Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

Mom Confessions Mom Confessions

Wouldn't you want answers too (long)

Anonymous
Posted by Anonymous
  • 65 Replies

I have been trying to find answers for my husband since the doctors have not yet found any. He is 32 years old and for over a year now he has been rushed to the er 11 times, admitted 4 times, some doctors say TIA, others say migraine. He also deals with a variety of other health issues including high blood pressure, anxiety, depression, supposedly high cholesterol(it was slightly high so he was given meds for it) plus mthfr 1298 and 667 hetero, and FVL hetero which he is now taking warfarin for. He has been given topomax and doxepine for the migraines the topomax has jumped from 50mg/day to 400mg/day and yet all this medical intervention and he is still ending up in the er. Every test that has ever been done on him has come back normal except the last 2 EKG's which say possible septal infarct-abnormal ECG, tests include CT scans with/out contrast, MRI/MRA's, ECHO's, EEG's, sonogram of the carotid arteries, x-ray's of the chest, and blood work.

Every time time is symptoms are the same within varying degrees. Before an attack hits he looks drained, and just doesn't feel like himself, then he suddenly has right sided weakness/paralysis, slurred speech or not able to speak at all, and either a headache before or after every one. A few other symptoms that have occurred during some but not all attacks are face droop, blurred vision, confusion, numbness/tingling in his right arm/leg/face, hyperventilation, most times he doesn't remember what happened or how he got in the er other times he is conscious and aware of what is going on.

These attacks have all happened in different situations. Once he was standing making dinner, a few times we were just sitting at home, some times were out enjoying our day or running errands, plus there are times they have happened while he is at work. He has not went more than 3 months without an attack since June '13. He has been to multiple hospitals(including the Cleveland Clinic), and seen multiple neurologists. His GP has been very proactive in trying to help him but has yet to find a cause, he has been referred to a cardiologist(appt. this week) and he now has a hematologist thanks to this GP.

Please if anyone has personally dealt with this or knows someone who has tell me the outcome. I am looking into all possibilities as to what can cause these attacks to be happening and trying to rule out what its not hoping to find out what it is. In a year we have ruled out seizures, conversion disorder and the fact that it is not a neuro vascular problem. He has also been told its not ms(no testing done). The specialist from the Cleveland Clinic said it wasn't TIA's or migraines either, she was the one that suggested the conversion disorder but upon research and talking with his GP it has been ruled out.

Posted by Anonymous on Aug. 13, 2014 at 12:05 PM
Add your quick reply below:
You must be a member to reply to this post.
Replies (1-10):
Anonymous
by Anonymous 1 - Original Poster on Aug. 13, 2014 at 12:32 PM

bump

nickysmom71
by Gold Member on Aug. 13, 2014 at 12:34 PM

Sounds like a stroke or maybe seizures - could be seizures now that I think about it.  I had a friend who had symptoms like that...they took 2 years to figure it out, but finally did.

Good luck!

 

slw123
by on Aug. 13, 2014 at 12:35 PM

Does he drink a lot of diet soda?  I have heard of people having very serious health problems linked to saccharine.  If he does drink it a lot, you might start looking in that direction.  Good luck!



KristaP13
by Silver Member on Aug. 13, 2014 at 12:35 PM

Here's a bump 

That sounds very scary :( I hope you can find some answers

Anonymous
by Anonymous 1 - Original Poster on Aug. 13, 2014 at 12:40 PM

Nope, only regular soda unless he's in the hospital then he has no choice but to drink diet. Thank you!

Quoting slw123:

Does he drink a lot of diet soda?  I have heard of people having very serious health problems linked to saccharine.  If he does drink it a lot, you might start looking in that direction.  Good luck!



j3st3r
by Jedi on Aug. 13, 2014 at 12:40 PM

I knew a kid with similar symptoms, but his were lifelong and severely impacted his development.  I believe his diagnosis was alternating hempoplegia  hemiplegia.  However, it is my understanding that it is a very rare diagnosis.

Anonymous
by Anonymous 1 - Original Poster on Aug. 13, 2014 at 12:43 PM

He had an EEG done last August and one done this past weekend both showed no signs of seizures, and every time they have looked for evidence of a stroke yet they have come up empty handed. I am just baffled anymore it doesn't seem to make any sense to me. Thank you! 

Quoting nickysmom71:

Sounds like a stroke or maybe seizures - could be seizures now that I think about it.  I had a friend who had symptoms like that...they took 2 years to figure it out, but finally did.

Good luck!



Anonymous
by Anonymous 1 - Original Poster on Aug. 13, 2014 at 12:54 PM

It has been very scary! I have had to learn how to communicate with him when he can't speak, and find ways to tell when its coming sometimes I can know days in advance other times I notice minutes before hand. Not to mention our boys are young and it scares me if we don't find the underlying cause he won't be around to see his boys grow up. :( 

Thanks for the bump!

Quoting KristaP13:

Here's a bump 

That sounds very scary :( I hope you can find some answers


Anonymous
by Anonymous 2 on Aug. 13, 2014 at 12:59 PM
2 moms liked this
Find a doctor or natural doctor in your area specializing in lyme disease, LLMD. Your regular dr will not recommend one. And, watch under my skin...its on youtube.
mom2girls0511
by Member on Aug. 13, 2014 at 1:04 PM
3 moms liked this
Next time he has an episode take a video with your phone and show it to the docs. Couldn't hurt anything.
Add your quick reply below:
You must be a member to reply to this post.
Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

close Join now to connect to
other members!
Connect with Facebook or Sign Up Using Email

Already Joined? LOG IN