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heart defect in a baby?

Posted by on Jun. 29, 2014 at 4:58 PM
  • 65 Replies

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My daughter Jemmah is 7 weeks old. We have been in the hospital for 8 days, running tests and trying to figure things out. She has pulmonary stenosis, and is having issues with unexplained fevers, weight loss, trouble feeding, lethargy. We are still trying to figure out what the best course of action is. Has anyone gone through this? I love reading personal stories.
by on Jun. 29, 2014 at 4:58 PM
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Replies (1-10):
graybealgirl
by Platinum Member on Jun. 29, 2014 at 4:59 PM
No but I will pray things get better
kilahchaos
by on Jun. 29, 2014 at 5:00 PM
Thank you. Its hard to see my babe suffering.

Quoting graybealgirl: No but I will pray things get better
OwlNuggets
by HAIL NUGGY! on Jun. 29, 2014 at 5:01 PM

No....But she is gorgeous and I hope you get answers!

weeping_angel
by Don't Blink on Jun. 29, 2014 at 5:01 PM
Here's a bump girl!
Sisteract
by Gold Member on Jun. 29, 2014 at 5:02 PM

No, but I recently retired after 35 years of NICU and PICU nursing.

kilahchaos
by on Jun. 29, 2014 at 5:02 PM
Thank you! She truly is beautiful. The nurses all love her :)

Quoting OwlNuggets:

No....But she is gorgeous and I hope you get answers!

Ninjascreenname
by Gold Member on Jun. 29, 2014 at 5:02 PM
Yes. Have them look for a PDA and a tongue/lip tie. Was your sweet baby early?
Sisteract
by Gold Member on Jun. 29, 2014 at 5:03 PM

She looks pretty healthy. My GD is 10 weeks old and is roughly your daughter's size. GL :)

kilahchaos
by on Jun. 29, 2014 at 5:03 PM
Did you see a lot of babies with this defect?

Quoting Sisteract:

No, but I recently retired after 35 years of NICU and PICU nursing.

kilahchaos
by on Jun. 29, 2014 at 5:04 PM
She is 8 weeks tomorrow, and weighs 8.2. She lost 4oz last week :/

Quoting Sisteract:

She looks pretty healthy. My GD is 10 weeks old and is roughly your daughter's size. GL :)

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