Please use this post to introduce yourself. Put your name, age, when you were diagnosed with your disorder, or whatever you want to put so we get to know you.
Posted by
on Mar. 14, 2007 at 1:58 PM
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on Aug. 28, 2007 at 10:14 AM
I'm Lyndsey 26 from Missouri. When I was pregnant with my third daughter they thought I had what was called "P.U.P.S" disease but it turned out to be psoriasis. They now diagnosed me with psoriactic arthritis. Mine covers the entire outside of my arms and is minor on my knees, face, and ears. It did go away while pregnant with my son a year ago and is worst with my cycles so it leads me to believe mine is some how triggerd by hormones. I have been on steroids, ointments and now mesotrexate but my results aren't promising. I also have no insurance and couldn't see depriving my family for my to see a specialist. There aren't many here unless you cross the state line in to Kansas anyway. I prefer not to show my arms which is hard since it is summer and hate the looks and comments I get like " is that poison ivy?" and "oh that has to hurt" of coarse I'm thinking "yes" but it's more on the inside than out. I have 4 children from 1 to 8 and none of them show any signs...yet. They are really understanding and I have a supportive husband also, but I would really love to talk to some other's with this problem. I work at home so I'm pretty much available anytime. I can't wait to meet all of you!
Lyndsey
Lyndsey
by
on Sep. 1, 2007 at 9:36 PM
Hi.
My name is Susan. I live in Minnesota. I have seborrheic dermatitis on my scalp. I have used all kinds of medicated shampoos and prescriptions with minimal success. I have been trying a natural shampoo with salicylic acid and have had some success. The only place my condition has ever cleared up is the desert! I lived in El Paso for 5 years.
My name is Susan. I live in Minnesota. I have seborrheic dermatitis on my scalp. I have used all kinds of medicated shampoos and prescriptions with minimal success. I have been trying a natural shampoo with salicylic acid and have had some success. The only place my condition has ever cleared up is the desert! I lived in El Paso for 5 years.
by
on Sep. 14, 2007 at 8:04 AM
Hello,
My name is Tara. I am 35 & I was recently diagnosed. I have a precious 3 year old daughter. Thank goodness she doesn't have any skins problems. I have a small patch on my scalp. It is making me nutty. I lead a holistic lifestyle so I am focusing on treating this naturally.
I have already tried externally, Dead Sea Salt Scrub, Pine Tar shampoo, Salicylic Acid shampoo. Internally, i have been taking Glucosamine with Hyaluronic acid, MSM, omega 3,6,9, bromelain, vit C, Manganese & grapefruit see extract. I am getting ready to order a product called Kala-walla. I read that psoriasis comes from an imbalance in our T-cells. This product supposedly helps that situation. Anyone try it yet?
It is so nice to meet you all & be able to talk about this condition.
Blessings, Tara
My name is Tara. I am 35 & I was recently diagnosed. I have a precious 3 year old daughter. Thank goodness she doesn't have any skins problems. I have a small patch on my scalp. It is making me nutty. I lead a holistic lifestyle so I am focusing on treating this naturally.
I have already tried externally, Dead Sea Salt Scrub, Pine Tar shampoo, Salicylic Acid shampoo. Internally, i have been taking Glucosamine with Hyaluronic acid, MSM, omega 3,6,9, bromelain, vit C, Manganese & grapefruit see extract. I am getting ready to order a product called Kala-walla. I read that psoriasis comes from an imbalance in our T-cells. This product supposedly helps that situation. Anyone try it yet?
It is so nice to meet you all & be able to talk about this condition.
Blessings, Tara
Hi, My name is Cara I'm 36 and I've been diagnosed for almost 5-6 years but I've had psoriasis since high school. I love winter becuase I can wear long sleeve shirts and people don't look at me like I'm a freak. I don't let the disease run my life, I did for a while but not anymore, I don't really care what people think, to me it's just like any other physical deformaty. Other people who are physically handicapped don't hide from the world I'm not going to either!
I have tried several medications, Kenalog, hated the bruises it left and one of the side effects is brittle bones, Dovonex, which works ok, but makes my skin too flaky, right now I'm using Diprolene or Betamethasone which works wonderful however, the means of delivery is a bit "odd" I put the ointment on and then wrap my legs (that's where it's the worst) in plastic wrap, put socks on and either wear it to bed or even to work, it's under my pants no one sees it. It does however give me complete relief, it takes a few days to a week of every day going through that process but then it will be clear for a few weeks I just have to use the cream and it stays clear. In order for my body to not become reliant on the medice and therefore become somewhat resistant to it I do take time off from using it full force,usually in the winter while I can keep covered, unless it gets too bad then I will use it but only till the redness and pain go away, a day or two.
I will admit that at times I feel like the only person in the entire world who has this problem so this is great to see others that I can ask for support.
Cara
I have tried several medications, Kenalog, hated the bruises it left and one of the side effects is brittle bones, Dovonex, which works ok, but makes my skin too flaky, right now I'm using Diprolene or Betamethasone which works wonderful however, the means of delivery is a bit "odd" I put the ointment on and then wrap my legs (that's where it's the worst) in plastic wrap, put socks on and either wear it to bed or even to work, it's under my pants no one sees it. It does however give me complete relief, it takes a few days to a week of every day going through that process but then it will be clear for a few weeks I just have to use the cream and it stays clear. In order for my body to not become reliant on the medice and therefore become somewhat resistant to it I do take time off from using it full force,usually in the winter while I can keep covered, unless it gets too bad then I will use it but only till the redness and pain go away, a day or two.
I will admit that at times I feel like the only person in the entire world who has this problem so this is great to see others that I can ask for support.
Cara
Welcome Kiwi19, glad to have you as part of the group! I know exactly how you feel. I too have had this since HS and always felt somewhat like a freak and it made life miserable for me for a long time. I guess I'm kind of lucky in that my DH is also afflicted with psoriasis so I have someone to commiserate with but I fear for my son and future children because both of us have it. Other than my DH and one other friend of mine, there aren't many people I know who are in the same boat so it's nice to have a group like this for support! I currently see my Derm. for kenalog injections and for now it's what works for me. I'm also using Dovonex along with coal tar creme 2 weeks on 2 weeks off but topical don't usually clear up the patches like the injections do but al least it lightens them and keeps them from cracking and itching and holds me over until the next treatment.
Always remember, you're unique just like everyone else.
Group Admin - Living with Psoriasis http://www.cafemom.com/group/2559
by
on Oct. 7, 2007 at 12:04 AM
Hi, my name is Wanda, I'm 38 and have lived with psoriasis since I was in middle school. Mostly it stayed on my scalp, up until high school, then it spread to my face, neck, and ears; then in my early 20's spread to my entire body. It's been the devil! But as someone, who has battled this for so long, I have been going to a wonderful derm for the last several years. Here's what works for me, and it's under control.
Diprolene ointment (saw where a couple of you are doing that), and a once weekly puva treatment at my derm's office. It's like sitting in a tanning bed. It's gives you a higher dose of fake sunlight, like being in the sun for several hours, but it takes 20 minutes. As bad as that sounds <getting that high dose of sun>, it works, and is no more dangerous than going out in the sun, or going to a tanning bed; and honestly, if it meant having a body full of this sh*t; then I'll take the sun treatment anytime.
It allows me to live life and not be controlled by my skin disorder.
Diprolene ointment (saw where a couple of you are doing that), and a once weekly puva treatment at my derm's office. It's like sitting in a tanning bed. It's gives you a higher dose of fake sunlight, like being in the sun for several hours, but it takes 20 minutes. As bad as that sounds <getting that high dose of sun>, it works, and is no more dangerous than going out in the sun, or going to a tanning bed; and honestly, if it meant having a body full of this sh*t; then I'll take the sun treatment anytime.
It allows me to live life and not be controlled by my skin disorder.
Welcome to the group Wanda! I hope you find what you need from this group. I know what it's like to have your life taken over by this disorder and it's always good to know that there are others who have been through the numerous treatments, the self consiousness of it and wondering if it will ever end. Feel free to share your stories, experiences and questions you may have.
Always remember, you're unique just like everyone else.
Group Admin - Living with Psoriasis http://www.cafemom.com/group/2559
by
on Oct. 8, 2007 at 7:40 PM
My name is Jessica and I was diagonsis in 2002 with psoriasis. it started on my arms then my legs and now moving to my back and stomach. I have tried all creams, embriel and now currently on raptiva. Any suggest out there??? My shin itches all the time and I really hate living in florida and can not wear shorts. can't move from florida cause this is where i am from and where my family is.
Quoting ImanisMom04:Welcome to the group Jessica! I too have it on my arms and legs. I currently am treated with kenalog injections and Dovonex/Coal tar cream. It works for me. Another member mentioned PUVA (I think it's a light treatment). I did ask my derm. about embrel but she wanted to try all other treatments first before moving on to it so I'm sticking with the injections for now. I haven't heard of Raptiva though, is it a cream. my derm. mentioned something but wanted me to wait until I was done having kids because it could be damaging to my liver. I'll have to ask her about it again next time. Doesn't it suck about the side effects of some of these treatments? My skin only itches when I haven't been treated in a long time. I use flucinonide in between treatments sometimes and that makes my plaques less painfull and less itchy.
My name is Jessica and I was diagonsis in 2002 with psoriasis. it started on my arms then my legs and now moving to my back and stomach. I have tried all creams, embriel and now currently on raptiva. Any suggest out there??? My shin itches all the time and I really hate living in florida and can not wear shorts. can't move from florida cause this is where i am from and where my family is.
Always remember, you're unique just like everyone else.
Group Admin - Living with Psoriasis http://www.cafemom.com/group/2559
by
on Oct. 9, 2007 at 6:21 PM
Quoting TomsMom:Quoting ImanisMom04:Welcome to the group Jessica! I too have it on my arms and legs. I currently am treated with kenalog injections and Dovonex/Coal tar cream. It works for me. Another member mentioned PUVA (I think it's a light treatment). I did ask my derm. about embrel but she wanted to try all other treatments first before moving on to it so I'm sticking with the injections for now. I haven't heard of Raptiva though, is it a cream. my derm. mentioned something but wanted me to wait until I was done having kids because it could be damaging to my liver. I'll have to ask her about it again next time. Doesn't it suck about the side effects of some of these treatments? My skin only itches when I haven't been treated in a long time. I use flucinonide in between treatments sometimes and that makes my plaques less painfull and less itchy.
My name is Jessica and I was diagonsis in 2002 with psoriasis. it started on my arms then my legs and now moving to my back and stomach. I have tried all creams, embriel and now currently on raptiva. Any suggest out there??? My shin itches all the time and I really hate living in florida and can not wear shorts. can't move from florida cause this is where i am from and where my family is.Always remember, you're unique just like everyone else.
Group Admin - Living with Psoriasis http://www.cafemom.com/group/2559
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Hi ladies....new to the group
- Mom2KeenCour
on Mar. 14, 2007 at 1:58 PM