Getting control back of your life

[littlespirit]

Get involved: take an active role in your own recovery

How?  don't expect everyone else to provide you with the answers/treatment

learn all you can and become proactive in trying different things that may help you feel better

become involved again in things you did before fibro, even if only for small amounts of time

get off the couch or out of bed, force yourself to go places and do things--you need to stay involved in daily life on a daily basis, if even for a short while and then you can go home and rest

These things require you to be firm with yourself and force yourself sometimes.  There is nothing wrong with that.  Staying active in life will keep you active in life.  For every day that you lose mobility, that is one less day of mobility you will have at the end of your life.

As the old Nike slogan says, Just do it.

[jonnyveesmomma]

The sentence "For everyday that you lose mobility, that is one less day of mobility you will have at the end of your life. "

That is a strong statement. I believe with me, the word phrase ;'choose to lose' has to be put in there. Sometimes I go way too easy on myself and just give in, or even, use my achey painey whiney  ways...to stay on the couch or not go out with my husband, or play with my kid or whatever the case may be. I think this applies to me in a way that I have to really look at. I feel I have countless times decided to not do this or that just simply because I wanted to be able to cop out of a situation. Sure there are times that I just cannot...that is different but in my dealings with this condition, I think I may sometimes feel it's just easier to disconnect and that scares me!!

So with that said...I feel I have to remember this..not hide in my condition and not substantiate my not wanting to do something out of laziness or self pity or even low self esteem.

After all, I'm trying to rebuild my life here, and that cannot be done from the couch and the sun cannot be found in the darkness of my bleak mindset. I have to take some chances and also keep in mind that I can do them slower, smaller, or even, half-assed, as long as I try!!

This post was inspirational.

[CharityRejoices]

everyone has to find what works for them.  what may work for one may not work for another and vice versa. 

[littlespirit]

Don't misunderstand me here, I have had many, many, many days where I have stayed in bed and life went on without me, especially in the first 3 years. When the pain is that bad, well, I just stay in bed. But I'm really talking about when you are at the place where you want to regain your life back. That's when you have to really work at it, just like jonnyveesmomma described. Everyday I still fight the temptation to stay in the house because it's too cold (or whatever I'm telling myself at the time) and today I actually missed a fun halloween neighborhood party because of that very thing. I don't want to watch my life or my kid's lives go by. I want to experience it. So that is why I will pull myself out of bed to go trick or treating. I appreciate what you said jonnyveesmomma.

Laurie

[sacdp29]

Thank you for posting this.  Its just nice to read about something I understand.  I really try to push myself sometimes.  There are things I need to do around the house, but I know that I will regret it.  So sometimes I just say "forget it" and then I get aggravated at myself.  I feel lazy, even if I'm hurting and have a good reason.

I have a 3 year old granddaughter who loves to come see "Mamaw & Pap".  We love having her but I'm worn out the day after she leaves.  Last weekend, I went to a nearby Trick or Treat night at local park campsite.  I walked for 2 hours with my daughter and granddaughter.  I ended up going back to the car cause I was hurting so bad, but at least I got to spend some time with my girls.

Again thanks, it was inspiring to read.

[sacdp29]

Here is me and granddaughter at the Trick or Treat night I spoke of in my previous post:

[fern624]

 All of this is true...I know its harder said then but start out slow then dont over do it...(((HUGS)))fern

[psych_mom]

This is very true... There comes a point where we have to decide if Fibro is going to control us or if we are going to control it and take back our lives. For me, that point was last November and I decided that I was tired of it and all the chemicals that were being pushed at me. I took control through diet and exercise and I'm so thankful that it worked for me.

Quoting littlespirit:

Don't misunderstand me here, I have had many, many, many days where I have stayed in bed and life went on without me, especially in the first 3 years. When the pain is that bad, well, I just stay in bed. But I'm really talking about when you are at the place where you want to regain your life back. That's when you have to really work at it, just like jonnyveesmomma described. Everyday I still fight the temptation to stay in the house because it's too cold (or whatever I'm telling myself at the time) and today I actually missed a fun halloween neighborhood party because of that very thing. I don't want to watch my life or my kid's lives go by. I want to experience it. So that is why I will pull myself out of bed to go trick or treating. I appreciate what you said jonnyveesmomma.

Laurie