Update: 1: So yeah...I saw the oral surgeon/facial pain specialist and he agrees with my PCP and the endodontist, that it's definitely TN. He gave me a prescription for a topical cream with lidocaine and cisaicin in it. He referred me to a neurologist and told me it's likely that I'd have to have surgery at some point. He thinks my original dentist caused the TN. :( My neighbor gave me a prescription of what is labeled "magic mouthwash". She said it has lidocaine in it. I'm desperate so I took it. My PCP upped the carbamazapin dosage to the maximum- 1200 mg. WOW it makes me tired.
I recently began having so much massive teeth, jaw, ear and lip pain that I assumed I had major dental problems. I'm new to this state (Utah) so I went to a dentist who pulled two teeth (now I need implants, yay) and gave me fillings for five. I thought that would be the end of the pain but instead, it got worse.
It began to radiate into my ear, eye, now, lip, gums and teeth and it felt like someone was shocking me over and over again with lightning. It would then go into this sharp, piercing, relentless type of pain that felt like someone was hitting me over and over again in the skull- with an ice pick or a burning hot poker rod.
So...after almost two weeks of worsening pain, I can't eat well, sleep, and I can't work hardly. So I went for a second opinion to an endodontist. He immediately suspected something was off and had me do an MRI and a full jaw xray. He ruled out TMJ, jaw infection or any teeth issues. According to the findings on my MRI, I have what is nicknamed "The Suicide Disease". It's called Trigeminal Neuralgia and it's completely relentless.
I've been referred to an oral surgeon who treats it and I started a medication for it which is helping only mildly. I'm freaked out by everything the endodotist said. He said if I didn't follow the oral surgeon's treatment regime that this disease could make my life a living hell. He said there have been many documented cases of patients hurting themselves because they can't take the pain (narcotics won't help) and that it takes time for treatment to work.
Has anyone heard of this? I know it's a long shot but I'm scared.If anyone has any suggestions of what to do, or if anyone has any information please do share it. I have special needs children and I need to be pain free and normal for them.