There are no words for how upset I am right now. I don't wanna hear about how I need to be positive or "think happy thoughts." I can imagine that I'm wealthy all day but it won't put a dime in my pocket and "visualizing" myself well will help me about half THAT much. I'm so sick of spending money that I need... that my family needs... going to doctors just to have them send me to someone else. I should not have to take medicines that will make me gain weight or make me so sleepy that I can't be a functioning wife/mother just to make a doctor happy. I have $5000 in medical bills from a hospital visit that found NOTHING wrong neurologically...I saw a neurologist today b/c my rheumatologist told me that she doesn't know what to do since I haven't found any relief with the Fibro "lineup" (Effexor, Cymbalta, Lyrica, Savella, yadda, yadda...) I'm in so much pain that I'm in tears sitting here and I hate this. It's not fair that I'm supposed to live with pain and suffer just because I pulled the short straw. I've been on all of the above meds and then some. I've fallen asleep at the wheel after Neurontin.... cried all day while nothing was wrong b/c of Flexeril (Yes, flexeril). I really do NOW understand why people choose not to procede with a compromised quality of life. My plight is NOTHING compared to what many people go through... but my husband is ready for me to get the kids ready for service and I'm toasted after picking the kids up and having a doctor's appt. I still have dinner to make, HW to help wtih and baths to give... and all that I can do is sit here and wish that there was some relief in sight. No one wants to hear that I'm hurting..."no one" meaning my mom and hubby who are the only ones that I talk to about it at all. And I don't even wanna do that anymore. I"m over it.... Really just over it.... Sorry for kvetching but I'm just livid... and hurt.
Thank you for hearing me and being so understanding. I'm just BEYOND over it. In desperation, I split a Flexeril in half and took it in hopes of being able to "press on" and we made it to service... However, I was nodding off the whole time... How embarrassing!! And I woke up t his morning incredibly dizzy and completely unaware and unable to figure out what day it is until I sat and just thought about it for a few minutes. I WISH that I responded well to the meds but I just don't.... It means the world to me that you read all of this and reached out. Thanks so much!!!
Hey little lady I DEARLY UNDERSTAND!!!!...I dont drive at all becauase of the meds make me sleeply and I have had 2 wrecks...I cry alot to even more now cause they believe that fibro is the reason i'm having to have back surgery on the 7th on my lower back they have some verbraters to fix.....
Please feel free to come in here ANYTIME to vent and cry thats what we are here for!!...We are here to leason and no you dont have to be happy and fake that your not in pain... We all here understand and are willing to leason to everything you have to say... So Thank You for sharing with us cause it really helps others....
I do lay in bed days at a time and just cry.....(((HUGS))))fern
I am so sorry nothing has seemed to work for you. Has anyone checked your Vit. D levels mine were so low but since I've gotten them around normal my pain has eased some.
I had to ask to have it checked and was put on prescribtion meds. 50,000 units once a week. I was also taking Calcium + D and a Vit. D recommended by my rheumy. doctor. It took a "long" time at least a couple of years before my number was barely normal so you have to keep bringing it up to your doctors. My B-12 was also below normal.
These things may not be anything to do with you but it doesn't hurt to ask.
I so know how you feel I take over 20+ meds each day plus I'm diabetic. I hate being overweight and like you I feel the meds and pain that causes lack of exercise to be the "main" reason not that I eat too muc.
Vent away we understand.
Thanks so much for listening. Oddly enough, of all the things that I'd like to do, crying is at the very top and I can't. I think it's the Paxil. I just can't cry. I feel the need to but it won't physically happen. Plus, it stresses my DH out when I cry... even when I warn him in advance and let him know that it's not him and that I just need to "air it out." It's so nice to come here and be understood.
Quoting fern624:Hey little lady I DEARLY UNDERSTAND!!!!...I dont drive at all becauase of the meds make me sleeply and I have had 2 wrecks...I cry alot to even more now cause they believe that fibro is the reason i'm having to have back surgery on the 7th on my lower back they have some verbraters to fix.....
Please feel free to come in here ANYTIME to vent and cry thats what we are here for!!...We are here to leason and no you dont have to be happy and fake that your not in pain... We all here understand and are willing to leason to everything you have to say... So Thank You for sharing with us cause it really helps others....
I do lay in bed days at a time and just cry.....(((HUGS))))fern
You know, that's a great idea. If nothing else, I need to find out if those have been checked since every doctor (GP, rheumatologist, neurologist) has done bloodwork. Thanks for the idea! It certainly can't hurt. Some days, I just need a place where I can say something and not get that blank stare back... LOL Thanks so much!!! And I eat like a bird, literally.. I've done calorie counting since I was 14 but just taking Paxil seemed to add about 10 lbs. UGH!! I already feel like a crappy mom and wife... adding FAT to that is NOT what I want. Thanks for hearing me and being there!
Quoting deedon:I am so sorry nothing has seemed to work for you. Has anyone checked your Vit. D levels mine were so low but since I've gotten them around normal my pain has eased some.
I had to ask to have it checked and was put on prescribtion meds. 50,000 units once a week. I was also taking Calcium + D and a Vit. D recommended by my rheumy. doctor. It took a "long" time at least a couple of years before my number was barely normal so you have to keep bringing it up to your doctors. My B-12 was also below normal.
These things may not be anything to do with you but it doesn't hurt to ask.
I so know how you feel I take over 20+ meds each day plus I'm diabetic. I hate being overweight and like you I feel the meds and pain that causes lack of exercise to be the "main" reason not that I eat too muc.
Vent away we understand.
Know what you mean I cry realy hard when i cant get to my computer cause I feel i'm letting you all down...Plus a crappy mom, wife, and Grandma to 2 special...Yea i forgot about that I have to take extra D & I give myself vit B shot prescription...Thanks for bring that up i forgot about that...(((HUGS))) love and prayers fern
Dear friend, I have been there, spent the money, and have even taken meds that made me unable to cry when that's all I wanted to do. I have just continued trying doctors and meds until I found something that would help, but I am still in pain every day. I have learned to cope and carry on with life as I am able while resting and giving myself the breaks I need when I need them. It has been five years since I was diagnosed-my kids were 2 and 4 at the time. I went from being busy and fulfilled and happy to a complete halt with overwhelming fatigue and pain. This is something that you have to take one day at a time. I learned that early on-it was far too stressful to look beyond today or tomorrow. I simply didn't know how I could cope with life beyond that. So many stressors, so many things to deal with, so many ways it affects you and your family-God has helped me deal with each thing one day at a time. Sometimes He provided through a medicine, or friend, or Scripture, or new form of treatment, but mostly He has taught me to come to Him in prayer daily and read the Bible for strength, and to take things one day at a time. Please message me if you'd like to talk more. There is hope for the road you are on.
Gentle hugs,
Laurie
Anyone on Nucynta ER?
- genabella
on Feb. 2, 2012 at 6:55 PM