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I need advice on diaper rash. AGAIN. Update and sad

Posted by on Jan. 8, 2014 at 1:08 PM
  • 229 Replies

So, I've been posting about this ever since I joined cafemom - I can link precious posts if anyone has any interest. 

But anyway, my daughter is still getting viciously bad diaper rashes. Still. I've been to specialists, I've taken her to the children's wing of Johns Hopkins. I'm still a little burned about the pediatric allergist - she didnt think any of the history looks like allergy. I don't know how it doesn't look like an allergy. But to the point -

the skin doesn't really fall off of her butt anymore when she breaks out. Thank god. But she still gets the little flesh colored bumps and those itch her like CRAZY! She scoots, throws herself around and ABSOLUTLY claws away at her poor bottom whenever she can. Bath time, diaper changes, etc. I immediately grab her hands and say "no!" But she still gets at her skin sometimes. I keep her nails very trimmed. But despite all of this : her butt is ABSOLUTLY covered is claw marks. Red, raw, some are even bloody and scabbed. Her poor bottom looks like a cougar got at her. And it just never seems to heal. I'm so scarred her bottom will start scarring. I take pictures - it's been about a week and a half, almost two weeks since she had a real bad flesh colored bump flare up and while she still itches sometimes, her claw marks from nearly two weeks ago haven't healed yet. What if that raw skin gets infected? It doesn't look like it is. But it worries me. 

Advice? 


UPDATE

So I took her to the doctor today and was once again given the "she has the curse of the fair skin" and that she'll outgrow this problem when she potty trains. He again discouraged allergy testing. 

I'm so mad. And upset. And feeling disregarded. I have fair skin, too. As does my husband. As does my mother, etc. there is no family history of anyone having the diaper rashes and welts and itchiness she suffers with. 

She poops 6/7 times a day (which is another reason I suspect food allergy - it's irritating her digestive tract. Ped just says she "eats healthy and what comes in must come out" which is true, but toddlers with similar diets still only poop 1/2 times a day. Wtf?) and so far, despite screaming and running away in fear when I say it's time to change your diaper, and being very scared of anyone checking out her bottom, shows no sign of being interested in potty training. I've tried explaining it'll feel better but she's 20 months - she doesn't get what I'm telling her. 

I'm as torn as ever. Am I:

A) a mother who isn't being her daughters best activist when I take two doctors advice and let this go, hoping she'll outgrow it when all along I'm right. 

or

B) a monster who, despite taking her to two doctors who agree it is just sensitive skin, push and push and push until she's given the painful skin pricking tests for allergies, just to find out she's not allergic to any foods and I put her through all of this for nothing. 

Either I'm right and push for the allergy screen and am vindicated and can work with what we will then know or 

I'm right and don't push for the allergy screen and she continues to suffer

Im wrong, and I've put her through a painful allergy screen for nothing and should have listened to the doctors. 

Im wrong, and the doctors are right and while its awful, she will eventually outgrow this. 


ETA: 

its not a matter of finding the "right" diaper cream. Or switching detergents. Or doing elimination diets. Or switching diapers. Or boiling her cloth diapers. Or trying creams for fugal or yeast.  I've done most all of it, with no good results. The diaper rash isn't a normal rash. It doesn't come on and then I put on a cream and it goes away. It's like it has a mind of its own. She'll be in the diaper brand or cloth diaper with same washing cycle, same cream, same wipes, same food for WEEKS, then suddenly have an outbreak. I'll panic, try to figure out if anything is different, not find anything and no amount of type of cream works. It's like it has to work its way out of her system (whatever it is that's irritating her is in her stool) and then it clears up. This can happen in as quick as two hours and as long as two weeks. 

Ive keep food journals. 

Sorry - I was just getting a long of the same resposonses and questions"have you tried cloth" "have you tried this cream" "have you tried elimination diet" "have you kept a food journal" etc so I'm tring to get past that and see if we canworkfrom there. 


Thank you for your help, too, everyone- this is the only place I've found so far where I'm not immediately dismissed. It's aloof help just to keep me from losing my mind 


UPDATE 2!:

I was on the phone for a lonnnnggg time with the pediatric allergist at Hopkins that saw my daughter back in November. At first, she really seemed... Almost annoyed that I was calling. Lots of "Yeah, I still don't think that's an issue" and "Well, that could just be from having sensitive skin" and hemming and hawing about how "if she'd potty train, this would just go away"

But I pushed. Politely, of course, about how I just need a starting point to figure out where to go next. 

She doesn't think (want) to see my daughter again, but was willing to put in a lab order. So! We're getting a blood draw screen for a wide range of foods. I'm compiling a list of foods she eats fairly regular, just to be sure it is added to the list. 

She said a few times "I'll be very surprised if anything comes back positive!" (Eyeroll) but its happening. 

I can't help but feel a bit like a monster, though. She's going to get poked and cry and I'm the one who made it happen. If it comes back completely clear, I'll feel like worlds worst mother of the year. 

by on Jan. 8, 2014 at 1:08 PM
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Replies (1-10):
BaltimoreBaby
by Gold Member on Jan. 8, 2014 at 1:11 PM

BUMP!

BaltimoreBaby
by Gold Member on Jan. 8, 2014 at 1:12 PM

Bump!

CampClan
by Platinum Member on Jan. 8, 2014 at 1:15 PM
Have you tried Aveeno for eczema?
BaltimoreBaby
by Gold Member on Jan. 8, 2014 at 1:22 PM

Yes. It's not eczema, but I've tried just about every lotion, diaper cream, corn starch, diaper, wipe and detergent on the market. I don't know. I'm just frustrated. Sorry. 

Quoting CampClan: Have you tried Aveeno for eczema?


Anonymous
by Anonymous 1 on Jan. 8, 2014 at 1:29 PM
Do you use disposables or cloth diapers? Sometimes babies are allergic to disposables. Ds broke out horribly with Luvs. A and D took care of it pretty quick though.
jeepygirl
by on Jan. 8, 2014 at 1:30 PM

Have you considered trying cloth diapers? My husband had an issue that was very similar to yours. His parents had to use cloth diapers. Might be worth a shot to try it. You can always use a service that brings the diapers to you rather than going out and buying everything to see if it helps any.

Anonymous
by Anonymous 2 on Jan. 8, 2014 at 1:31 PM
Cloth diapers and wipes
Livigirlsmom322
by Bronze Member on Jan. 8, 2014 at 1:32 PM
My dr told me to use athletes foot cream. Cleared her up in a couple hours.
BaltimoreBaby
by Gold Member on Jan. 8, 2014 at 1:33 PM

I use both disposables and cloth. There doesn't seem to be a correlation - I mean I don't think she's allergic to the diapers, cloth diapers, wipes or detergent because she only breaks out once every two weeks or once a month. And no amount of kind of cream makes the rash go away - the only thing that maybe helps that I've found is just plain old destin. But it doesn't seem to prevent the rash. Just maybe helps it heal a little faster. 

Quoting Anonymous: Do you use disposables or cloth diapers? Sometimes babies are allergic to disposables. Ds broke out horribly with Luvs. A and D took care of it pretty quick though.


BaltimoreBaby
by Gold Member on Jan. 8, 2014 at 1:34 PM

I use cloth and disposables. There doesn't seem to be a correlation between them. She still breaks out in cloth. I've changed detergents, too. No help. 

Quoting Anonymous: Cloth diapers and wipes


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