this may seem silly. last update... screw our medical system!!
Im being admitted to the hospital for shunt placement surgery, part of the procedure requires some hair to be removed. So this is the last day ill have all my hair. As you can see in the picture. I know it'll grow back, but this is a difficult part for me. I've always felt my hair was one of the key things that defined me. But, I'm sure accept it.wish me luck. I already miss my babies.
Not a big update, but I had a ct of my head to look at the ventricles. And another lumbar puncture. The opening pressure was 38 which is high. There was three failed attempts at it the first time, so I had to go to intervention radiology. My back is sore. Then tThey gave me a drug for pain called regalin (sp), which was awful, I felt anxious and panicky. If you have ever had restless legs that's what it felt like all over my body. So that's it for now, I see my neurologist in the am. And I'm so grateful to have my hubby here. Thank you all for the kind words, hugs and well wishes. It means so much to me!
well, its morning, ive got my own room and had some breakfast. Ive even got a window with a crappy view! I see the neurosurgon later, its all up to him now when things happen. I wish i had a more definete time. I really miss my little girls, I thought about them all night. They dont know whats going on with mommy, i dont want to scare them. Well anyways, thats it. Heres a pic of my crappy view.lol.
and what the heck, one of my white board because im extra bored!
super fun right!!!!
after all that, the scans, blood work, mri, lumbar puncture, days in the hospital, they wont do the surgery. Why, you want to know why??????? Because i dont have insurance!!!!!!!!! They couldnt have told me that before hand? They let me go through all that.. what the hell!!!!!!!!!!!! Im so upset.