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Propranolol Treatment for Hemangiomas?

Posted by on Jan. 6, 2009 at 12:15 PM
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We are currently trying a topical steroid called Clobatesol for Zephan hemangioma. We will try this for a month to see if it seems to work. We go back to the specialist on Feb 2. If she notices that the Clobatesol is not working she wants to use Propranolol. This is a fairly new treatment for hemangiomas. Zephan will spend a couple of days in the hospital if he gets this for observation. Since this medicine is usually used to treat high blood pressure. Has anyone used this and if so how effective was it?

by on Jan. 6, 2009 at 12:15 PM
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Replies (1-9):
tattedmommy24
by on Jan. 6, 2009 at 1:29 PM

no we have not tried that..but heres a bump

Maru1977
by on Jan. 6, 2009 at 2:56 PM

We have not tried it personally, but I know a couple of families who have, quite successfully and with no apparent side effects. They also had to stay in the hospital for monitoring of heart rate (I think that was the main reason) for a few days but everything turned out OK. I'll be happy to put you in contact with them if you want to ask questions directly. Just PM me.

M.

tcr2141
by New Member on Jan. 21, 2009 at 5:17 PM

Hello, my daughter started laser treatments at 7 weeks old. She had 5 done and the results were slow but it did stop the growth. Her Hemangioma was thick and the laser only gets to the outer layer. So after 5 laser treatements, her wonderful Dr. told us about the new study useing Propanalol.  We started it in Nov. and we saw results within days. When they increased her dose after one month, we saw even more results. Now, the involution is a bit slower, but the results have been absolutely out of this world. The bright red has turned into more of a light pink and there is actually hair coming out of her hemangioma now. Like the facial hair that we all have on our face. Her Hem. is between her eyes, on her nose. We can actually look at her from the side and see her eyelashes. We were taking her to her Ped. once a week for a blood pressure check and now we go once a month. We have seen no side effects except maybe being just a tad more tired than usual. But what a God sent this has been. The results have been amazing. I thank her Dr. so, so much. Please email me with any questions, I hope my Daughters journey with her Hem. can help other babies.

Terra

NicolesMom24
by New Member on Feb. 5, 2009 at 1:40 PM

Hello everyone,

My daughter has a hemangioma in her airways. She has been with trach for 9 months to secure her airways. We treat  the Hemangioma with steroid injection every 6 to 8 week,but now the doctor wants to try  Propranolol. I 'll really appreciate if the one of you who have try it to tell me more about it. What are the side effects and how good are the results?

Thanks and good luck

tcr2141
by New Member on Feb. 5, 2009 at 2:05 PM

My dd has had no side effects and the results have been amazing!!

amanda0803
by Member on Feb. 5, 2009 at 2:07 PM

We had an appointment on Tuesday 3rd with the doctor. There is no change in Zephan's H. We've been doing a topical steroid now for about a month. They very fist visit we had with her in Dec he was given a injection. The second appointment no injection but started to use topical. Our third visit was Tuesday. Like I said she has seen no change what so ever in his birthmark. The doctor wanted to try one more injection with double the strength plus continue on with the topical. So now we will go back on March 2nd. If his birthmark is still the same then we are doing Propranolol. 

My doctor informed me that there are less side effects with Propranolo then with steroids. I've heard so far nothing but positive feedback about this treatment. I'm a little nervous since my son will have to stay in the hospital for a few days for observation purposes only.

Quoting NicolesMom24:

Hello everyone,

My daughter has a hemangioma in her airways. She has been with trach for 9 months to secure her airways. We treat  the Hemangioma with steroid injection every 6 to 8 week,but now the doctor wants to try  Propranolol. I 'll really appreciate if the one of you who have try it to tell me more about it. What are the side effects and how good are the results?

Thanks and good luck


NicolesMom24
by New Member on Apr. 15, 2009 at 4:01 PM

Hi,

So Nicole had bronchoscpy done last week and her ENT said that the Hemangioma  didn't change from  the last time he saw it. This means that the steroid injection are not working and we decided to start with the propanolol.We were in the hospital for  one day so she can be monitored. So far everything seems to be fine-her  heart rate and oxygen are normal. She is 13 months, 21 ponds and takes propanolol 3ml 3xday. I hope soon we'll see good results. How are your kids doing?

amanda0803
by Member on Apr. 15, 2009 at 5:13 PM

I'm glad to hear she has adjusted to the Propranolo well. My son did not have to go on this. The steroid is working. We have seen his Hemangioma shrink down in size and it has softened up. We go back to Chicago on the 21st and he will get another injection. The specialist thinks he is only going to need a few more shots. YAY!!! It's really weird to say this. I want his Hemangioma to go away sooooo bad. When it does go away I think I'm going to miss it.

Quoting NicolesMom24:

Hi,

So Nicole had bronchoscpy done last week and her ENT said that the Hemangioma  didn't change from  the last time he saw it. This means that the steroid injection are not working and we decided to start with the propanolol.We were in the hospital for  one day so she can be monitored. So far everything seems to be fine-her  heart rate and oxygen are normal. She is 13 months, 21 ponds and takes propanolol 3ml 3xday. I hope soon we'll see good results. How are your kids doing?


TikkiNippets
by New Member on May. 22, 2009 at 5:37 PM

They are talking about using this medicine for my daughter too!

      
 LDS, Married a Marine, 2yr old daughter with another on the way!

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