I know I haven't been as active as i'd like to in this group. Things have been crazy. I hope to become more active though.
Today at 1 pm is my daughter's first MRI. They are checking her for Sturge-Weber Syndrome (for those that don't know what it is PM me and i'll give you info). I am petrified. I know what's going to happena dn I know what to expect, but i'm sooooo nervous. Then we have to wait all weekend for the results. I hate waiting!!!!!!!
On Monday, Tuesday and Wednesday my daughter is scheduled for a 3 day EEG. We are positive she has been having seizures, so she is having a 3 day video EEG she check and see what's with her brain waves.
I'm ready to scream right now. I am so emotional and I'm at the end of my period(so nto a good time to have it!).
If anyone has any advice or suggestions or experiance with these things, i'd really love to hear your stories and thoughts.
Thanks in advance! Plese keep my daughter in your thoughts and prayers. Thanks! <3