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New Here

Posted by on Nov. 4, 2008 at 5:15 PM
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New to this group but I have been a long time member of the TS parents group on yahoo and I am sure there is some of use on both groups so some may know me here as well.

I am Crystal mom to Alana, Kaila and Donni.

Alana is my little girl with TS she is 6 1/2 and she also has Autism which is our main focus so TS kinda gets pushed to the back burner. She was diagnosed while I was pregnant and has most the of the classic signs and "symptoms". We discontinued growth hormone after 2 years of it. I am on myspace and plenty of pics there. some in my profile here too. www.myspace.com/crystal42683

Kaila is 4 (5 in december) and Donni is 10months (1 the same day Kaila turns 5!).

Any questions ask away!

by on Nov. 4, 2008 at 5:15 PM
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Replies (1-5):
GinaMac1
by on Nov. 5, 2008 at 10:03 PM

Hello Crystal.  I am part of a yahoo group for TS as well, but I never seem to have enough time for everything.  I looked at your myspace and you have beautiful pics of all your children. 

My mom was talking with a lady who's grand-daughter has TS and autism.  She said that many girls with TS have this and that I should have my daughter checked for it.  I have been chatting with many mommies and that doesn't seem to be the case.  Do you feel TS and Autism were just two separate things your daughter has or do you think they have to do with one another?  My daughter meets with a Developmental Specialist and is hitting all the developmental marks perfectly.  Just wondering.  I appreciate the feedback.

Take care  ~Gina~

Meggie4
by on Nov. 6, 2008 at 4:36 PM

Good question.  The more information we know the better.

Crystal42683
by New Member on Nov. 11, 2008 at 2:28 PM

Personally I think (and so do some doctors (skuse) say 200times more risk then typical kids, although controversial) the TS made her more at risk for Autism, then if she was a typical girl. I do think that other factors play into it as well. One tidbit any girls with TS and Autism that have been tested have shown the one X they do have came from their mothers. Alana has never been tested to find out the origin of her x but I am betting like the others with autism it is a maternal x. Here is some studies/articles everyone may find interesting.

http://www.newscientist.com/article/dn4145-sex-chromosome-clue-to-autism.html

http://autisticconjectureoftheday.blogspot.com/2005/10/sex-linked-intelligence-and-autism.html

http://sfari.org/news/seeking-genes-that-protect-from-autism

http://books.google.com/books?id=jlYUi-f5bnIC&pg=PA27&lpg=PA27&dq=turner+syndrome+and+autism&source=web&ots=JUb7bPPjnH&sig=yhDqE2CTfoz1joborreMN-6tRCo&hl=en&sa=X&oi=book_result&resnum=2&ct=result

 

Pinkypetite
by Member on Nov. 12, 2008 at 2:37 PM

I have found that TS is souch a diverse, complicated problem (or as I look at it, a blessing). I have been told, and read, so many different things. I am lucky enough to not have had many of the problems I have read about. I feel very fortunate to be the person I am and have led the life I have!

Holly

RachieAnn
by Member on Nov. 14, 2008 at 12:01 AM

wow, that is so interesting!  amazing actually. 

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