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new heere and i have Partial Complex not sure how to deal HELP!

Posted by on Mar. 3, 2009 at 11:32 AM
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My name is Kritterz aka Kristen or just lady, I was in a car accident about 3 yrs ago and it was bad i had a broken ankle 8 broken ribs my hip was broken my knee cap shattered my back is no longer stright like it should be, I was kept out of work for almost 6 months to recover.. 3 yrs later i learn i also got a little "gift" from the accident I have Partial Complex seizures, i know its not the worst thing in the world and compared to a grand mal it's small patatos,but it's scary, Im not allowed to drve till it's under control my job is 2 hrs away from where i live so i can't work right now. so once again my career has been put on hold not to mention we lost half of our monthly income, My doctors are still playing wit hthe doseage of the pills to find something that works for me.  I have also had a cold for the last 2 weeks which doesn't seem to be helping things at all in fact it seems when i get sick they get worse!  I have found i get my wrods  very jumbled up and sometimes have a hard time talking or just doing simple things... Im 28 years old and i feel like i can't multi task like i used too.  My 6 yr has had to learn to look for signs of seizures so he can tell someone, my world has been flipped upside down, im scared and feel very alone.. everyone i talk to tells me the first year is the wrost and it gets better.... We have had to put my son from his school cuz it's a private school an we can't afford the 1,000 dollars a month right now.  I am starting to learn my warning signs which i guess is good.  

 For a while i heard horrible voices that would tell me soo many dark things..... i was always able to control them. but it's scary. Ill just all the sudden not be there and then i come too a minute later and my fam is there and im like ummm hi?  what happen..  then they tell me and i had a seizure...

 

Im very scared and im sorry if im whining... but  for the most part i have had a pretty healthy life and im just not sure how to deal.

 

I feel like im just suppose to give up.. go crawl in a hole and died.... or like that accident already killed me ill never be the same again...

 

my family has a sick sense of humor and how i deal is i joke alot about it... please don't take my joke as i dont take it serious it's just if i take it Serious alll the time... I will kill myself!

Mrs. Kritterz being driven Crazy since 4/28/02 by my angel face and Married to my Jerbear since 4/13/2007, Lovin my guys.

Posted by on Mar. 3, 2009 at 11:32 AM
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leifsmom
by on Mar. 4, 2009 at 11:03 AM

Try not to worry too much.  Sorry you are going through such a stressful time.  I had the luck of getting diagnosed with epilepsy when I was 12yrs old, so I never really had any problems that affected my daily life, thank goodness.  And I have grand mal seizures.  I had 2 prior to diagnosis and one when my son was 5wks old (he's now 20mo). 

So, good luck, try to be strong, and you will get through it.

Steph - mom to Leif, my beautiful blond haired, blue eyed boyin loveboy on a swing

powwowmommy
by on Mar. 4, 2009 at 3:57 PM

  i cant tell you not to worry  because ive had epilepsy since birth i have grand mal and petti mal and i constantly find myself in funks or in worry but you just have to learn to let it go to allow yourself to relax and know that no matter what happens you will come through stronger for it  i am 24 and have never been able to drive and for a big chunk of my teenage years when my seizures flared with a vengance my mom would sit close to the bathroom door when i was showering and would ask me not to lock the door i have had a hard way to go with my seizures many meds and combos of meds many neuros who poke prod and test ive had so much glue put on my head for eegs i think i could glue the moon securly to the earth but i look at my epilepsy as a blessing because i wouldnt be me without them just take time to breathe its not the end of the world just a new path in life  you will be ok and like with most people they may just go away  you will be ok just  try not to let it control you you take control

 take care

 beth

MrsRStewart
by Member on Mar. 24, 2009 at 1:54 PM

What you need to do is make sure to take time just for yourself.  Take a deep breath.  Eat some cheesecake and drink some coffee.  The Bible says that God is just and will never give us anything that is too great for us to handle, even though somethings it might feel like it.  So the fact that you have this now means that you have the strength to get through it.  Besides, you need to; you have a family that needs you.  My father told me that suicide was the most selfish thing a person could ever do because the person was only thinking of themself.  Not of the people they were leaving behind.  I am not sure if you were serious about you statement or not, but you do have a family to think about. 

Sometimes it takes a long time for the medicine to get right.  Hopefully the doctors will get it right soon.  As far as those voices, you need to be honest with the doctors about that and not joke about it,  Esp. if these voices are telling you to do bad things.  Joking about it will not help anything,

I will be praying for you.

JoshOurPumpkin
by New Member on Nov. 12, 2009 at 9:45 PM

Hi There, Kritterz

I've had epilepsy since birth and I'm still not used to it. I grew up in a family totally in denial and even at forty years of age, I can't use the "E" word around them. Even as a youth, I discovered little by little people who weren't afraid to be around me and they became my support group. My most common seizures are complex partials, which are scary at times. My husband has been the first person in my life to tell me what my seizures look like and what I do during the seizure, which is a big help. I've been on every AED out there (literally) & I've had the VNS for seven years now and things still aren't under control. It's frustrating to think I spent four years in college for what? With the first seizure at every job, I get fired. I've had to get in good shape because I haven't been able to drive for a good decade now. But, over all, I turn to the people who have proven to be supportive toward me. There are some days, like with my catamenials (the seizures before my period) where I just want to give up. But then, our two year old comes up to me and gives me a kiss or two, and I get my reminder. Everyone said, don't have kids because of my E. Everyone said it couldn't be done..... Yeah, we've been pregnant five times & only have one son to show for it. But, he's my reminder when I feel my worst, I have to hang on, because I know a day of seizing hasn't killed me yet. Which means, the next day, I can look back and and say, "I'm stronger for it and my family's still here". My motto for life has become "Carpe Diem" and on my good days I work on my site www.epilepsy-navigator.com I've found that keeping busy when I'm not feeling like garbage and keeping the faith that tomorrow's going to come is the best thing to do. I'll definitely keep you in my prayers!

Joshua's Mom

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