Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

Natural Birth & Parenting Natural Birth & Parenting

Formula needed to survive?

Posted by on Feb. 24, 2013 at 11:06 PM
  • 18 Replies

http://gma.yahoo.com/blogs/abc-blogs/three-old-boy-cant-eat-anything-running-time-120030414--abc-news-health.html

Three-Year-Old Boy Who Can't Eat Anything Is Running Out of Time

Michael Gonzalez is a 3-year-old Florida boy who apparently can't eat any normal foods, and his parents say they are in a panic.

Michael drinks 20 to 30 bottles of prescription-only formula daily called Neocate Junior. He can't eat apples or carrots or anything else that other kids his age eat, his mother, Jennifer Gonzalez, told ABC News affiliate KSTP.

But his predicament has gone from worrisome to alarming. Shortly after the formula maker, Nutricia, made changes to its packaging in August 2012, Michael suffered from severe vomiting and diarrhea, his parents say. Convinced that the company also changed the formula, his parents have hoarded containers full of older stock, but it's only safe to drink through October.

"That's not OK, to tell me that my son has an expiration date," Jennifer Gonzalez said.

Specialists have been examining Michael at the Mayo Clinic in Rochester, Minn., where the boy's parents took him two weeks ago to get help.

Michael has been diagnosed with Food Protein-Induced Enterocolitis Syndrome, his parents said. The syndrome is not uncommon and is usually associated with an intolerance for milk or soy in babies six months to a year old, said Dr. Wesley Burks, chair of the pediatrics department at the University of North Carolina. Parents realize there's a problem when their child gets diarrhea or vomits after feeding, he told ABC News.

It's very rare for a child with the syndrome to be unable to eat many other foods aside from milk or soy, he said.

PHOTOS: Medical Marvels

"Usually if you can't tolerate many foods, it's related to your bowel itself," said Burks, who has not treated Michael and did not comment on his case specifically. Most children grow out of the syndrome by age three to five, he added.

A child's food allergies cost her parents on average $4,000, mainly due to lost income as parents switch jobs or work less, ABCNews.com reported in December.

From birth, Michael wasn't like other babies, his parents said. He threw up after every feeding and his parents worried he'd starve.

"Babies are supposed to be happy. He wasn't. Every time you fed him, he got worse. He was mad," the boy's mother told KSTP.

Michael's parents discovered Neocate Junior when he was 11 months old, and it helped, they said - until the company changed the packaging.

A spokeswoman for Nutricia cited a statement posted to the company's website saying that the product formulation and ingredients for Neocate Junior Unflavored remained the same, though packaging graphics were redone in August. However, the company said it has received 14 similar complaints. Nutricia says it worked with the FDA to investigate the problem, and found that the formula recipe remained unchanged, said the spokeswoman, who asked not to be quoted by name.

The company released this statement about the case to ABCNews.com:

"We understand this is a challenging time for the Gonzalez family. We are connecting the family and their physician with the right clinical experts so they can partner on finding alternative nutritional solutions. This is in keeping with our mission to help provide nutritional solutions to children with very sensitive and specialized conditions."

While his parents wait for medical help, meanwhile, Michael continues to live in a world without regular food.

"He doesn't know what real juice tastes like, or real milk," said Jennifer Gonzalez.

by on Feb. 24, 2013 at 11:06 PM
Add your quick reply below:
You must be a member to reply to this post.
Replies (1-10):
VintageWife
by on Feb. 24, 2013 at 11:07 PM

Bless his heart :( I hope they're able to find something for him to take until he hopefully outgrows this!!!

peaches_04
by on Feb. 25, 2013 at 1:49 AM
Hope they find something:(
Posted on the NEW CafeMom Mobile
peaches_04
by on Feb. 25, 2013 at 1:50 AM
I wonder if he was intolerant to her bm or if they started on formula from the beginning
Posted on the NEW CafeMom Mobile
tabi_cat1023
by Group Mod - Tabitha on Feb. 25, 2013 at 7:50 AM
Poor baby, i read about this before and that people are hoarding the older kind if they can find it!
Posted on the NEW CafeMom Mobile
isaacsmommy68
by Member on Feb. 25, 2013 at 9:22 AM

My friends baby has this. Her formula cost $2000 per MONTH! It is Rx and her insurance will not pay unless the baby is tube fed! She is allergic to so many foods. They cannot get a specific diagnosis because she can eat some foods. She is 2 and still has to drink the formula.

VintageWife
by on Feb. 25, 2013 at 9:24 AM

Oh no! I hope she outgrows it! 

Quoting isaacsmommy68:

My friends baby has this. Her formula cost $2000 per MONTH! It is Rx and her insurance will not pay unless the baby is tube fed! She is allergic to so many foods. They cannot get a specific diagnosis because she can eat some foods. She is 2 and still has to drink the formula.

 

tansyflower
by on Feb. 25, 2013 at 11:35 AM

this is so sad, i know i signed a petition and wrote to the company asking them to change their forumla BACK to the original recipe! 

jconney80
by Group Mod on Feb. 25, 2013 at 4:18 PM
That's so sad! I wish there were more options for him. I wonder if he can drink donor breast milk?
Posted on CafeMom Mobile
jconney80
by Group Mod on Feb. 25, 2013 at 4:19 PM
Wow that's insane!

Quoting isaacsmommy68:

My friends baby has this. Her formula cost $2000 per MONTH! It is Rx and her insurance will not pay unless the baby is tube fed! She is allergic to so many foods. They cannot get a specific diagnosis because she can eat some foods. She is 2 and still has to drink the formula.

Posted on CafeMom Mobile
nicki.hemingway
by Bronze Member on Feb. 25, 2013 at 4:45 PM

My son was on this formula (he has multiple food allergies.  We have enough foods that we can feed him to not need it anymore. 

Add your quick reply below:
You must be a member to reply to this post.
Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

close Join now to connect to
other members!
Connect with Facebook or Sign Up Using Email

Already Joined? LOG IN