Peter's anomaly/Peter's Plus Syndrome
Does anyone have a child with either of these disorders?
My 11 (almost 12) year old step-daughter was born with Peter's Plus Syndrome. There's very little known about the disorder, but a bit more research is coming out. Peter's Anomaly is more common, but they both effect the eyes the same.
We've been very lucky so far, as she has a minor case. She had bi-lateral corneal transplants at 2 and 4 weeks or age to save her vision. She gets her eyes checked every year and has to have a pressure check at each visit due to her very high risk of glaucoma. She wears glasses and with her glasses it's estimated that her vision is about 20/40.
She also had minor surgery to correct a lazy eye (which we believe was genetic rather than part of the disorder) a little over a year ago.