Introduction - I'm a BTDT mom
I am a newbie to CafeMom, but not to the topic of hemangiomas. My oldest daughter had/has hemangiomas. She'll be 18 soon, so it's been a while since we've been in the throes of dealing with specialists and such, but I've definitely BTDT - including her hemangiomas encroaching on her airway which led to hospitalization when she was four months old. We've been through... steroid IV, Interferon injections, direct steroid injections, two reconstruction surgeries and multiple laser treatments, so I can definitely be a shoulder to lean on and/or here to show you there is light at the end of the tunnel of a rollercoaster ride you've been on.
As I said, I'm a newbie here and am learning to navigate the site, so hopefully I'll have that figured out quickly.