of her foot now!

 

Update 2 

Everything went very well with the foot and ankle doc.  DD will have surgery on friday to remove the 5th bone (the one growing at an angle), and the 5th toe (it is underdeveloped, and the duplicate toe, so it's the one to go).  She might have to have pins, he said he will know for sure during surgery.. but he said that she will probably have to have pins for a few weeks and be in a cast to keep the foot straight till it heals and the bones can hold position on their own.  He said about 6-8 weeks for recovery, but that he has dealt with similar cases (not exact of course), and that it goes well, and that this is the best time to do this.  Its an outpatient procedure.  So me and dd and the baby will drive up and stay with my mom the night before, go to the surgical center, once done, we will go back to my moms house till dd feels well enough for the trip back home.  DH will take Friday off work and stay with the boys at home.  I'm feeling much better about everything now that someone has been able to explain what is going on, what needs to be done, and how it all will play out.  DD is upset, she doesn't want to loose her "special toe" as she calls it.. but unfortunately, we don't have much of a choice, that 5th bone will continue to grow and push the other bones further apart causing her foot to get much wider, and cause more pain.

 

Update! We found a foot doc two hours away that has worked with cases like hers before and he is willing to see us next week!!  Still nervous about what he will recommend, but at least I don't have to drive four hours now!

 

 

my daughter has six toes on one foot.  The toe has never caused problems, but the bones in her foot might be.  Her foot hurts, and we cannot find shoes to fit her foot right.  Our ped, referred us to an Orthopedic surgeon, the surgeon took xrays and pretty much told me that he had never seen anything like this and had no idea as to what needs to be done, he didn't even give me any advice on shoes, just said she has to see a specialist at primary's.  We went there before when she was a baby and they told us that they wouldnt' do anything unless it caused problems because it would be a complicated surgery and its not a good idea to do it while they are still growing... well now there is problems, and one of the bones may not have a growth plate... I'm so nervous. I don't know what they are going to recommend because the surgeon we saw today couldn't answer any questions.  =(

here are her xrays 

by on Jul. 1, 2013 at 10:58 PM
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Replies (1-10):
Khaleesi
by Silver Member on Jul. 1, 2013 at 11:00 PM
12 moms liked this

Wait. Let me get this straight. An orthopedist, a doctor who pretty much specializes in bones, has no idea what to do? Time to shop around for a competent doctor. Hope all turns out well.

AlleyCat08
by on Jul. 1, 2013 at 11:02 PM
Good luck.
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Anonymous
by Anonymous on Jul. 1, 2013 at 11:02 PM

It could be worse!!

Anonymous
by Anonymous on Jul. 1, 2013 at 11:03 PM

Bump. Good luck!

blsdbyangel07
by Evil Food Lady on Jul. 1, 2013 at 11:04 PM
8 moms liked this

Yea it could be worse but that does not mean she can't vent or worry about her kid's foot!  Gosh... I hate when people say 'it could be worse' heck it could be worse to that kid's picture you posted.  

Quoting Anonymous:

It could be worse!!


Samantha.Stetka
by on Jul. 1, 2013 at 11:04 PM

Oh my gosh. Your kidding right!?

Quoting Anonymous:

It could be worse!!




I am a loud laughing, crazy cuddling, million kisses, co-sleeping, breastfeeding, teen mom.

goddess99
by Silver Member on Jul. 1, 2013 at 11:05 PM

Hope you find a doctor who can help!

1plustwinsmommy
by Platinum Member on Jul. 1, 2013 at 11:06 PM
1 mom liked this
I was born with extra bones in both feet. I had them removed when I was 10. My extra bone protruded slightly above the arches of my feet. Surgery really wasn't that big if a deal. Surgery, 6 weeks in casts, then a few follow up visits.
TrouserMouse
by Emerald Member on Jul. 1, 2013 at 11:06 PM
6 moms liked this

That was a shitty move.

Quoting Anonymous:

It could be worse!!


brittney28
by Brittney on Jul. 1, 2013 at 11:06 PM
3 moms liked this
You're a bitch!


Quoting Anonymous:

It could be worse!!



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