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Please use this post to introduce yourself.  Put your name, age, when you were diagnosed with your disorder, or whatever you want to put so we get to know you.

by on Mar. 14, 2007 at 1:58 PM
Replies (121-127):
Bean0604
by on Oct. 20, 2008 at 11:39 AM

I haven't had a chance to research Enbrel yet, but I've been using dermasmoothe every day for a couple weeks now with no change. I'm really frustrated at this point! I'm nervous about the Enbrel but am really really sick of using dermasmoothe every night! Grr,..

Quoting TomsMom:

I wasn't sure about the light treatment for the scalp.  My husband has it on his scalp too and I believe that our derm told him he could get the injections there too.  I have to talk him into making an appointment soon (he's the worst procrastinator).  I would ask about the injections for your torso though, I have both plaque and guttate psoriasis mostly on my knees and elbows (with lots of little and medium spots on my legs, arms and hands.  The injections work really well for the large plaques but only a little bit on the guttate spots.  My derm says that the guttate tends to flare up whenever I'm sick (which has been a lot since I had my son).  I started taking a vitamin C supplement a couple of months ago and I haven't been sick since so I'm hopeful that it will cut down on the flaring. 

Quoting Bean0604:

See my dr. said the light treatment wasn't an option because it's on my scalp and since I have hair it wouldn't work :( I'm just SO sick of using the topicals! I was using Clobetasol for a little while but it burned so I quit using it....

So are the kenalog injections only for the torso area?? It's actually not TOO bad on my torso, but it's embarassing enough that I haven't had a relationship since it's shown up there a little over a year ago....I have it the worst on my scalp it gets REALLY thick and flaky if I don't use the dermasmoothe every single day.

But I'm definitely going to research Enbrel now, I'm not married, but when I do get married I plan on having more children, so if that affects having children at all then it's not an option for me. Thank you for the information!

Quoting TomsMom:

Welcome to the group Tina.  I know, I hate having to use the topicals twice a day.  It's so time consuming and messy.  Right now I'm on Taclonex but I've done the Dovanex/Clobetasol mix, protopic (which I still use for my ears) and a slew of other topicals over the years.  I don't know if you've researched Enbrel or not but there are some serious side effects to the meds that give me pause.  My derm told me that she wouldn't even consider it for me until I was sure that I was done having kids and that all other treatments were exhausted.  Have you tried the light therapy?  I haven't but it's an option and from what I hear, very effective but costly (mostly due to the many trips to the derm office per week).  I'm not sure how pervasive it is on your torso but I am currently receiving kenalog injections and they are pretty effective for me.

Quoting Bean0604:

My name is Tina, I'm 23 years old, my son and I live in Woodbury, MN. I was diagnosed with psoriasis about 5 years ago. I have it all over my scalp and on my torso. I use Dermasmoothe and protopic to help with it. I hate having to use that medication every single day! My dermatologist said that if it doesn't clear up in the next two months she's going to contact my insurance company and we're going to try to get me on Enbrel. That's about it!

 

 

 


TiNa





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cantuckeegurl
by New Member on Nov. 2, 2008 at 3:21 PM

My name is Tammy, I am 40 years old this month and I have had psoriasis for about two years.  I think it has something to do with hormones because mine started after my hysterectomy.  I always had clear skin.  I have it on my scalp, ears, back, bottom, legs, arms, and stomach.  I'm glad to find this group.  It's nice to be able to talk to people who are going through the same thing and understand.  Thanks 

 

TomsMom
by Member on Nov. 6, 2008 at 9:47 AM

Welcome to the group Tammy.  I hear you about the hormone theory.  Most of us on here had their psoriasis develop around times when hormones are out of whack; for me it was around puberty time, other during pregnancy and yet others unexplainable.  Hope you find some useful info and the girls here are a great support system.  welcome again!

Quoting cantuckeegurl:

My name is Tammy, I am 40 years old this month and I have had psoriasis for about two years.  I think it has something to do with hormones because mine started after my hysterectomy.  I always had clear skin.  I have it on my scalp, ears, back, bottom, legs, arms, and stomach.  I'm glad to find this group.  It's nice to be able to talk to people who are going through the same thing and understand.  Thanks 

 


kendrasmom
by on Dec. 11, 2008 at 6:43 AM

I am Tara from the oregon coast. I am 27 years old and am married and have a beautiful 2 1/2 year old daughter. I was diagnosed when i was 10 =( I have severe psoriasis all over my body and nothing seems to help. I cant keep spending all this money on going to a specialist and dead end treatments .

sunshine31
by New Member on Jun. 29, 2010 at 12:56 AM

 hi, my name is sonja and i am 34.  I have been living with eczema my entire life.  It has been all over my body in different spots.  it is now on my hands, and eyelids.  when i was a child, it was on my arms, and behind my knees.  i think that having it on my hands is the worst possible place in the world to have it.  no matter what i do to help them heal, they crack, and bleed,  and itch, and it is very painful.  I did read about using Nizoral for sebborhic dermititis and i might just try it.  If anyone else has used it, please let me know. 

Proud mommy to 4 1/2 yr old Zachery ( autism ) and 1 yr old ryan
TomsMom
by Member on Jun. 29, 2010 at 3:20 AM
hi and welcome to the group sonja!
I-am-Jen
by Member on Dec. 12, 2010 at 4:46 AM

Hi I'm Jen.  I used to be the owner of this group until I turned it over to my friend Tracey aka TomsMom.  I deleted my old profile of Mom2KeenCour because I was sick and tired of all the drama on Cafemom.  I'm back and ready for round two...LOL.  I am excited to get to know all of you.  My introduction is on the first page.  So I'll end this by giving a big Hello to all of you!

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