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Mom Confessions Mom Confessions

my child could lose her hair

Posted by on Aug. 7, 2014 at 2:42 AM
  • 7 Replies
So my dd11 has a bone condition that isn't responding to any treatment. She's been on enbrel for 11 weeks now and the doctor said she should have improved by now.she was getting one 50mg injection subq every 7 days. Now they are putting her on methotrexate orally and rumicaid iv infusions. The pharmacist said this medication was used mainly in patients with cancer. He said she may lose her hair.

The biggest thing is they have her diagnosed with a condition and my gut instinct says this isn't what we are dealing with. I mean she's already been on 2 different treatments and 15 months later she's in the same condition as she was when we first started. It's so frustrating.

So. My question. If your child has ever lost her hair did you buy wigs? A scarf cover wouldn't work at all since it is so hot and humid where we live.
by on Aug. 7, 2014 at 2:42 AM
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Replies (1-7):
kirstn007
by Gold Member on Aug. 7, 2014 at 2:44 AM
Can u get a Referral to see a Different specialist or look yourself? Have u gotten a 2nd or 3rd opinion?
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3kidsmom357
by Bronze Member on Aug. 7, 2014 at 2:48 AM
This is the second. She was being seen at our local children's hospital and I demanded they refer is to Texas children's when they couldn't figure out what is going on. She's also had blood/bone/marrow sent to a world renowned pathology expert in Alabama. But that guy feeling is still there. All the guy in Alabama told us was no malignancies was found in the samples he was given.
cjsix
by Platinum Member on Aug. 7, 2014 at 2:48 AM

I saw a video where a lady with cancer showed how to take an old tshirt and cut it off under thearms straight across. She then put it over her head with the bottom seam at her forehead,fit it around her head,pulled in snug and twisted it around at the back near her neck and flipped the little loop left over the rest to make a bun. I know I'm probably not explaining very good but,it was cute and looked comfy.

3kidsmom357
by Bronze Member on Aug. 7, 2014 at 2:50 AM
Oh neat! I'll have to look on YouTube and see if I can find it. Thanks!

Quoting cjsix:

I saw a video where a lady with cancer showed how to take an old tshirt and cut it off under thearms straight across. She then put it over her head with the bottom seam at her forehead,fit it around her head,pulled in snug and twisted it around at the back near her neck and flipped the little loop left over the rest to make a bun. I know I'm probably not explaining very good but,it was cute and looked comfy.

Anonymous
by Anonymous 1 on Aug. 7, 2014 at 2:58 AM
I don't have hair advice, but I want to share a bit... A girl in DS's class (they're going into 6th) has been sick and has lost her hair over the past year. She had wigs for a while at first but found them uncomfortable, so she switched to scarves. By the end of last school year, she was proudly sporting her bare head all day, only covering at recess to protect from the sun. The other kids are wildly supportive of her!

Big hugs to you and your daughter.
cjsix
by Platinum Member on Aug. 7, 2014 at 3:04 AM

https://www.youtube.com/watch?v=D4gM7FmUe0M

This is the video that I had seen. If you go to this one you can look along the right side of the page and find others to watch also.

tinybluemoon
by Platinum Member on Aug. 7, 2014 at 3:07 AM

No, we have never brought wigs. Who cares? It is just hair, it grows back very quickly after treatment.

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