Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

Mom Confessions Mom Confessions

The Suicide Disease?!? Update

Posted by on Sep. 12, 2013 at 12:08 AM
  • 172 Replies

Update: 1: So yeah...I saw the oral surgeon/facial pain specialist and he agrees with my PCP and the endodontist, that it's definitely TN. He gave me a prescription for a topical cream with lidocaine and cisaicin in it. He referred me to a neurologist and told me it's likely that I'd have to have surgery at some point. He thinks my original dentist caused the TN. :( My neighbor gave me a prescription of what is labeled "magic mouthwash". She said it has lidocaine in it. I'm desperate so I took it. My PCP upped the carbamazapin dosage to the maximum- 1200 mg. WOW it makes me tired. 



I recently began having so much massive teeth, jaw, ear and lip pain that I assumed I had major dental problems. I'm new to this state (Utah) so I went to a dentist who pulled two teeth (now I need implants, yay) and gave me fillings for five. I thought that would be the end of the pain but instead, it got worse.

It began to radiate into my ear, eye, now, lip, gums and teeth and it felt like someone was shocking me over and over again with lightning. It would then go into this sharp, piercing, relentless type of pain that felt like someone was hitting me over and over again in the skull- with an ice pick or a burning hot poker rod. 

So...after almost two weeks of worsening pain, I can't eat well, sleep, and I can't work hardly. So I went for a second opinion to an endodontist. He immediately suspected something was off and had me do an MRI and a full jaw xray. He ruled out TMJ, jaw infection or any teeth issues. According to the findings on my MRI, I have what is nicknamed "The Suicide Disease". It's called Trigeminal Neuralgia and it's completely relentless.

I've been referred to an oral surgeon who treats it and I started a medication for it which is helping only mildly. I'm freaked out by everything the endodotist said. He said if I didn't follow the oral surgeon's treatment regime that this disease could make my life a living hell. He said there have been many documented cases of patients hurting themselves because they can't take the pain (narcotics won't help) and that it takes time for treatment to work.

Has anyone heard of this? I know it's a long shot but I'm scared.If anyone has any suggestions of what to do, or if anyone has any information please do share it. I have special needs children and I need to be pain free and normal for them.

by on Sep. 12, 2013 at 12:08 AM
Add your quick reply below:
You must be a member to reply to this post.
Replies (1-10):
TrouserMouse
by on Sep. 12, 2013 at 12:10 AM
I think I have read about it. It is nerve pain, right? I don't have any suggestions, but I hope you get some relief.
Momtimestwo
by Bronze Member on Sep. 12, 2013 at 12:11 AM
My best friend has it as well. I'll ask her tomorrow (she's asleep now), what helps if you like.
eyebtrollin
by on Sep. 12, 2013 at 12:11 AM
2 moms liked this
Never heard of it, but here is a bump and I hope you get help soon.
divinedimension
by Not Miss Cleo on Sep. 12, 2013 at 12:13 AM
1 mom liked this

Oh my goodness, I'd be so grateful if you did. THANK YOU!!!


Quoting Momtimestwo:

My best friend has it as well. I'll ask her tomorrow (she's asleep now), what helps if you like.



TrouserMouse
by on Sep. 12, 2013 at 12:13 AM
As far as someone hurting themselves, I was in so much pain for 10 days straight with no relief once. At that time, I truly understood why people with chronic pain do sometimes choose to end their life. It was actually running through my head. There was no way I could have lived my life that way. :(
divinedimension
by Not Miss Cleo on Sep. 12, 2013 at 12:14 AM

Yeah it's from a rather large nerve in the face- the trigeminal nerve. Mine has a blood vessel compressing it.


Quoting TrouserMouse:

I think I have read about it. It is nerve pain, right? I don't have any suggestions, but I hope you get some relief.



o.O....
by Cara on Sep. 12, 2013 at 12:14 AM
1 mom liked this

Oh my gosh, I'm so sorry! I hope you get some relief soon!

divinedimension
by Not Miss Cleo on Sep. 12, 2013 at 12:15 AM

Holy crap what happened? :( Yeah it's been about two weeks straight for me now. It's getting worse. I did start a medication for it today, so we'll see.


Quoting TrouserMouse:

As far as someone hurting themselves, I was in so much pain for 10 days straight with no relief once. At that time, I truly understood why people with chronic pain do sometimes choose to end their life. It was actually running through my head. There was no way I could have lived my life that way. :(



wonderwomen1
by Bronze Member on Sep. 12, 2013 at 12:16 AM
Feel better! I hope you get some answers.
Posted on CafeMom Mobile
strictmomhere
by Ruby Member on Sep. 12, 2013 at 12:17 AM
I have no helpful info but hugs:)
Posted on CafeMom Mobile
Add your quick reply below:
You must be a member to reply to this post.
Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

close Join now to connect to
other members!
Connect with Facebook or Sign Up Using Email

Already Joined? LOG IN