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In honor of Rare Disease Day (2-28-15)

Posted by on Feb. 27, 2015 at 7:56 PM
  • 9 Replies
1 mom liked this

I am sharing this banner that was made for me...I will also include links for both of her conditions

Growth Hormone Deficiency

ehlers-danlos syndrome



by on Feb. 27, 2015 at 7:56 PM
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Replies (1-9):
complextrina
by Silver Member on Feb. 27, 2015 at 9:17 PM
1 mom liked this

Mobile Photo

We wore "jeans for genes" ribbons at work today. Happy to spread awareness!
RainbowPetals
by Platinum Member on Feb. 27, 2015 at 9:20 PM
That's cute!

Quoting complextrina:

Mobile Photo

We wore "jeans for genes" ribbons at work today. Happy to spread awareness!
Anonymous
by Anonymous 1 on Feb. 27, 2015 at 9:27 PM
1 mom liked this
((Hugs))
AnonyMinnie
by on Feb. 27, 2015 at 9:32 PM
1 mom liked this

I'll leave one here with an link for what is close to home for me, a pretty rare disease!

:)

http://www.cdc.gov/ncbddd/birthdefects/Gastroschisis.html

AnonyMinnie
by on Feb. 27, 2015 at 9:33 PM
1 mom liked this

Love the banner. It's always so good to spread more awareness about things. How is your Hannah?

AnonyMinnie
by on Feb. 27, 2015 at 9:37 PM

Bump!

Anonymous
by Anonymous 2 on Feb. 27, 2015 at 9:39 PM
1 mom liked this
Jeavons Syndrome.
theboyfactory
by on Feb. 27, 2015 at 9:44 PM
1 mom liked this
RainbowPetals
by Platinum Member on Feb. 27, 2015 at 9:56 PM
Thank you! She is doing pretty good, just having weight issues right now..thanks for asking!

Quoting AnonyMinnie:

Love the banner. It's always so good to spread more awareness about things. How is your Hannah?

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