Introductions

Replies:

• 
• by
  • quijada
  on Aug. 15, 2008 at 1:55 AM

• HI EVERYONE IM NEW TO THE GROUP SO LET ME TELL YOU ABOUT MYSELF.I HAVE A  4 YEAR OLD SON WITH AUTISM . WE DO RDI AND I LOVE IT . WE HAVE BEEN DOING RDI ABOUT 3 MONTHS. IM FROM LAS VEGAS  WE DON'T HAVE ALOT OF  RESOURCES WERE VERY LIMITED. IV'E JUST STARTED THE GFCF DIET  IT IS VERY HARD FOR MY SON HE IS REFUSEING ALL THE FOODS THAT I OFFER HIM .IT'S VERY HARD TO SEE HIM NOT WANT TO EAT IM SCARIED ABOUT HIM LOSING WEIGHT.IF  ANYONE AS ANY COMMENTS ABOUT GFCF DIET  PLEASE SEND REPLYS I NEED HELP. THANK YOU MAUREEN

• 
• by
  • LynnMarieK
  on Aug. 25, 2008 at 5:44 PM

• Hello All~

  I have recently stumbled along cafemom and I am hoping that it will continue to expand my knowledge and ability to do my job better.

  I have two great little girls, Madison age 5 with autism, and Natalie age 7 and neurotypical. I have taken over the Leadership of the local county Autism Society and I will admit that I never know all the answers. So I am on the web every night after the kiddos go to bed trying to find out more.

  So if anyone has any suggestiosn for social activities, workshops, guest speakers (free/cheap) please let me know your ideas. I will never stop learning... Or getting ideas from others.

  Thanks for letting me be a part of this group.

  LynnMarie

• 
• by
  • mousireid
  on Sep. 6, 2008 at 11:27 PM

• Hi

  I jus found your website, I feel like the blind leading the blind!  I think I just need someone to share with, Ifeel very alone and nvigating this process is frustrating to say the least.

  My husband is currently deployed to Iraq, I am working childcare from home with a 3 year old daughter and a 7 yea old son who has finally been diagnosed with ASD and PDD.  Now they put him on medicine for ADHD pateients and want me referred to UCLA.  This means we redo the whole process.  The school has been pretty helpful and is now working on an IED but want to know the results from UCLA of course.  I just want my star to shine.

  I am feeling a range of emotions right now, relief at the diagnosis and yet sadness.  I feel lost and alone.  I feel scared that I may make the wrong choices for him.  I do not know what I am supposed to be doing. 

  His is academicsare great but his social and emotionalare rough and now itsbecoming more and more obvious.  How can I help my beautiful, poetic, quirky and passionate boy?

  Sorry, I am having a bad day :(

   

   

• 
• by
  • hmschlmom6
  on Sep. 27, 2008 at 10:20 AM

• Hi, my name is Julie.  My hubby and I have 6 children  14, 13, 10, 8, 4, and 3.  We have  a DD 10 who is high functioning autistic, and DS 4 that is also high functioning and has suffered from mild CP and FAS. (he is my nephew we adopted)

  We live in Ohio. I have been looking for a group to join. I am glad to hear others have the same struggles and triumphs that we do. Our DD looks "normal" so when she has outbursts (or clams up) people don't  believe there is anything wrong with her other than she is spoiled.

  We are a gluten and casien free family-

  Hope to make many friends here!

• 
• by
  • Art4Autism
  on Oct. 23, 2008 at 4:35 PM

• I copied and pasted this from my site because i am a bit lazy today.   

  In 2006 Casey our oldest child had a muscle biopsy which confirmed he had Mitochondrial Disease. The type has yet to be identified. Months later we had our other two boys checked and they too have mito. Mitochondrial Disease can cause many neurological issues such as seizures, autism, temperature problems, mood disorders, muscle weakness and fatigue, among many other issues. Casey has recently be diagnosed with Aspergers and Evan with High Functioning autism. Casey and Max our youngest child both suffer from seizures. We are amazed that Casey's Mito is the most severe because he is very gifted. Neurologically the Mitochondrial Disease and seizures haven't affected his IQ yet. We have found many other bright traits the boys have regardless of their disease. There is still so much the medical world doesn't know about mito. Everyday research is taking place trying to figure out how to cure this progressive disease. No one mito case is the same. Everyone is affected differently, which makes the disease even harder to understand. We don't know exactly how bad things will get with the boys, we pray things will stay as they are or get better but we have learned to take life day by day.

  Art4Autism

  http://www.cafepress.com/KimDeanArt

  www.kimdean.com

• 
• by
  • robot6mom
  on Dec. 18, 2008 at 6:42 PM

• hi im karen and i have a son with asperger he is in the 4th grade and is 9 years old we live in minnesota and we have 3 dogs 1 cat and 1 bird and my daughter is 23 years old and my husband works for the state and im a stay at home mom

  

• 
• by
  • MyAutiInsights
  on Dec. 24, 2008 at 3:33 PM

• Hi, I'm Andrea.  I have 2 kids 5 and 7.  My son (7) has been diagnosed with Asperger's and is borderline for ADHD.  He is in a special ed. class , not on medication.  He loves Pokemon.  Looking forward to the group.
  

  ~Andrea

  http://autisminsights.today.com
  

• 
• by
  • 1stimemommy06
  on Feb. 25, 2009 at 11:29 PM

• hi my nasme is lisa and i have a lil bit of information and i am trying to find out if my son has a form or austism or aspergers.

   

   

  My son is name Chrystopher and he is only 2, But from what i understand from a friend that comes over its possible that may son may has aspergers symdrome. He makes weird out of the ordinary sounds, he drags his head on the floor, very picky on what he eats and does.. We think its possible O.C.D, but not sure just for the record. He also has to make sure everything is in the prder he sees it, like for instance the stairs, the kids and the adults, place their shoes there and if they are not in the right place or in the right postion he will stop what he stop what he is doing and fixes them. If we come in from outside, before he even gets his jacket off he will stop at the stairs and fix the shoes, the worries about his. same thing happens at the doctors office, i took him to his plastic surgeron for his lip and if something was out of place he would fix it, and he doesnt know what they are or what not, but there were brochures that were out of place and he put them back where they go, and so forth
  
  so please any advice is helpful
  

  

  

  
                                     Mary Lisa- Group Member

  

• 
• by
  • mousireid
  on Apr. 1, 2009 at 10:39 AM

• Can I ask what side effects you saw with Risperdal?  My son is on it and I am concerned of course and if there is something better I love hearing about it!

• 
• by
  • amblessedwith2
  on Apr. 6, 2009 at 7:30 PM

• Hi everyone!  My name is Maria.  I have been in the special education field for about 15 years and just recently resigned as a special ed teacher to be a stay at home mom.  I have a daughter who is 5 and a son who is 2.  It was a very difficult decision for me, but my family comes first, and I needed to be home to help my son.  He is a "quirky kid" and has been since the day he was born.  I feel blessed to have the background that I do because I had the ability to help him from day one.  He has no official diagnosis, but that no longer bothers me.  Now that I am home I see him improving everyday.

  I still miss my job, so I am hoping that I can help others here in this group.  I have a lot of resources that I can share and will be posting (whenever I get them all unpacked!)  Nice to meet all of you!

  

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