I have been trying to find answers for my husband since the doctors have not yet found any. He is 32 years old and for over a year now he has been rushed to the er 11 times, admitted 4 times, some doctors say TIA, others say migraine. He also deals with a variety of other health issues including high blood pressure, anxiety, depression, supposedly high cholesterol(it was slightly high so he was given meds for it) plus mthfr 1298 and 667 hetero, and FVL hetero which he is now taking warfarin for. He has been given topomax and doxepine for the migraines the topomax has jumped from 50mg/day to 400mg/day and yet all this medical intervention and he is still ending up in the er. Every test that has ever been done on him has come back normal except the last 2 EKG's which say possible septal infarct-abnormal ECG, tests include CT scans with/out contrast, MRI/MRA's, ECHO's, EEG's, sonogram of the carotid arteries, x-ray's of the chest, and blood work.
Every time time is symptoms are the same within varying degrees. Before an attack hits he looks drained, and just doesn't feel like himself, then he suddenly has right sided weakness/paralysis, slurred speech or not able to speak at all, and either a headache before or after every one. A few other symptoms that have occurred during some but not all attacks are face droop, blurred vision, confusion, numbness/tingling in his right arm/leg/face, hyperventilation, most times he doesn't remember what happened or how he got in the er other times he is conscious and aware of what is going on.
These attacks have all happened in different situations. Once he was standing making dinner, a few times we were just sitting at home, some times were out enjoying our day or running errands, plus there are times they have happened while he is at work. He has not went more than 3 months without an attack since June '13. He has been to multiple hospitals(including the Cleveland Clinic), and seen multiple neurologists. His GP has been very proactive in trying to help him but has yet to find a cause, he has been referred to a cardiologist(appt. this week) and he now has a hematologist thanks to this GP.
Please if anyone has personally dealt with this or knows someone who has tell me the outcome. I am looking into all possibilities as to what can cause these attacks to be happening and trying to rule out what its not hoping to find out what it is. In a year we have ruled out seizures, conversion disorder and the fact that it is not a neuro vascular problem. He has also been told its not ms(no testing done). The specialist from the Cleveland Clinic said it wasn't TIA's or migraines either, she was the one that suggested the conversion disorder but upon research and talking with his GP it has been ruled out.