I haven't been on here, or FB in a while now. I aplologize. I'm just really in no shape to talk about what's going on.
Things are not ok. His lung and heart pressures are bad, they're not correcting no matter what we do. shane is so swollen most days he cannot open his eyes. They had to re-do his tubes several times because he keeps getting blood stream infections. It's just not good. His heart isn't beating right and they don't know what else to do.
We'll be sitting down with the doctors again to make a decision. Matt & I are at a loss, this may be it.