My poem to my sister:
When others look at my sister they see the tattoo that is written across every visible and non visible piece of her skin. They look at her and all they can see is "Down syndrome"
She's sweet because she has Down syndrome
She gives lots of hugs because she has Down syndrome
She smiles a lot because she has Down syndrome.
She walks across the room, sticks out her tongue, pets a dog, kicks a ball, flies a kite, plays with a doll, dances in circles because she has Down syndrome.
God forbid anything can actually be attributed to her own doing.
Everything she says and does is the Down syndrome. She is Down syndrome.
When I look at my sister I see a sassy, caring little girl. I see beautiful blue eyes behind her drooped lids. I see a girl who is obsessed with cars, bad guys, and toy story.
To use Down syndrome to define her is to define me by having brown eyes.
Sure I have them, they effect me, but they aren't me. I am so much more than just eyes and she is so much more than just Down syndrome.