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Seeing a specialist about my son's Hemangiomas birthmark

Posted by on Sep. 4, 2012 at 11:08 PM
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I don't know very many ppl who have children with this.  I known a lot, including myself with birthmarks, but not raised or red.  Just the normal brown small birthmark.  Below is a picture of my son at age 6 months. He is now 8 months and we are traveling 2 1/2 hours from home to see a specialist about it.  All I've heard is horror stories, and I found this group, so thought I would ask other who actually have a child like mine.  I don't consider my child as something wrong, so I hope I don't come across as that way, in fact I think he is perfect.  His ped dr is suggesting long term steroids to try and shrink it, but the research I've found on the internet says they don't work.  He is 8 months, and it has stopped growing for now.  But in the past it has grown and stopped and grown some more.  I guess I am just looking for support from those who have dealt with this.  No one in my family has ever had this so I don't know what to expect and I'm just concerned.  

 

by on Sep. 4, 2012 at 11:08 PM
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Mum2Lu
by New Member on Nov. 13, 2012 at 1:06 PM

 You baby boy is precious!! My daughter is 15 months and has a top-of-head compound hemangioma. Hers first became nocitable around 6 weeks, a dark purple-ish spot right on the top of her head. I was initially pretty concerned, never having heard of or seen anything quite like it either. But, I found it is a pretty common thing and actually not anything to be concerned about, other than cosmetically. Lucy's is about the size of a dime and has been that size since she was 6-8 months. We didn't see any signifigant growth after that point. Some days it seems huge and others it seems much less noticable. My doc said that around 85% of hemangiomas of all sizes are gone by about 5 yrs of age and 99% gone by age 10. She doesn't recommend any type of intervention, due to riskc associated with surgery, side effects etc. So, we are leaving Lu's "bumpy", as we lovingly call it, alone. I don't think it hurts to see a specialist about your son's if you think its necessary, but be cautious about any extreme measures, because I've heard multiple stories about re-growth and other issues. As for the staring people in the grocery line, I just try to remember that most people are genuinely concerned and acting mostly out of good intentions, no matter how rude they might come off. I try to be gracious and patient, but every now and then I'll just say " its a hemangioma- look it up!" LOL...And, just be happy that your son doesn't have any other actually dangerous/serious condition. We are all blessed that hemangiomas are the "issue" facing us. Many others are not so lucky.

CHEL butterfly& LU  :)

angelinam77
by New Member on Jan. 11, 2013 at 9:26 AM
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My daughter was born with a hemangioma on her  right cheek (it was her entire cheek) it caused it to sag which made her faced look disformed a bit. We live in SC and when she was 4 years old we were referred to a specialist in Charleston, SC and she had to have surgery to remove hers, but it was an outpatient procedure and I am so glad we decided to do it. She is now 8 years old and other than a small scar on her face if you did not know her then you would never know she once had that on her face.

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