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MPS AND WHAT IS DOES.

Posted by on May. 15, 2008 at 1:55 PM
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May 15th, 2008
National MPS Awareness Day!

Our three beautiful girls, Abeerah Beg, 11 year old, Khansa,10 years old and Zahra is 7 years old.  They were diagnose with a rare genetic disorder, Mucopolysaccharidosis or MPS type 3 by age 3.

MPS disorders are genetic disorders that limit the body's ability to produce certain enzymes needed for metabolizing complex sugar molecules. These diseases are progressive and cause cellular damage which severely diminishes quality of life and dramatically shortens the lifespan of those affected.

Please join us in celebrating National MPS Awareness Day. Please wear purple and/or your purple ribbon proudly in honor of the COURAGE children with MPS disorders, like Beg girls.

There is an Awareness Day slideshow that a  friend of ours made to help people understand more about MPS disorders. She has posted the video on her You Tube account. Please help us make the Awareness 2008 video one of the featured videos on You Tube this week by taking the time to watch it! Here is the link:
http://www.youtube.com/watch?v=W7VKAhIWpPM



For more information on MPS disorders, Please visit:
www.mpssociety.org

To visit Our Daughters' website, go to:
http://www.helpourgirls.com/

To visit Our Daughters' Journal, go to:
http://www.caringbridge.org/nj/helpourgirls/
Please sign the guestbook and let us know that you took the time to visit us today.


One last request: Please forward this... to everyone and anyone. There are more children out there with a similar diagnosis, and unfortunately there are more to come. One of our family's challenges has been having to explain over and over again what MPS is and what it does. If we can make people aware of rare disorders like MPS, it will make a difference.
by on May. 15, 2008 at 1:55 PM
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