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More Spina Bifida information

Posted by on Oct. 23, 2013 at 1:50 PM
  • 18 Replies
1 mom liked this

Risk Factors Factors that increase the risk of spina bifida include:

Low maternal blood level of folic acid at the time of conception

Family history of spina bifida

A mother who had a previous pregnancy with a neural tube defect

Mother's race: Hispanic or Caucasian of European origin

Certain medications given during pregnancy

Gender: Girls are more likely to have spina bifida

by on Oct. 23, 2013 at 1:50 PM
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Replies (1-10):
Ednarooni160
by Eds on Oct. 23, 2013 at 1:52 PM

Thanks for the update.. : )  

Sat.Wed
by Bronze Member on Oct. 23, 2013 at 1:56 PM
1 mom liked this
Column by Pam Rasmussen: October is spina bifida awareness month
by Pam Rasmussen
Oct 18, 2013 | 1582 views | 0 0 comments | 29 29 recommendations | email to a friend | print
Pam Rasmussen
October is spina bifida awareness month. Although most of you probably don’t know a lot about the birth defect, it is the most common permanently disabling birth defect in the Unites States. Each day in the United States alone about eight children are born with the crippling birth defect.

What is spina bifida? Spina bifida literally means “split spine”. The spine does not close properly when the child is in the womb. The split can be anywhere along the spine and the level of the split determines the amount of paralysis or physical impairment the child will have. The lower the split along the spine the less physical disability and the higher the split the more disabling the condition will be.

Other medical conditions accompany the condition as well. About 80 percent of children born with spina bifida also have hydrocephalus. This is a condition where spinal fluid backs up into the brain because it cannot flow freely through the spinal canal due to the lesion. This condition is corrected by surgically placing a shunt or plastic tubing in the brain for drainage of the spinal fluid. The shunt normally drains into the abdominal cavity and is absorbed by the body.

Neurogenic bladder and difficulty with bowel control often accompanies spina bifida due to nerve damage along the spinal cord. This can be controlled by surgical procedures and bowel and bladder management programs along with medication.

Often children with spina bifida will have vision problems, curvature of the spine, learning and memory difficulties. They often go through numerous surgeries to correct orthopedic issues, shunt revisions and other related conditions. Medical equipment often involves braces, wheelchairs, prone standers, and adaptive equipment and furniture for the home and school or work.

What can be done to prevent spina bifida? Spina bifida is considered to be both a genetic and environmental issue. Women who are old enough to have babies should take folic acid before and during the first three months of pregnancy. Folic acid is a vitamin that the body needs to grow and be healthy. It is found in many foods, but the man-made form in pills is actually better absorbed by our bodies. Because half of the pregnancies in the United States are unplanned, the Spina Bifida Association asks women to take a vitamin with 400 mcg (0.4 mg) of folic acid each day during the years of their lives when they are possibly able to have children.

Having a child with spina bifida is challenging but with help, these children lead full lives. Most do well in school, and many play in sports and other fun activities. Because of today’s medicine, about 90 percent of babies born with spina bifida now live to be adults. They are truly a blessing because they teach us so much about determination, hard work, and about what’s important in life.

Resources: Spina Bifida Association of America, sbaa.org.

Pam Rasmussen lives in LaFayette. She is the mother of a son with Spina Bifida and is an advocate for adults and children with special needs. She can be reached at jraz1230@windstream.net.


Read more: CatWalkChatt - Column by Pam Rasmussen October is spina bifida awareness month

Sat.Wed
by Bronze Member on Oct. 23, 2013 at 2:35 PM

Sat.Wed
by Bronze Member on Oct. 23, 2013 at 2:36 PM

Sat.Wed
by Bronze Member on Oct. 23, 2013 at 2:40 PM

                                    This is one of the Kids!Camp at Conference

Sat.Wed
by Bronze Member on Oct. 24, 2013 at 2:33 AM

  this is about as close a picture I can find of what my daughters back looked like when she was born with out totally grossing anyone out to date she has had 3 MAJOR surigiers back closure, shunt placement, and vertical talus correction. she gets cathed every 3 hours except at night when we use a foley cath, she cannot control her bowel or bladder and she wears KAFO's to keep her legs strong

Sat.Wed
by Bronze Member on Oct. 24, 2013 at 2:36 AM


The KAFO is commonly used to treat symptoms due to spina bifida, cerebral palsy, paraplegia, polio, trauma or neuromuscular dystrophy. Different types of knee joint systems will be used for KAFO's depending on the patient's deformity. It could be a free knee joint for stability or a drop lock for knee control. However, in some cases a dial lock system is used for patients with knee flexion contracture.

AFO's are prescribed for the following diagnoses: Multiple Sclerosis, Stroke, Cerebral Palsy, Peroneal Nerve Damage, Charcot Marie Toothe, Peripheral Neuropathy.
The AFO helps to either prevent Drop Foot, Knee hyperextension, or provide ankle stability



Sat.Wed
by Bronze Member on Oct. 24, 2013 at 2:38 AM

  just make the color pink camo and this is what my daughter wears all day every day and will for the rest of her life (getting bigger ones as she grows)

JoJoBean8
by Silver Member on Oct. 24, 2013 at 10:40 AM

Here's a bump

marchantmom06
by Bronze Member on Oct. 24, 2013 at 10:43 AM
I'm so sorry your daughter has to face this. I didn't know SB month was October. You are a strong woman for doing what is best every day. I like the pink camo braces, a neighbor of ours had those.
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