please read- clubfoot survey responses needed

[jenmomof3]

Dear parents and guardians of kids with clubfoot,
In the fall of 2009, I posted links to a survey asking for parents' experiences with clubfoot from a 'quality of care' and 'quality of information' standpoint.  I received wonderful feedback from all corners of the globe and I was able to present really interesting findings to the group of international doctors who attended the Ponseti International Association meeting that coincided with the International Bone and Joint Decade conference in Washington DC in October 2009.
Dr. Morcuende was very excited about the data and asked to expand the number of responses in the hope of publishing the results in a medical journal.  I am hoping that everyone will be willing to take the survey to share your experiences with clubfoot care where you live.  We expect the full survey to take about 10-15 minutes of your time.

The survey is completely anonymous.  Your child does not have to have been treated with the Ponseti method to take this survey.  Expectant parents who know that their child has clubfoot can take the survey as well. 
We have added some additional questions from the original survey, so there is a separate link for people who took the survey in 2009 to take another survey with just the new questions added in 2011.  I know that there have been other surveys advertised in the past so to clear up any confusion, this particular survey was on Survey Gizmo and asked you questions like how many doctors you interviewed before seeking care, how far away you traveled for treatment, and what kind of information you received about clubfoot when your child was first diagnosed.  If this sounds familiar to you, please take the 'follow up' survey and not the full survey. 
We have a separate set of surveys for non-US families or for American families living abroad (who sought care outside of the US).  Please feel free to share the links with other clubfoot support groups as appropriate.
Thank you for your consideration in this matter.
Jennifer, mom to Kelly, 3-16-00, lcf

 

Full survey for US families:
https://uiowa.qualtrics.com/SE/?SID=SV_5hGSIGPTlfxVkuE

Short Follow-up for US families:
https://uiowa.qualtrics.com/SE/?SID=SV_9SJHc6uLfKRaiFK

Full survey for non-US families:
https://uiowa.qualtrics.com/SE/?SID=SV_6EHtRo7MMbcINla

Short Follow-up for non-US families:
https://uiowa.qualtrics.com/SE/?SID=SV_bHgofgncmEp08Ic

[witchyRina]

I just did it for the first time, I would have liked to be able to kind of tell the story of my son's treatment because it was/is so complicated but over all liked the survey. The first select a state does not have South Carolina as an option.

[jenmomof3]

Thanks so much!  I'll have them double check the list of states.

If you have feedback on how to make the questions better (more inclusive) let me know.  It's hard to not make the survey so long that people just won't take it.