Okay so sissy went to the doctors nov 21st she had had a test for rhett syndrome and it came back that she might have it so they tested me and my husband and I had the same gene as sissy so they did an x inactivation study on me and sissy and im still waiting on the results. I know what rhettsyndrome is just not sure what to expect if she does have it. Does anyone have any advice for me i would really appreciate any advice
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on Dec. 5, 2008 at 11:51 AM
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by
Group Owner
on Dec. 5, 2008 at 2:19 PM
http://www.rettsyndrome.org
Here's a great website for information. They list treatment options also.
Hope this helps!
Love and support,
Angie/Logan's Mom & Group Owner
Angie/Logan's Mom & Group Owner
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- Sissys_momma
on Dec. 5, 2008 at 11:51 AM