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Natural Birth & Parenting Natural Birth & Parenting

newborn screening, how do you feel about it?

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ok so gave birth to twins when i was 7 months pregnant. Before they left the nicu, they were both given newborn screenings. (they polk the heel and fill in 5 circles with blood). Well my younger twin came back abnormal, and they wanted to retest. So i let them. The second test came out abnormal too.
Our pediatrician at the time wanted us to take her to a metabolic specialist. I refused. my baby had just spent the first 7 weeks of her life being polked and prodded and now im being told they want to run tests on her like a science experiment. Umm hell to the flippin NO!!! I was informed that she could just turn out to be short, or she could turn out to be mentally challanged. Helloooo im 4'11 with an overactive thyroid. Regardless I stuck to my guns, not to mention her twin sister, is an identical twin, who didnt have any abnormalities in her screening. Anywho BOTH twins are normal. I dont even think they are short. They may even get taller than me.

Fast forward to 09 when i had my youngest. her screen came back abnormal too. i didnt even blink an eye or bother to retest. This little girl is so smart. Shes just a little petite but shes growing like a weed. So yea honestly i really think thoes tests are just something doctors use to make extra money and are just useless. Anyone else experience this? What do you all think?
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by on Apr. 28, 2012 at 9:52 PM
Replies (11-20):
truealaskanmom
by on Apr. 29, 2012 at 3:32 AM

a lot of people dont do them because the govenment buys them and now has your baby's DNA, genetic profiling...

FebPenguins
by on Apr. 29, 2012 at 9:47 AM

The only screening that I am aware that my child had was the PKU. I feel that this small prick in the heel outweighs what could happen to baby if it is not diagnosed quick enough. I trust my midwife and she willingly comes to my home within 72 hrs to preform this test, after I have had time to nurse enough. The hospitals preform it immediately b/c after mom/baby leaves they genearally won't come back for the PKU test. Sad thing is, the test isn't accurate until so many (3/5) nursing sessions. At least that is my understanding of it.


TwoSugars
by on Apr. 29, 2012 at 9:55 AM
Newborn screening is the only routine procedure my midwife recommends and to me that says a lot. I believe the benefits outweigh the risks.
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Mrs.Salz
by on Apr. 29, 2012 at 11:08 AM

We don't do it because our state keeps samples of the baby's blood and DNA on file without informing parents that they do this.  There are a few other states that do this as well.



TheHare
by on Apr. 29, 2012 at 12:30 PM

What? They don't do that. None of it's even stored, the sample is used up by the test.

Quoting truealaskanmom:

a lot of people dont do them because the govenment buys them and now has your baby's DNA, genetic profiling...


melindabelcher
by on Apr. 29, 2012 at 12:38 PM
1 mom liked this
I have always and always will do it! Whats the risk of doing it? an incorrect abnormal that requires extra testing!?!? Whats the risk of not doing it? delayed diagnosis of a potentially manageable/treatable disease potentially causing permanent damage or death.
Sure it would be very inconvenient to have to go back for additional testing once or twice esp if it comes back that it was a false positive. But id rather that then have a fragile baby get very sick very fast from something that I could have been managing with simple diet etc.
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truealaskanmom
by on Apr. 29, 2012 at 5:24 PM


Quoting TheHare:

What? They don't do that. None of it's even stored, the sample is used up by the test.

Quoting truealaskanmom:

a lot of people dont do them because the govenment buys them and now has your baby's DNA, genetic profiling...


no the state gets the cards after the test with the blood still there, I'm not saying I am one of these people but I know quite a few 

Mrs.Salz
by on Apr. 29, 2012 at 9:40 PM

http://www.cchfreedom.org/pdf/CCHCpkunbsReport092408.pdf

http://www.cchfreedom.org/issue.php/14


Quoting TheHare:

What? They don't do that. None of it's even stored, the sample is used up by the test.

Quoting truealaskanmom:

a lot of people dont do them because the govenment buys them and now has your baby's DNA, genetic profiling...



Mommy2Phenley
by on Apr. 30, 2012 at 12:43 AM

I think it's a good thing. I would follow up if there were abnormal results. I believe in going natural where possible and in not interferring when it's unnecessary. But that doesn't mean everything doctors do is just them out to get you. Sometimes they really do know what they are doing! I have a friend who's son has a metabolic disorder. It was caught at his newborn screening. If they had refused follow up, he probably would not have seen his first birthday. His is a rare condition that makes him unable to fast for any length of time. He must eat every 2 hours to survive. Before newborn screening, this condition was often found at autopsy when the child would die in their sleep when they started sleeping through the night.

I hated having to have DD's foot pricked and she cried so much. They had a hard time getting enough drops out and had to poke her a second time. I didn't like doing it, but it's a much better alternative than finding out too late that there was something wrong that you could have fixed or addressed.

TrentsMom84
by Silver Member on Apr. 30, 2012 at 1:19 AM

The best thing you can do is take the time to do your own research on topics that come up in the doctor's office so you can understand all risks and benefits of certain procedures, tests, medications, etc.  Doctor's are human-they generally don't want to hurt someone but they also can fall into routines and/or make mistakes. 

Quoting amclark62:

I would have done the extra tests.  I'm not a doctor, and I don't want to make the decision not to do something for my child, especially if it is really needed.  I wouldn't be able to live with myself if I didn't do something that was suggested just because I didn't want to believe the doctor.  If that works for you, that is great- you are the mom and you know best, but if it were me, I would have listened to the doctor, no matter how much money it costs.  No amount of money can make a difference when it comes to the health of my children.


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