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DD got her hair done...

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She loves it! She is so proud, haha...she feels like a big girl.

Now she can't wait to show it off at clinic!
by on Jan. 22, 2018 at 3:51 PM
Replies (241-250):
by Ruby Member on Jan. 25, 2018 at 10:41 PM


by Anonymous 44 on Jan. 26, 2018 at 12:41 AM

I can't say that I care for it.

by Anonymous 45 on Jan. 26, 2018 at 1:51 AM

Umm...Yeah no. She's adorable but the hair doesn't suit her.

by Love a tomb. on Jan. 26, 2018 at 5:06 AM
She looks great! You can see how happy her new do makes her
by Anonymous 46 on Jan. 26, 2018 at 5:09 AM
Well, I think her cheekies are adorable. Hugs!

Quoting LucyMom08: Thank you!

Quoting Peanuts1962: I dont know anything about you or your kid. No kid should have to go thru that. Im impressed with that smile! Im glad shes getting better.

Quoting LucyMom08: It was definitely intense! She has so many specialists watching her systems, because of that dose. She amazes me with what her body goes through, and her attitude. She's so relentlessly positive through it all!

Quoting Peanuts1962: 40 mgs every day for a year. Holy crap. Poor baby.

Quoting LucyMom08: Her dose is 5mg/ml, and she was on 3.8ml twice a day (I think that was around 40mg a day) less than 40lbs. She was on that for around a year! We did a modified wean, every other day. Now she's on 1.3ml 2x/day, every other day. We drop it by only 0.1ml a week, so very slow going!

Quoting Peanuts1962: Weaning from that shit sucks.

What dose was she on?

Quoting LucyMom08: Much! We've had to be extremely careful with her wean, because of her lungs and the fact that she only has one adrenal seems to be coming back 'online' very well, she has an endocrinology appointment tomorrow so fingers crossed!

Quoting Peanuts1962: Is the cushings getting better?

Quoting LucyMom08: I do too! Both of my girls have those perfect freckles over their nose like that, it's so cute :)

Quoting Peanuts1962: I do have to say, the puffy cheeks highlight her freckles. I love freckles.

Quoting LucyMom08: No, she's on homebound right now...she has no immune system, and keeps getting sick.

Quoting Peanuts1962: Is she able to attend school?

Quoting LucyMom08: She is 7! She definitely has her own sense of style, haha...she's determined when she picks out her clothes, she knows what she likes!

Quoting Peanuts1962: How old is she?

Gotta say, I am digging the shit out of those leggings.

Quoting LucyMom08: She also got bloated everywhere, and developed Cushing's. So she got the "hump" on the back of her shoulders as's mainly gone, minus the chipmunk cheeks! She is also down about 10 pounds, back to 40...

Quoting Peanuts1962: Has it only affected her cheeks?

They make me blow up like a marshmallow.

Quoting LucyMom08: Steroids! She's been on high dose steroids for long time...

Quoting Peanuts1962: I like the hair. The cheeks threw me off. Another poster mentioned meds. I was baffled.

Quoting LucyMom08: She looks so sassy, doesn't she? Haha...

Quoting Peanuts1962: Well.
by Bronze Member on Jan. 26, 2018 at 5:21 AM
She is beautiful & I love the hairstyle.
by Bronze Member on Jan. 26, 2018 at 5:21 AM
She is beautiful & I love the hairstyle.
by New Member on Jan. 27, 2018 at 10:06 AM

She looks damm cuet in the pciture.. She is so cute and much adorable...

by Anonymous 47 on Jan. 27, 2018 at 10:10 AM
I love it!!
by Diamond Member on Jan. 27, 2018 at 10:13 AM
She's so adorable
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