HI I just recently joined this group I was so happy thait I found a group like htis becuase my son has NF1 and I thought it would be great to meet other woman with a family member or herself who has it. But I'vbe noticed that nobody puts up any posts on here. I really need to vent now and so here goes. We just found out that one of my sons tumor in his brain are malignant its the first malignant one hes had since we found out he had samall lesions and tumors on his brain at the age of 3.So now he is going to have surgery to take it out and follow with another round of chemotherapy. This will be his 3rd. round of chemo. We do chemo every few years to shrink the tumors that can't be taken out of his brain. He has a tumor wrapped around his optic nerve endings that if we take out he will be blind for life. Im just so scared and stressed out now I try to be strong for him but its to hard. He is such a strong boy and always so happy. Im asking you all to please send prayers our way to help us get through this. I thank you in advance.
on Feb. 23, 2008 at 10:20 AM